Dansk MPN Forening
@DanishMPN
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Officiel Twitter for Dansk MPN Forening - Essentiel Trombocytose/Polycytæmi Vera/Primær Myelofibrose | Official Twitter of The Danish MPN Patient Organization
Kalundborg, Denmark
Joined July 2020
Velkommen til Dansk MPN Forenings officielle Twitter-konto. Formålet er at øge synligheden for ny-diagnosticerede MPN-patienter (kroniske blodkræftsygdomme). | Welcome to the official Twitter of The Danish MPN Patient Organization (MPN = chronic blood cancer diseases).
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Gode kilder til mere information for jer, der kan engelsk (vi opsummerer efter bedste evne på dansk for vores medlemmer) | Great resources to gain more knowledge and awareness on MPN #MPNAwarenessDay
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I dag er det MPN-kendskabs-dag. Vi sætter fokus på MPN-sygdom - for diagnosticering af u-diagnosticerede patienter og bedre behandling | Today, it is MPN Awareness Day. We #MakeSenseOfMPN to diagnose non-diagnosed patients and improve treatment #MPN2024 | Credit & thanks: @GMPNAN
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Livsstil er en vigtig faktor ved MPN-sygdomme | Lifestyle is an importantant factor in dealing with MPN diseases: "I can Move With Purpose Now!" (MPN)
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Nye behandlingsmuligheder for Essentiel Trombocytose | New treatment options for Essential Thrombocytosis
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Forebyggelse er vigtig for MPN-patienter | Preventional efforts are important for MPN patients
Finishing of the morning session with the local doctor from Zagreb - Marko Lucijanić and his talk on Cardiovascular risk factors in MPN patients! #MPNHZ23
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Nye kombinationsbehandlinger til behandling af Myelofibrose | New treatment combinations for Myelofibrosis
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The Danish MPN Patient Organization is also attending.
🎉 Just one week to go until Mpn Horizons 2023! Get ready for an unforgettable experience at #MPNHZ23. 📍Zagreb, Croatia 📅 13th - 15th October 2023 #MPN #PatientAdvocacy #LearnShareGrow
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☀️ Summer is here, and we want that the patients with MPNs can have a fantastic time while staying safe. 👉🏻 Our latest blog post provides essential tips to help you enjoy the sunny days. 📲 Dive into the article now: https://t.co/R87CcPItDr #MPNsm #AskPatients
gmpnsf.org
Summer is here, and you don't have to miss the fun! As an MPN patient, you can still enjoy sunny days and warm nights with simple precautions. In this article, you will find some tips to help you...
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https://t.co/4PlhJHNUuR Antibodies to mutant CALR in serum from healthy donors. Yet another evidence of tumor immune surveillance against CALRmut #mpnsm. Thanks to Gunnar Houen, @DrFassi and others for a nice collaboration on this project. @CCITdk
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Congratulations. We at the Danish MPN Patients Organization are very thankful for Your work, Hans.
Congratulations to Hans Hasselbalch on receiving the Medical Excellence Award during the 14th International Congress on MPN #MPNCongress2022, for his livelong dedication to improving the lives of patients with #MPN #MPNsm
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So exciting for us MPN patients. Thank You for important research, @holmstrom_mo
Peptide vaccines against mutant CALR incite strong T cell responses in patients with CALRmut #mpnsm but don't show any clinical effect.🤔 These days I perform an experiment at @CCITdk using this wonderfull machine, that will hopefully shed light on the lack of clinical response.
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Thank You for this research! We can confirm that this is exactly how a lot of people living with MPNs feel, suffering from fatigue and lacking understanding of an invisible disease. We can and will use this to guide patients as well as society. We hope clinicians read this!
https://t.co/7kM42BbDSU Disabled, invisible and dismissed—The lived experience of fatigue in people with myeloproliferative neoplasms. #livedexperience #ThisisbloodCancer #MPN @PeterMacCC
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Mød andre med en MPN-sygdom og få den forståelse, som du ikke møder andetsteds med en usynlig MPN-sygdom. Indmeld dig og få adgang til sikkert online fællesskab, leveret af @AccoboData, og mød andre MPN-patienter fysisk eller virtuelt til medlemsmøder:
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Thank You for that impressive work, @LindaResar. Could this be a breakthrough in preventing progression to AML? | Mon dette kan være et gennembrud i forhold til at forebygge progression til AML?
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B200 i FT- rejst af @LouiseElholm, V - om fradragsret for bidrag til små sjældne-foreninger, jf. §8A. Tak for forståelsen - også til @mfMorten, @RavnTroels og andre, der måtte følge - vi er til rådighed for en hurtig løsning! #sjældnesygdomme #dkpol @MortenFreil @DanskePatienter
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Videoer fra webinaret er nu klar: https://t.co/dmWhfehZcP | Videos from the webinar has now been published:
crt.org
MPN Patient Symposium Videos Every year, CR&T hosts the International Patient Symposium on Myeloproliferative Neoplasms (MPNs). This full-day educational event takes place in New York City, and is...
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