Boisterous Ben
@BenBoisterous
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Ben is 12, he suffers from severe intractable epilepsy. In 2019 Ben was given a UK private prescription for medicinal cannabis. I am campaigning for NHS access.
Joined June 2019
Where is the research money? The Dutch government have just put in 1.4 million into trials for paediatric treatment resistant epilepsy and the use of Bedrocan #cannabis oils. Why is @10DowningStreet not doing the same for the #children in the #uk.
@Hanseizuremum @BorisJohnson @MattHancock "It has moved more slowly than I'd hoped for a year ago." @MattHancock responds to calls for more families to have access to #medicalcannabis. More here https://t.co/ZvoEOjJCrq
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Great news from the BNF! Lara raised this important safety issue and we’re pleased to say End Our Pain has now received two responses: one from the MHRA in September 2025, and one from the BNF just this week. We’ll share more on this tomorrow. #MedicalCannabis #EndOurPain
After raising a concern with the British National Formulary (BNF) about cannabinoid drug interactions, the BNF Editorial Team have confirmed they’ve identified content improvements to make clearer that THC (Δ9-THC) and dronabinol are the same substance. At present, interaction
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Liverpool MP @IanByrneMP says he's having sleepless nights over potentially having to vote against the Hillsborough Law. The stakes are very high if campaigners and Govt can't find a common ground, on how the legal duty of candour should apply to members of the secret service:
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With April’s 25% NICE threshold increase for high cost drugs, time to reassess cannabis medications. 7 years, families denied @NHSuk access despite legalisation. Real-world evidence exists. @wesstreeting @NICEComms - will you commit to review? @ToniaAntoniazzi @PaulFosterMP
@BBCBreakfast @BorisJohnson @MattHancock With @NICEComms 25% threshold increase for high cost drugs taking effect in April, we’re calling for urgent reassessment of cannabis-based medications. Since your 2019 guidance, substantial real-world evidence has emerged showing clinical effectiveness & cost savings vs failed
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Compliance, Care & Capability: How Lyphe Leads the Way https://t.co/qnSMetX23y via @YouTube
#CannabISmedicine #MedCanAwareness #PatientAccess #lypheclinic
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Disabled medical cannabis patients are being excluded from NHS hospitals because no other medicine worked! @wesstreeting what are you doing about this? My son nearly died when he ran out of his prescribed bedica and if we are not there to administer the medication the NHS won’t
SEVEN YEARS after medical cannabis was legalised, NHS hospitals are STILL excluding patients. Kat Turner was turned away from a specialist NHS hospital in Bristol because of her LEGAL cannabis prescription for seizures. "They implied that my medication could be illegal and that
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We witnessed what happened when our son ran out of his Bedica; he nearly died from back-to-back seizures, with his oxygen levels at 72% despite full oxygen delivery and a heart rate of 218 bpm. I thought the NHS was there to heal people, not to cause their deaths!
SEVEN YEARS after medical cannabis was legalised, NHS hospitals are STILL excluding patients. Kat Turner was turned away from a specialist NHS hospital in Bristol because of her LEGAL cannabis prescription for seizures. "They implied that my medication could be illegal and that
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No two patients are equal, so no two cannabis treatments will work the same. While many in the industry accept that a Dr knows best approach doesn’t always work, some advocate for stronger guidelines. Sam Ashton argues the case for the Hybrid Patient https://t.co/oye8kS5O0l
leafie.co.uk
No two patients are equal, so no two cannabis treatments will work the same. While many in the industry accept that a ‘Doctor knows best approach’ doesn’t always work with cannabis, some profession...
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Patient health put at risk.
