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Global MPN Scientific Foundation Profile
Global MPN Scientific Foundation

@gmpnsf

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Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm

Barcelona, Barcelona
Joined May 2022
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@gmpnsf
Global MPN Scientific Foundation
2 hours
๐Ÿง ๐Ÿฉธ Emotional wellbeing and medical care must go hand in hand. Thatโ€™s why weโ€™re launching The Wellbeing Project โ€” a new support space for MPN patients. Tools for calm, strength and self-care โ€” along with physical treatment. ๐Ÿ“ฉ #MPNHope #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
1 day
RT @SilenceTheraPlc: Weโ€™re currently enrolling participants in our Phase 2 clinical trial for people living with polycythemia vera (PV), aโ€ฆ.
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@gmpnsf
Global MPN Scientific Foundation
2 days
JAK2 mutation: 97% โžก๏ธ almost zero. Francesc explains how Besremi + clinical trial changed his PV journey. His story brings new hope to MPN patients. ๐ŸŽฅ Full video: #MPNHope #MPNsm @mpdrc.
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@gmpnsf
Global MPN Scientific Foundation
3 days
RT @peter_mpn: Iโ€™ve been living with #PV for 40+ years โ€” and the MPN Journal helps me track symptoms, meds & fatigue. Now I show my hematolโ€ฆ.
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@gmpnsf
Global MPN Scientific Foundation
7 days
Looking for better patient-reported outcomes in MPN? โœ….The MPN Journal is a new tracking tool developed by patients, in collaboration with @gmpnsf. ๐Ÿง  Track symptoms, treatment, lifestyle.๐ŸŒ 11 languages.๐Ÿ”’ 100% anonymous. ๐Ÿ”— #MPNsm @mpdrc.
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@gmpnsf
Global MPN Scientific Foundation
9 days
๐Ÿ”ด New video: โ€œNutrition for MPNโ€ is now live!. ๐Ÿ‘‰๐Ÿป Expert dietitian Carla Not explores anti-inflammatory diets, key supplements (like magnesium & turmeric), and food strategies to boost energy in MPN patients. ๐ŸŽฅ Watch: #Nutrition #NutritionMPN #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
10 days
๐Ÿฉธ Women + MPNs = a conversation long overdue with Dr. Natalia Curto. ๐Ÿฉบ. ๐ŸŽฅ Part 1 of our webinar on pregnancy, menstruation & menopause is now live:.๐Ÿ”— #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
11 days
๐Ÿง  Exercise & MPNs: Safe Movement for Better Outcomes. Physical activity can ease fatigue, improve mood, and support cardiovascular health in MPN patientsโ€”but it must be done cautiously. โœ”๏ธ Warning signs to stop.โœ”๏ธ Hydration guidance. ๐Ÿ”— #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
14 days
๐Ÿง  Emotional wellbeing matters in #MPNs too. Join our upcoming workshop on Emotional Freedom Techniques (EFT) for patients & caregivers. ๐Ÿ—“ July 8 ยท 6PM CEST.๐Ÿ’ฌ Spanish w/ English interpretation.๐ŸŽ“ Led by certified EFT facilitator Elena Mendoza. ๐Ÿ”— #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
15 days
๐Ÿฅ— Just published!.Inspired by our nutrition webinar with Carla Not, hereโ€™s a Weekly Meal Plan for MPN patients ๐Ÿงฌ. โœ… Anti-inflammatory.โœ… Omega-3 rich.โœ… Simple & effective. ๐Ÿ“ฒ See now: #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
16 days
๐ŸŽฅ NEW VIDEO: Roundtable on #ClinicalTrials for #ET patients (USA) now available!.Prof. Hugh Rienhoff + powerful patient stories. ๐Ÿ–ฅ๏ธ Watch now: #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
18 days
๐ŸŽฅ Could divesiran be a new treatment for PV?. ๐Ÿ‘‰๐Ÿป We talked to @SilenceTheraPlc about their RNA-based therapy in our latest webinar. โ–ถ๏ธ Watch now: #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
21 days
How can anti-inflammatory diets and supplements help people living with MPNs?. Join our next webinar with oncology dietitian Carla Not. ๐Ÿ—“ July 1st | ๐Ÿ•• 6PM CEST | ๐ŸŒ With English interpretation. ๐Ÿ”— Register now: #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
23 days
๐Ÿ‘‰๐Ÿป Could Navtemadlin change how we treat #Myelofibrosis?. ๐Ÿง In our recent webinar, Dr. Verstovsek shared key insights on this promising oral therapy from @KartosThera. ๐Ÿ“บ Full replay here: #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
26 days
๐Ÿ“ข New treatment options for Essential Thrombocythemia are coming. ๐Ÿงฌ Join our roundtable June 25 with expert Prof. Hugh Rienhoff and patient stories from across the ๐Ÿ‡บ๐Ÿ‡ธ USA. ๐Ÿ—“๏ธ Clinical trials matter โ€” your voice matters. ๐Ÿ”— Register now: #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
27 days
๐Ÿงฌ Clinical trials in MPNs. Explore why patient insight is key to real progress. ๐Ÿ”— #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
28 days
๐Ÿ“น Just one week after #EHA2025. ๐Ÿ‘‰๐Ÿป Prof. Haifa Kathrin Al-Ali shares exclusive insights on MPN research, new combination therapies and CALR-targeted treatments. A must-watch from one of the top KOLs in hematology. ๐Ÿ“ฒ @mpdrc #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
29 days
๐Ÿšจ From #EHA2025: Peter Lรถffelhardt shares key updates for the MPN community. ๐Ÿงฌ Promising therapies are coming. Innovation takes time, but itโ€™s happening. ๐ŸŽฅ Watch now: @EHA_Hematologyย . #MPNsm.
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@gmpnsf
Global MPN Scientific Foundation
1 month
RT @peter_mpn: ๐Ÿฉธ I just returned from #EHA2025 in Milan, where I shared a message of hope with the MPN community. Promising early data andโ€ฆ.
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@gmpnsf
Global MPN Scientific Foundation
1 month
Women living with MPNs: letโ€™s talk. ๐Ÿฉธ Menstruation, pregnancy, menopause. ๐Ÿ’ฌ With Dr. Natalia Curto-Garcรญa.๐Ÿ“… June 26 | 18:00 CEST.๐ŸŽง Live interpretation.โ—๏ธ Registrations close 1 hour before. ๐Ÿ‘‰ Join us: #MPNsm.
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