CYP Research in Palliative Care
@CYP_CSI
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@CSI_KCL research on the needs of CYP with life-limiting conditions (C-POS); family experiences of newborn screening (ReSPoND); & CYP facing bereavement (SCYP)
London, England
Joined September 2018
We are excited to share our final C-POS study newsletter. Please get in touch for more information on the project, or to request a PDF copy of the newsletter #pedpc @DrLucyCoombes @DEBraybrook @HannahM_Scott20 @childhealthqld @StarshipFDN @CSI_KCL @EAPCvzw @PalliativeMedJ
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RT @lornafraser10: Hoping to see lots of you there in person @TheAPPMuk @hospiceuk @RCPCHtweets @doctor_oxford #ppc @Tog4ShortLives ether.
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RT @lornafraser10: New paper - please stop asking professionals about barriers to #pedpc we need to make changes and evaluate to improve….
journals.sagepub.com
Background: Palliative care is an essential component of children’s health services but is accessed by fewer children than could potentially benefit. Aim: Appr...
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RT @lornafraser10: Such a pleasure to share the stage with @doctor_oxford this evening (my twitter hero!)- we must work together to impro….
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Children’s Palliative Care Outcome Scale (C-POS) Videos Launched: #pedpc @ehospicenews @ICPCN @CSI_KCL @KingsNursing @DaniellaLogun @TheAPPMuk.
ehospice.com
Person-centred care is a core health value of modern health care (1). The overarching aim of the Children's Palliative care Outcome Scale (C-POS) is to develop
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RT @KingsNursing: C-POS:UK is the first tool developed to improve health outcomes for children with palliative care needs in the UK. What a….
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RT @CYP_CSI: An important step in #PCOM development is #cognitive testing to establish comprehensibility, comprehensiveness, relevance & ac….
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An important step in #PCOM development is #cognitive testing to establish comprehensibility, comprehensiveness, relevance & acceptability. @DrLucyCoombes led a cognitive interview study to test and refine the initial versions of C-POS #pedpc. Full article:
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RT @HannahM_Scott20: Excited to share these two short videos (for families & #pedpc professionals), about the potential benefits of C-POS (….
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C-POS:UK - for health and social care professionals supporting children and young people with life-limiting and life-threatening conditions and their families: . @KingsNursing @CSI_KCL @ARC_S_L @HorizonEU @ERC_Research @Tog4ShortLives @TheAPPMuk #pedpc.
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C-POS:UK - for families of children and young people with life-limiting and life-threatening conditions: . @KingsNursing @CSI_KCL @ARC_S_L @HorizonEU @ERC_Research @fabian_trust @DaniellaLogun @Tog4ShortLives @TheAPPMuk #pedpc.
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RT @CYP_CSI: What are the benefits, risks, barriers & facilitators to implementing PCOMs into paediatric palliative care #pedpc? @HannahM_S….
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What are the benefits, risks, barriers & facilitators to implementing PCOMs into paediatric palliative care #pedpc? @HannahM_Scott20 led a qualitative interview study to find out. 📰Full article: 🔊Podcast: /
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RT @CYP_CSI: How do #children & #YoungPeople use #language to describe their own #LifeLimiting/#LifeThreatening condition #pedpc? @CSI_Ling….
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RT @DaniellaLogun: Delighted to participate in the final @CYP_CSI C-POS project meeting. Robust. Scientifically complex in leadership. 76 U….
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Podcasts for @PalliativeMedJ: Podcast 109 with @HannahM_Scott20: Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study.
journals.sagepub.com
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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Podcasts for @PalliativeMedJ: Podcast 119 with @HannahM_Scott20: What are the anticipated benefits, risks, barriers & facilitators to implementing PCOMs into routine care for children and young people with life-limiting and life-threatening conditions?.
journals.sagepub.com
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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@HannahM_Scott20 (2023). Delivering spiritual care for children with life-threatening conditions. Nursing in Practice.
nursinginpractice.com
Research assistant Hannah Scott from the Cicely Saunders Institute discusses work with the Children’s Palliative care Outcome Scale study (C-POS), which focuses on developing and implementing a new...
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@HannahM_Scott20 et al. (2023). Knowledge, attitudes and beliefs about paediatric palliative care. Annals of palliative medicine, 12(1), 10–12.
apm.amegroups.org
Knowledge, attitudes and beliefs about paediatric palliative care
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@HannahM_Scott20 et al. (2022). COVID-19: Impact on Pediatric Palliative Care. Journal of pain and symptom management, 64(1), e1–e5.
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