CAPSIE
@CAPSIE_CAPS
Followers
139
Following
146
Media
104
Statuses
270
Capsie is the mascot for the Childhood Arthritis Prospective Study (CAPS) and follows the CAPS researchers on their travels to conferences around the world.
University of Manchester
Joined October 2014
πͺπΊ #EULAR has called for a comprehensive EU led #RMDs strategy to tackle workplace exclusion on #WorldArthritisDay π° Read the #EULARpressrelease π https://t.co/9P1I70UU4W πΊ Watch #EULAR2020Forum broadcast on-demand βΆοΈ https://t.co/5ZtNxCDCp1
#FightingRMDsTogether #covid19
0
11
20
It's #InternationalYouthDay today: time to celebrate young peopleβs voices and actions! π« We've loved working so closely with our Youth Advisory Board this year & appreciate all they do to advocate for @UNICEF_uk & #childrights #PowerofYouth π’ππ
2
12
28
The voices of young people are at the heart of everything we do. We ensure through our work that their views are listened to and that they are empowered to help bring about change on issues that affect them. Happy #InternationalYouthDay #empoweringyoungpeoplechangingcommunities
0
9
11
Do you experience chronic pain and are you aged 11-19 ? If yes and you live in the UK please take part in our NHS ethically approved research. Follow the link πor email pamstudy@bath.ac.uk https://t.co/3sldz8RlvR
@BritishPainSoc @BNightsCRPS @APainPrincess #pain #ChronicPain
2
19
23
The countdown is over and NRAS is so pleased to announce our brand new JIA-at-NRAS website has been launched today! Please take a look, we hope you like it! https://t.co/Kw7DQFcOmZ
0
6
10
To celebrate our newly launched JIA-at-NRAS website, we have a competition to take part in β A Purple Bonnie Hunt! There is one unique purple Bonnie who is hiding on a page on the website. Find her and you could be in for a chance to win an Amazon voucher! https://t.co/qvNPdjZ6iM
0
2
4
For families of children & young people with #Uveitis or #JIA or other rheumatological disease: new #COVID19 FAQ resource available - thank you for helping to create and for hosting @CCAA_org @OliviasVision @JARProject @SNAC_JIA! https://t.co/eoU0fbKU2D
1
4
16
#EULAR2020 might be over but you can still see our @CLUSTER_Tweet poster (and hear my 2 min narration!) on MTX 'response' clusters in #JIA online! #machinelearning
https://t.co/cVLh57wDjG
0
5
4
On the 30th of November, 13 year old Alfie is taking the plunge alongside 3 aquatic amigos to raise money for JIA at NRAS, in support of his younger brother Austin (age 9) who has JIA. We wish them all the best with their 400 lengths target! #swimming #fundraising
0
1
4
Results: Finding a novel association to a SNP in the intron of CCDC101 - a gene involved in transcription regulation through histone acetyltransferase. Also some interesting research plans in this area!! #BSPAR19 #research @BCRD_Study @CAPSIE_CAPS @SparksCharity ^LKF
0
3
5
#WearPurpleforJIA is such a fantastic excuse to raise funds and awareness of JIA. Here is a photo of Erin who was diagnosed with the condition when she was 3. Back in 2018 Erin took on a run in Leeds with her Mum, to raise awareness of the condition! #ThrowbackThursday
0
1
0
@eular_org is very excited to celebrate World Arthritis Day on 12 October 2019! Check out one of the teasers here and donβt forget to mark your calendar on 12 October for the launch of the full videos. #connecttoday #time2work
1
24
27
Thank you to everyone who attended the CLUSTER Patient, Parent and Public Network talk. #BSPAR2019
@VersusArthritis @CCAA_org @JARProject @iCANIreland @RheumatologyUK For more information on the network, visit https://t.co/c56hWqvM2a or contact clusterconsortium@ucl.ac.uk
0
4
8
The use of the two mummies emoji here makes me incredibly happy!! It means more to me than you could ever know! #RepresentationMatters π©βπ©βπ¦
2
3
9
Well done @EmilyEarle5 for a fantastic talk on βI wish I had JIA! What is it like to be a sibling of a child with a chronic conditionβ π #BSPAR19
3
1
15
Dr Katie Harrison reminds us to inspire young people to engage more in sports, as participation for those with JIA and other rheum conditions is below average for YP. They can fall in a gap, neither qualifying for parasport nor keeping up in mainstream sport #BSPAR19 ^PW
1
5
11
Come to poster 22 to chat about the impact of JIA on Health-Related Quality of Life over time. Data from CAPS #BSPAR19 @VersusArthritis @UoMMskResearch
0
4
13