A Vancouver student who watched his friend die of cardiac arrest says it's 'ridiculous' the school district won't let him donate a medical device that could save others in the same situation. READ MORE: https://t.co/9QfCXrc3L2 https://t.co/9QfCXrc3L2

We're excited for #CCC2024 kicking off today! Check out the great line up of talks by HIRO network members. Don't forget to stop by booth #408 to learn more about our Canadian cardiogenetics network and pick-up some resources!

Check out the latest research letter from the HiRO-LQTS Registry in @Circ_Gen High-Risk Nonclassical Long-QT Syndrome Genotypes: Spectrum of Genetic and Phenotypic Features https://t.co/2ttmB3tcRc Congratulations Dr. Abdulrahman, @DrLaksman @AndrewKrahnMD and all authors!

Our @TheACMG WG will give guidance on when labs should and should not report VUS, including the use of VUS subclasses coming in the next Sequence Variant Classification guidelines. Please share your opinion on VUS reporting through our <10 min survey

Our UBC Coordinating Centre is hiring! This exciting research coordinator role oversees HCM research projects with @HeartsInRhythm and @LaksmanResearch Learn more and apply here: https://t.co/IsD3YPuVGX

The @SCC_CCS Clinical Practice Update on Hypertrophic Cardiomyopathy (#HCM) is now online @CJCJournals and summarized in this Tweetorial https://t.co/3D9td64oaZ @acrean_at_UOHI @Christian_S_73 @DrLaksman @seema_mital @RuelMarc1 @HeartsInRhythm @chfalliance @CanadianSADS 1/9

Reminder! Our HiRO @CanadianSADS Family Forum is taking place at 10:30 am EST today! We're looking forward to welcoming patients and families to join us in-person, or virtually. Join sessions virtually here: https://t.co/o8eHOh3WJU

The afternoon sessions have started at #HIRO2024! We're thrilled to have a full house of #cardiogenetics enthusiasts joining us in-person for the 8th annual meeting in Toronto @PHRIresearch

We're kicking off Day 1 of the HiRO Symposium! #HiRO2024 First session: S-ICD (Dr. Erkan Ilhan) vs TV-ICD in ARVC (Dr. Jeff Healey)! Don't forget you can join the conference virtually! Register here: https://t.co/rDCTJkUF3S

The 8th Annual HiRO Symposium is going hybrid! We're excited to share registration for virtual attendance on Friday June 7th and Saturday June 8th is now open. View the full meeting program and speakers here: https://t.co/hMwlOxkEjS Register here: https://t.co/Hfj0N2ivK4

Hot-off-the-press! The latest paper from #HiRO is now available online @JAMACardio Deep Learning–Augmented ECG Analysis for Screening and Genotype Prediction of Congenital Long QT Syndrome @riverjiang https://t.co/IjvpImS8ab #cardiogen #EPeeps #LQTS @UBCmedicine @ICMtl

@GlobalHeartHub is hosting an Empower Webinar - Mental Health & Wellness. This webinar is free and open to all! This session will feature clinical psychologist Dr Anna Mierzyńska and patient advocates Marcin Rucinski and @jackie_ratz Also the audience will have the option of

LTSL EP 15 - Q&A W/ Dr. Sanatani and Dr. MacIntyre

Our HiRO Coordinating Centre team members are wearing red today in support of woman's heart health! ❤️ ❤️ #WearRedCanada #HerHeartMatters @CWHHAlliance Ps - Check out our fun #cardiogen themed meeting snacks!

I am pleased to share the Z-score for the largest #KCNH2 patch clamp dataset, which can be used as functional evidence within the @TheACMG variant classification framework. Hopefully this resource can help many individuals with #LQTS to get their #VUS reclassified. Happy to help.

HiRO is excited to share the ARVC TaRGET Trial has received Health Canada approval and will be commencing recruitment in Canadian HiRO centres in the near future! Learn more about this upcoming clinical trial for patients with gene-positive ARVC here: https://t.co/eghiLYHyL3

Don't miss the next edition of HiRO KT Rounds happening virtually tomorrow at 3:00 pm PST/6:00 pm EST! We invite all healthcare providers, researchers, and patient/family members to join. Email admin.hiro@ubc.ca to RSVP. View past HiRO KT Rounds here https://t.co/SihwePIDvb

Just out in European Heart Journal: ICD use in ARVC, North-America vs Europe Fewer ICDs implanted in Europe without increasing events in non-ICD carriers. A great team lead with: @RTCarrick, @CDM_MD, Cindy James, @gasperettimd, @KathyWuMD https://t.co/DMAXXF4Gmp

Do you have experience in research planning/facilitation for #clinicaltrials? If yes, you might be interested in the HiRO National Study Coordinator position at UBC. Apply before Dec 12. https://t.co/9kc8ctu3Bh

Our UBC Coordinating Centre is hiring! This exciting national research role coordinates regulatory and ethics review, contracts and study start-up for cardiogenetics projects with @HeartsInRhythm and @LaksmanResearch Learn more and apply here: https://t.co/a5gTlALQT2