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CAPSIE Profile
CAPSIE

@CAPSIE_CAPS

Followers
139
Following
146
Media
104
Statuses
270

Capsie is the mascot for the Childhood Arthritis Prospective Study (CAPS) and follows the CAPS researchers on their travels to conferences around the world.

University of Manchester
Joined October 2014
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@eular_org
EULAR
5 years
πŸ‡ͺπŸ‡Ί #EULAR has called for a comprehensive EU led #RMDs strategy to tackle workplace exclusion on #WorldArthritisDay πŸ“° Read the #EULARpressrelease πŸ‘‰ https://t.co/9P1I70UU4W πŸ“Ί Watch #EULAR2020Forum broadcast on-demand ▢️ https://t.co/5ZtNxCDCp1 #FightingRMDsTogether #covid19
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@UNICEFuk_action
UNICEF UK Campaigns
5 years
It's #InternationalYouthDay today: time to celebrate young people’s voices and actions! πŸ’« We've loved working so closely with our Youth Advisory Board this year & appreciate all they do to advocate for @UNICEF_uk & #childrights #PowerofYouth πŸ“’πŸ’™πŸ™Œ
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@SouthwarkYAs
SouthwarkYA's πŸ’™
5 years
The voices of young people are at the heart of everything we do. We ensure through our work that their views are listened to and that they are empowered to help bring about change on issues that affect them. Happy #InternationalYouthDay #empoweringyoungpeoplechangingcommunities
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@BatemanSharon
Dr Sharon BatemanπŸ’™
5 years
Do you experience chronic pain and are you aged 11-19 ? If yes and you live in the UK please take part in our NHS ethically approved research. Follow the link πŸ‘‡or email pamstudy@bath.ac.uk https://t.co/3sldz8RlvR @BritishPainSoc @BNightsCRPS @APainPrincess #pain #ChronicPain
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@JIA_NRAS
JIA-at-NRAS
5 years
The countdown is over and NRAS is so pleased to announce our brand new JIA-at-NRAS website has been launched today! Please take a look, we hope you like it! https://t.co/Kw7DQFcOmZ
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@JIA_NRAS
JIA-at-NRAS
5 years
To celebrate our newly launched JIA-at-NRAS website, we have a competition to take part in – A Purple Bonnie Hunt! There is one unique purple Bonnie who is hiding on a page on the website. Find her and you could be in for a chance to win an Amazon voucher! https://t.co/qvNPdjZ6iM
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@lolaeyedoc
Dr Lola Solebo πŸ’™πŸ‘ΆπŸΎπŸ‘οΈπŸ‘©πŸΎβ€πŸ’»
6 years
For families of children & young people with #Uveitis or #JIA or other rheumatological disease: new #COVID19 FAQ resource available - thank you for helping to create and for hosting @CCAA_org @OliviasVision @JARProject @SNAC_JIA! https://t.co/eoU0fbKU2D
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@sshoopworrall
Dr Stevie Shoop-Worrall
6 years
#EULAR2020 might be over but you can still see our @CLUSTER_Tweet poster (and hear my 2 min narration!) on MTX 'response' clusters in #JIA online! #machinelearning https://t.co/cVLh57wDjG
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@JIA_NRAS
JIA-at-NRAS
6 years
On the 30th of November, 13 year old Alfie is taking the plunge alongside 3 aquatic amigos to raise money for JIA at NRAS, in support of his younger brother Austin (age 9) who has JIA. We wish them all the best with their 400 lengths target! #swimming #fundraising
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@RheumatologyUK
BSR
6 years
Results: Finding a novel association to a SNP in the intron of CCDC101 - a gene involved in transcription regulation through histone acetyltransferase. Also some interesting research plans in this area!! #BSPAR19 #research @BCRD_Study @CAPSIE_CAPS @SparksCharity ^LKF
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@JIA_NRAS
JIA-at-NRAS
6 years
#WearPurpleforJIA is such a fantastic excuse to raise funds and awareness of JIA. Here is a photo of Erin who was diagnosed with the condition when she was 3. Back in 2018 Erin took on a run in Leeds with her Mum, to raise awareness of the condition! #ThrowbackThursday
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@eular_org
EULAR
6 years
@eular_org is very excited to celebrate World Arthritis Day on 12 October 2019! Check out one of the teasers here and don’t forget to mark your calendar on 12 October for the launch of the full videos. #connecttoday #time2work
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@CLUSTER_Tweet
ClusterConsortium
6 years
Thank you to everyone who attended the CLUSTER Patient, Parent and Public Network talk. #BSPAR2019 @VersusArthritis @CCAA_org @JARProject @iCANIreland @RheumatologyUK For more information on the network, visit https://t.co/c56hWqvM2a or contact clusterconsortium@ucl.ac.uk
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@KearsleyFleet
Lianne Kearsley-Fleet
6 years
The use of the two mummies emoji here makes me incredibly happy!! It means more to me than you could ever know! #RepresentationMatters πŸ‘©β€πŸ‘©β€πŸ‘¦
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@CCAA_org
CCAA - Kids With Arthritis (JIA)
6 years
Well done @EmilyEarle5 for a fantastic talk on β€œI wish I had JIA! What is it like to be a sibling of a child with a chronic condition” πŸ‘ #BSPAR19
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@RheumatologyUK
BSR
6 years
Dr Katie Harrison reminds us to inspire young people to engage more in sports, as participation for those with JIA and other rheum conditions is below average for YP. They can fall in a gap, neither qualifying for parasport nor keeping up in mainstream sport #BSPAR19 ^PW
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@CAPSIE_CAPS
CAPSIE
6 years
Come to poster 22 to chat about the impact of JIA on Health-Related Quality of Life over time. Data from CAPS #BSPAR19 @VersusArthritis @UoMMskResearch
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