HereditaryNeuropathy
@CMTNeuropathy
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(HNF) A non-profit dedicated to translating discoveries to find treatments & cures for #CharcotMarieTooth (CMT) disease & related inherited neuropathies.
New York, NY
Joined April 2009
Join us Saturday, October 4, 2025 @12pm! .The Hereditary Neuropathy Foundation and Dr. Ryan Castoro Present “The Nerve to Cure: CMT Social + Science Day with Evening Fundraiser Dinner”Register: #cmtwegotthis #thenervetocure
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💼 Living with CMT and working shouldn’t mean pushing through pain, fatigue, or barriers. That’s why we created the #CMTWorkplaceAccommodationGuide & dropped a new #CMTSimplifiedPodcast episode on Work Accommodations!🎙️ #cmtwegotthis
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#CMTgownsThatGive! .Support #CharcotMarieTooth (#CMT) Research by Donating a Dress!.Thank you for helping the #HNF reach our goal: 1,000 gowns and $50,000 raised to fund research and programs for people with CMT. 👉
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RT @NMDPharma: We are thrilled to share that our new Facebook and Instagram pages have #launched today!. At NMD Pharma, we are Passionate A….
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Big News for the CMT-SORD Community. In a newly press release, #AppliedTherapeutics—a valued HNF TRIAD partner—shared exciting progress in the development of treatments and diagnostics for #CMTSORD, often misdiagnosed. Learn more:
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Join us tomorrow evening 7:30 PM ET for our new live CMT Readers Club Webinar! Register free: Kids welcomed #cmtwegotthis #cmtwebinar #cmtawareness #charcotmarietooth
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Join our new CMT Webinar, CMT Readers Club with authors Charity Harris and co-author Bernadette Scarduzio. 📚 Children encouraged to join! Register 👉 #cmtweGOTthis #cmtreadersclub #charcotmarietooth #hnf4cmt #cmtwebinar #childrenbook
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🎙️New CMT Simplified Podcast.CMT: Newly Diagnosed, You’re Not Alone. Listen today…#CharcotMarieToothDisease #Podcasts .#cmtsimpified . #CMTAwareness #RareDisease #cmtsimplifiedpodcast #hnf4cmt #podcast #cmtwegotthis #cmtsupport
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Are you ready to help drive real progress in #CMTresearch? Your participation is simple, free, and deeply impactful. Event hosted by our trusted partner, COMBINEDBrain @combined_brain .Sign up 👇👇 #cmtbiobank #cmtwegotthis #cmt .
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RT @MarcusVPinto: Continuing the series of posts highlighting Dr. Dyck’s legendary career, I focus today on two seminal papers by Drs. Dyck….
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Wearable sensor used at home by 26 Charcot-Marie-Tooth patients linked well with formal measure of disease severity taken in the clinic. #cmtwegotthis #cmtnews @MDAorg #cmtneuropathy #hnf4cmt.
charcot-marie-toothnews.com
Wearable sensor used at home by 26 Charcot-Marie-Tooth patients linked well with formal measure of disease severity taken in the clinic.
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Help for resources for the treatment and management of CMT. 👉 #CharcotMarieToothDisease #PatientResources #CMTwegotthis #hnf4cmt #cmtneuropathy #CharcotMarieTooth
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#CMTsimplified 🎙️ .AFOs might just be three letters—but for those living with CMT, they can mean the difference between daily struggle and confident mobility. Listen here: #cmtwegotthis #CharcotMarieToothDisease #cmtpodcast
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Promising Results from the INSPIRE Study on Govorestat. We’re excited to share new results from our TRIAD Partner, Applied Therapeutics. Learn more:.@PNSociety1 #appliedtherapeutics #cmtsord #pnsociety #charcotmarietooth #cmtwegotthis
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RT @WebMD: After 30 years of touring Alan Jackson is retiring amid health battles. Jackson was diagnosed with Charcot-Marie-Tooth disease,….
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RT @ClinicalNeuroph: [Neuropathies] Calic et al.: "Video head-impulse test allows detection of vestibulo-ocular reflex impairment which cou….
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📣 CMT-SORD Clinical Trial Update: .Promising Results from the INSPIRE Study on Govorestat!.We’re excited to share new results from HNF TRIAD Partner, Applied Therapeutics #appliedtherapeutics. Read more 👉 #CMTSORD #CMTneuropathy
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RT @PNSociety1: We’re excited to welcome you all to Edinburgh for #PNS2025 commencing tomorrow. Get ready for a week of cutting-edge resear….
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RT @vaibhavsoberoi: "Dr. Castoro shares valuable insights during the session titled 'Will My CMT Subtype Be Eligible for Therapeutics? How….
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RT @charcot_news: This weekend kicked off the MDA annual Clinical & Scientific Conference, bringing together the neuromuscular disease comm….
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