Medical cannabis patients are being forced to choose between their effective medication and hospital care. Berta has nine diagnoses and over 50 symptoms. She was bedbound until medical cannabis saved her life. But when her health declines and she needs hospital care, that
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Valid Prescriptions. Denied in Hospital. When a patient lacks capacity, their prescribed medication shouldn’t stop at the hospital door. The Reality Children and adults with valid cannabis prescriptions face dangerous gaps in care when admitted to NHS hospitals: 💔 Parents
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Plant-based medicine is science-backed, tested for purity, and prescribed with care — not guesswork. 🌿 Evidence ensures safety, education builds trust, and research replaces stigma with understanding. #cannabISmedicine #MedCanAwareness #PatientAccess
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Joanne has jumped through every bureaucratic hoop only to find it leading to yet another block in her journey to obtain her child’s medical cannabis access. @BenBoisterous has been using cannabis oils to treat his cerebral palsy clonus, and severe epilepsy since 2016, after
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States in Debs TV interview on YouTube 12 years ago that trials were being conducted in the U.K. to obtain the evidence so why are we still waiting for access 12 years later @wesstreeting ??? @IanByrneMP @ronniecowan
Nearly twelve years ago, Deb participated in an interview where a resident doctor mentioned ongoing cannabis trials in the U.K. Despite this, the government, @DHSCgovuk and medical professionals continue to claim they lack sufficient evidence. So, why is that evidence still
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Proud to share “Breaking the Grass Ceiling” on making UK medical cannabis credible, compassionate & inclusive. Thank you Anastacia Peters, @HeidiWhitman & @EllenJardim. 🔗 https://t.co/Q7Ot0CtG34
#cannabISmedicine #MedCanAwareness #PatientAccess #WomenInCannabis
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Prescribed since 2014 but still denied funded access!
Lara, an ex-paediatric nurse, has been privately prescribed cannabis flower since 2014 to manage her severe pain. For four years, she traveled to Holland to obtain her prescription for medical cannabis flower, which was prescribed as dronabinol. With the law change, Lara hoped to
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From learning how to join a clinic to strain reviews that read like wine tasting notes, patients are creating support networks to help others. Looking to find your tribe? Check out our guide to the world of online patient communities. https://t.co/l8h6i6N80x
leafie.co.uk
In a world where discussing medical cannabis can still raise eyebrows, patients are finding their voices online. From learning how to join a clinic to strain reviews that read like wine tasting...
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Ineffective treatment costing the tax payer when the cost could be reduced by using an effective cannabis oil. @ronniecowan @ToniaAntoniazzi
In a powerful video, Thomas shares his heart-wrenching plea to the government for access to cannabis-based medicines for his son, Elliot, seven years after the law changed to allow specialist doctors to prescribe. After obtaining a private appointment, Thomas was devastated to
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2018: Promises made. 2025: Promises broken. Families were assured free NHS access to medicinal cannabis, but seven years later, they still wait. With fewer than five prescriptions being issued by the NHS, the gap between promise and reality widens. @sajidjavid, then Home
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Ben needs the funding he was promised over seven years ago. What is happening in the U.K. is wrong and it’s risking children’s lives. I hope @LucyMPowell can help us now. 🙏🏻
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You can sign this letter today and help 1000s of families and you can also ask your MP to support us by sending a prewritten letter. It takes seconds but means a lot to families like ours. https://t.co/Y3eedeScJH
endourpain.org
Email Your MP Enter your postcode and a suggested draft email will come up to send to your MP. The only reason that you’re asked to enter your address is so that the MP can verify that you are in...
A Call to End Our Pain: The Delays in Cannabis-Based Medicine Trials for Paediatric Drug Resistant Epilepsy Yesterday, I attended a BPNA meeting regarding the long-awaited trials of cannabis-based medicine for paediatric drug resistant epilepsy. The news is disheartening: these
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Please help Ben and others in his position.
Please share this update and consider signing our open letter asking for an inquiry. Ben’s mum wrote….In May 2023, Ben faced a life-threatening situation when his prescription was lost in the post. In response, the Advisory Council on the Misuse of Drugs (ACMD) recommended in
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