HereditaryNeuropathy
@CMTNeuropathy
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(HNF) A non-profit dedicated to translating discoveries to find treatments & cures for #CharcotMarieTooth (CMT) disease & related inherited neuropathies.
New York, NY
Joined April 2009
Last Sunday, our scientists Martin Brandhøj Skov, Nete Huus, and Thomas Skjærlund Grønnebæk completed the TCS NYC Marathon, running to raise vital funds and awareness for the Charcot-Marie Tooth (#CMT) community. After months of preparation, Thomas, Martin and Nete took to the
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Even after hundreds of miles (and even more kilometers!) of training, our #muscle scientist runners, Martin, Nete, and Thomas, are still passionate about movement. This week, they will be New York City-bound to run in the TCS New York City Marathon to support the
We're taking our passion for movement to the streets of #NYC to run the TCS New York City Marathon in support of the Charcot-Marie-Tooth disease (#CMT) community! NMD Pharma is proud to partner with the @CMTNeuropathy to raise awareness and funding for critical research on CMT, a
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The NMD Pharma team, including our CEO, Thomas Holm Pedersen, SVP, Dan Brennan, Corporate and Commercial VP, Business Development, Aldemar Degroot, will be in London from 17-20 November for the annual @Jefferies London Healthcare Conference. Our team looks forward to sharing
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HNF's TRIAD partner #NMDpharma SYNAPSE-CMT Clinical Trial Update! We are thrilled to share an important milestone for the #CharcotMarieTooth (CMT) community. @NMDPharma
https://t.co/e8dbMgB9uk
#cmtwegotthis
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The TCS New York City Marathon is just under a month away! Our scientists, Martin Brandhøj Skov, Nete Huus, and Thomas Skjærlund Grønnebæk are deep in training for the official race, but they're not the only ones tallying up miles before the big day! Members of the NMD Pharma
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We are thrilled to be included in the @Forbes first-ever #ForbesAccessibility100 list that honors BraunAbility as one of the biggest innovators and impact-makers in Accessibility. #ForbesAccessibility100 #BraunAbility
https://t.co/FBKmyhg17Y
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💊 September '25 | CMT Monthly Dose: CMT News & Resources https://t.co/bvzUBK7TdR
#cmtwegotthis #cmtawareness #nervetocure #charcotmarietooth #cmtneuropathy
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I'm taking a moment to share something personal as September marks CMT Awareness Month. I've lived with Charcot-Marie-Tooth Disease my whole life, and while it presents its challenges, I've learned to adapt and thrive. As this disease progresses, I'm committed to raising
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We all eagerly look forward to it! Team @CastoroLab
Join us Saturday, October 4, 2025 @12pm! The Hereditary Neuropathy Foundation and Dr. Ryan Castoro Present “The Nerve to Cure: CMT Social + Science Day with Evening Fundraiser Dinner”Register: https://t.co/CgYw5NzcYx
#cmtwegotthis #thenervetocure
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I wanted to take a moment and thank @CMTNeuropathy for an amazing effort, bringing all the people together. This event is very special and unique in a way that is very comprehensive. It's a reminder that "CMT wouldn't stop and neither should we" @CastoroLab
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A big thank you to Dr. Castoro, @CMTNeuropathy and @MDAorg for hosting such an insightful and empowering session on managing various types of pain in the CMT patient community. Kudos to improving patient awareness and quality of life. https://t.co/GsT0Jk0bfc
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Join us tomorrow with the #MDA for a virtual learning session on #Charcotmarietoothdisease! We are looking forward to sharing insight on CMT. #cmtwegotthis #cmtawareness #cmtneuropathy 🔗 https://t.co/oRgVc6dlU8
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I often remind our @MayoClinicNeuro trainees that Charcot-Marie-Tooth disease (CMT) is primarily a clinical diagnosis. Family history is important, but if the neuropathy is slowly progressive, painless, predominantly motor, and the patient has bilateral foot drop, muscle atrophy,
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The first Charcot-Marie-Tooth (CMT) Center of Excellence in SC is here—led by MUSC’s Dr. Sarah Breevoort. This national recognition means faster diagnoses & specialized care for patients with this often-misunderstood disease. Learn more: https://t.co/BidSRTd48s
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We're taking our passion for movement to the streets of #NYC to run the TCS New York City Marathon in support of the Charcot-Marie-Tooth disease (#CMT) community! NMD Pharma is proud to partner with the @CMTNeuropathy to raise awareness and funding for critical research on CMT, a
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Charcot-Marie-Tooth disease threw a wrench in Jamal Hill's #swimming career. But with time, he began his Paralympian journey: https://t.co/jB7M2G59jX
#Paralympics
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From the July-September 2025 Issue of #Neurographics: Recurrent Stroke-Like Episodes in X-Linked Charcot-Marie-Tooth Type 1 Disease: Characteristic Brain MRI Findings https://t.co/SoWw9GQnN5
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Thank you @NMDPharma for running the @nycmarathon for us at #HNF! We are thrilled and honored! Support the #NMDpharma team here https://t.co/wFdqAJLRMz
#hnf4cmt #nycmarathon #cmtresearch #charcotmarietooth #cmtneuropathy
We're taking our passion for movement to the streets of #NYC to run the TCS New York City Marathon in support of the Charcot-Marie-Tooth disease (#CMT) community! NMD Pharma is proud to partner with the @CMTNeuropathy to raise awareness and funding for critical research on CMT, a
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Join us Saturday, October 4, 2025 @12pm! The Hereditary Neuropathy Foundation and Dr. Ryan Castoro Present “The Nerve to Cure: CMT Social + Science Day with Evening Fundraiser Dinner”Register: https://t.co/CgYw5NzcYx
#cmtwegotthis #thenervetocure
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