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HereditaryNeuropathy

@CMTNeuropathy

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(HNF) A non-profit dedicated to translating discoveries to find treatments & cures for #CharcotMarieTooth (CMT) disease & related inherited neuropathies.

New York, NY
Joined April 2009
Don't wanna be here? Send us removal request.
@NMDPharma
NMD Pharma
2 days
Last Sunday, our scientists Martin Brandhøj Skov, Nete Huus, and Thomas Skjærlund Grønnebæk completed the TCS NYC Marathon, running to raise vital funds and awareness for the Charcot-Marie Tooth (#CMT) community. After months of preparation, Thomas, Martin and Nete took to the
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@NMDPharma
NMD Pharma
10 days
Even after hundreds of miles (and even more kilometers!) of training, our #muscle scientist runners, Martin, Nete, and Thomas, are still passionate about movement. This week, they will be New York City-bound to run in the TCS New York City Marathon to support the
@NMDPharma
NMD Pharma
2 months
We're taking our passion for movement to the streets of #NYC to run the TCS New York City Marathon in support of the Charcot-Marie-Tooth disease (#CMT) community! NMD Pharma is proud to partner with the @CMTNeuropathy to raise awareness and funding for critical research on CMT, a
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@s_mamta99
˜”*°• Mamta •°*”(PM Modiji Ka Parivar)
3 months
@Doctors_GUILD B) Charcot-Marie-Tooth disease
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@NMDPharma
NMD Pharma
24 days
The NMD Pharma team, including our CEO, Thomas Holm Pedersen, SVP, Dan Brennan, Corporate and Commercial VP, Business Development, Aldemar Degroot, will be in London from 17-20 November for the annual @Jefferies London Healthcare Conference. Our team looks forward to sharing
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@CMTNeuropathy
HereditaryNeuropathy
26 days
HNF's TRIAD partner #NMDpharma SYNAPSE-CMT Clinical Trial Update! We are thrilled to share an important milestone for the #CharcotMarieTooth (CMT) community. @NMDPharma https://t.co/e8dbMgB9uk #cmtwegotthis
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@NMDPharma
NMD Pharma
29 days
The TCS New York City Marathon is just under a month away! Our scientists, Martin Brandhøj Skov, Nete Huus, and Thomas Skjærlund Grønnebæk are deep in training for the official race, but they're not the only ones tallying up miles before the big day! ​ Members of the NMD Pharma
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@BraunAbility
BraunAbility
5 months
We are thrilled to be included in the @Forbes first-ever #ForbesAccessibility100 list that honors BraunAbility as one of the biggest innovators and impact-makers in Accessibility. #ForbesAccessibility100 #BraunAbility https://t.co/FBKmyhg17Y
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@CMTNeuropathy
HereditaryNeuropathy
1 month
💊 September '25 | CMT Monthly Dose: CMT News & Resources https://t.co/bvzUBK7TdR #cmtwegotthis #cmtawareness #nervetocure #charcotmarietooth #cmtneuropathy
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@FamouslyGarnet
Famously Garnet Sports
2 months
I'm taking a moment to share something personal as September marks CMT Awareness Month. I've lived with Charcot-Marie-Tooth Disease my whole life, and while it presents its challenges, I've learned to adapt and thrive. As this disease progresses, I'm committed to raising
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@vaibhavsoberoi
Vaibhav Oberoi, M.B.B.S.
2 months
We all eagerly look forward to it! Team @CastoroLab
@CMTNeuropathy
HereditaryNeuropathy
2 months
Join us Saturday, October 4, 2025 @12pm! The Hereditary Neuropathy Foundation and Dr. Ryan Castoro Present “The Nerve to Cure: CMT Social + Science Day with Evening Fundraiser Dinner”Register: https://t.co/CgYw5NzcYx #cmtwegotthis #thenervetocure
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@vaibhavsoberoi
Vaibhav Oberoi, M.B.B.S.
6 months
I wanted to take a moment and thank @CMTNeuropathy for an amazing effort, bringing all the people together. This event is very special and unique in a way that is very comprehensive. It's a reminder that "CMT wouldn't stop and neither should we" @CastoroLab
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@vaibhavsoberoi
Vaibhav Oberoi, M.B.B.S.
2 months
A big thank you to Dr. Castoro, @CMTNeuropathy and @MDAorg for hosting such an insightful and empowering session on managing various types of pain in the CMT patient community. Kudos to improving patient awareness and quality of life. https://t.co/GsT0Jk0bfc
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@CMTNeuropathy
HereditaryNeuropathy
2 months
Join us tomorrow with the #MDA for a virtual learning session on #Charcotmarietoothdisease! We are looking forward to sharing insight on CMT. #cmtwegotthis #cmtawareness #cmtneuropathy 🔗 https://t.co/oRgVc6dlU8
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@MarcusVPinto
Marcus Pinto, MD, MS
7 months
I often remind our @MayoClinicNeuro trainees that Charcot-Marie-Tooth disease (CMT) is primarily a clinical diagnosis. Family history is important, but if the neuropathy is slowly progressive, painless, predominantly motor, and the patient has bilateral foot drop, muscle atrophy,
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@MUSChealth
MUSC Health
3 months
The first Charcot-Marie-Tooth (CMT) Center of Excellence in SC is here—led by MUSC’s Dr. Sarah Breevoort. This national recognition means faster diagnoses & specialized care for patients with this often-misunderstood disease. Learn more: https://t.co/BidSRTd48s
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@NMDPharma
NMD Pharma
2 months
We're taking our passion for movement to the streets of #NYC to run the TCS New York City Marathon in support of the Charcot-Marie-Tooth disease (#CMT) community! NMD Pharma is proud to partner with the @CMTNeuropathy to raise awareness and funding for critical research on CMT, a
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@BrainandLifeMag
Brain & Life
4 months
Charcot-Marie-Tooth disease threw a wrench in Jamal Hill's #swimming career. But with time, he began his Paralympian journey: https://t.co/jB7M2G59jX #Paralympics
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@ASNRographics
Neurographics
2 months
From the July-September 2025 Issue of #Neurographics: Recurrent Stroke-Like Episodes in X-Linked Charcot-Marie-Tooth Type 1 Disease: Characteristic Brain MRI Findings https://t.co/SoWw9GQnN5
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@CMTNeuropathy
HereditaryNeuropathy
2 months
Thank you @NMDPharma for running the @nycmarathon for us at #HNF! We are thrilled and honored! Support the #NMDpharma team here https://t.co/wFdqAJLRMz #hnf4cmt #nycmarathon #cmtresearch #charcotmarietooth #cmtneuropathy
@NMDPharma
NMD Pharma
2 months
We're taking our passion for movement to the streets of #NYC to run the TCS New York City Marathon in support of the Charcot-Marie-Tooth disease (#CMT) community! NMD Pharma is proud to partner with the @CMTNeuropathy to raise awareness and funding for critical research on CMT, a
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@CMTNeuropathy
HereditaryNeuropathy
2 months
Join us Saturday, October 4, 2025 @12pm! The Hereditary Neuropathy Foundation and Dr. Ryan Castoro Present “The Nerve to Cure: CMT Social + Science Day with Evening Fundraiser Dinner”Register: https://t.co/CgYw5NzcYx #cmtwegotthis #thenervetocure
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