
Global MPN Scientific Foundation
@gmpnsf
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Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm
Barcelona, Barcelona
Joined May 2022
RT @SilenceTheraPlc: Weโre currently enrolling participants in our Phase 2 clinical trial for people living with polycythemia vera (PV), aโฆ.
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RT @peter_mpn: Iโve been living with #PV for 40+ years โ and the MPN Journal helps me track symptoms, meds & fatigue. Now I show my hematolโฆ.
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๐ด New video: โNutrition for MPNโ is now live!. ๐๐ป Expert dietitian Carla Not explores anti-inflammatory diets, key supplements (like magnesium & turmeric), and food strategies to boost energy in MPN patients. ๐ฅ Watch: #Nutrition #NutritionMPN #MPNsm.
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๐ง Exercise & MPNs: Safe Movement for Better Outcomes. Physical activity can ease fatigue, improve mood, and support cardiovascular health in MPN patientsโbut it must be done cautiously. โ๏ธ Warning signs to stop.โ๏ธ Hydration guidance. ๐ #MPNsm.
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๐ฅ NEW VIDEO: Roundtable on #ClinicalTrials for #ET patients (USA) now available!.Prof. Hugh Rienhoff + powerful patient stories. ๐ฅ๏ธ Watch now: #MPNsm.
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๐ฅ Could divesiran be a new treatment for PV?. ๐๐ป We talked to @SilenceTheraPlc about their RNA-based therapy in our latest webinar. โถ๏ธ Watch now: #MPNsm.
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๐๐ป Could Navtemadlin change how we treat #Myelofibrosis?. ๐ง In our recent webinar, Dr. Verstovsek shared key insights on this promising oral therapy from @KartosThera. ๐บ Full replay here: #MPNsm.
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๐ข New treatment options for Essential Thrombocythemia are coming. ๐งฌ Join our roundtable June 25 with expert Prof. Hugh Rienhoff and patient stories from across the ๐บ๐ธ USA. ๐๏ธ Clinical trials matter โ your voice matters. ๐ Register now: #MPNsm.
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๐จ From #EHA2025: Peter Lรถffelhardt shares key updates for the MPN community. ๐งฌ Promising therapies are coming. Innovation takes time, but itโs happening. ๐ฅ Watch now: @EHA_Hematologyย . #MPNsm.
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RT @peter_mpn: ๐ฉธ I just returned from #EHA2025 in Milan, where I shared a message of hope with the MPN community. Promising early data andโฆ.
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