We are delighted to present the Long Covid Symptom Diary, a disease tracking notebook to help Long Covid patients track all aspects of their disease, identify triggers for symptoms, and provide them with a tool that can support them in communicating with healthcare providers.

We recently discussed the Long Covid Symptom Diary with @gezmedinger for his educative, long-running YouTube series on everything #LongCovid. 🎦 Video: Why Old School Is Best - The Long Covid Symptom Diary .

What do you want to know?.

RT @DDxPublishing: We wanted to turn the way symptom tracking was done on its head. Instead of an empty sheet, we wanted to create an easy-….

Are you using the Long Covid Symptom Diary yet?. You can order yours here:

We sincerely hope that this format for symptom tracking makes it easier for patients to get insight into their illness and its fluctuations over time.

For every day of tracking, we also included:.- Empty spaces for additional symptoms.- Plenty of room for note-taking ✍️.- Fields to record data from frequently used home-monitoring devices 🩺.- A range of options to rate the symptom burden of the day on a scale from 0 to 10.

This checkbox system includes 42 of the most common symptoms of Long Covid. For each symptom, there is a severity scale and space to jot down any notes as well as the time of occurrence.

We wanted to turn the way symptom tracking was done on its head. Instead of an empty sheet, we wanted to create an easy-to-navigate, tactile, and comprehensive way to track symptoms. And so we created the checkbox system ❎️.

We also quickly learned that many research teams simply provided patients with an empty sheet, telling them to jot down what symptoms they were having, which was time-consuming and a real challenge, given the cognitive and memory recall difficulties many patients struggle with.

There also weren't many options to record the fluctuations in symptoms that patients were experiencing over the course of a day, which can vary dramatically.

When talking to the patient community, it became clear that this symptom tracking left much to be desired. Oftentimes, the range of symptoms was too narrow, thereby giving a distorted view of the overall symptom burden.

The same goes for research. Many research studies over the years have tried to track symptoms of Long Covid, whether it was to collect data on prevalence, symptom burden, or the effectiveness of treatments or medications that were being trialed.

Many treatments for Long Covid require patients to keep track of their symptoms over time to get a sense of how effective a treatment is.

✅️ Symptom tracking made easy - That was the thought that sparked the creation of The Long Covid Symptom Diary.

RT @LongCovidNL: 📚 Boekentip: Long Covid Symptoomdagboek – Een waardevol hulpmiddel voor patiënten en zorgprofessionals. Voor iedereen die….

Je kunt het Long Covid Symptoomdagboek hier bestellen:

🫴 We zijn blij te kunnen delen dat €1 van elke verkoop van de Nederlandstalige versie van.The Long Covid Symptom Diary, ‘Het Long Covid Symptoomdagboek,’ zal worden gedoneerd aan patiëntenvereniging Long Covid Nederland.

We are pleased to announce that €1 from all sales of the Dutch version of The Long Covid Symptom Diary will be donated to @LongCovidNederland, in an effort to support their vital advocacy work for better recognition, research, and care for Long Covid patients in NL 🇳🇱

Since then, @LongCovidChile has actively contributed to strengthening global advocacy, helping to elevate expectations and set new benchmarks for intl cooperation.'. - Elizabeth Semper, Long Covid advocate & co-founder of asociación Covid Persistente España (@AcpeCovid).

In 2021, my organization, ACPE, urged the WHO to include countries from the Global South in its collaborative work.

. because of the organization’s consistent dedication and meaningful contributions over the years. Their unwavering commitment has made them a key voice in Latin American Long Covid advocacy and widely recognized and deeply respected across the Spanish-speaking world.