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Anne Alarilla Profile
Anne Alarilla

@AlarillaAnne

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488

Analyst @HealthFDN | PhD candidate @UCLchildhealth/@GOSHDRIVE | health, data and psychology on the side 👀 | 🇵🇭 | Views are my own | she/her

Joined March 2019
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@RCEMpresident
Ian Higginson
8 months
The 12 hour stays are ummm 😢 We need the same focus and operational grip on 12 hour stays as we do for 4 hours. Last year 4 hour performace improved, while 12 hour worsened. The greatest harm occurs in the 12 hour stays
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@RCEMpresident
Ian Higginson
8 months
Home | The Health Foundation. This is an excellent and timely report. A few thoughts…..
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health.org.uk
The Health Foundation is an independent charitable organisation working to build a healthier UK.
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@CharlesTTHF
Charles Tallack
11 months
Last week ONS published analysis showing that an A&E wait of 12-13 hours is associated with a more-than-doubling of the chance of death within 30 days, compared to a wait of 2-3 hours. But how many deaths is that? 🧵 1/12 https://t.co/W5su2rsc1T
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@appliedepi
Applied Epi
11 months
🎉 R scholarship applications open on January 20! If your team (government or nonprofit) works in applied epidemiology in a low- or middle-income country, you could get access to our Intro to R course and Support Desk! Details: https://t.co/ZimrOwWABy #Rstats #epitwitter
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@AlarillaAnne
Anne Alarilla
11 months
🌠With many thanks to my co-authors @DaviesGwyneth @dr_jowray @cortina_borja @joshkeith and Prof Neil Sebire (6/6)
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@AlarillaAnne
Anne Alarilla
11 months
👈Further research should explore the technical considerations needed to maximisie the potential value and support the scalability of PROMs data in routine care (5/6)
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@AlarillaAnne
Anne Alarilla
11 months
🧩This is likely to have a downstream consequence on the potential value of PROMs data at the patient, immediate cllinical level and for population level analytics (4/6)
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@AlarillaAnne
Anne Alarilla
11 months
🏘️Leading to different configurations and fragmented approaches to implementation that may influence how the data are accessed, used and shared (3/6)
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@AlarillaAnne
Anne Alarilla
11 months
📈Electronic systems for collection, storage and access of PROMs in the routine care of children and young people in the hospital setting is popular and there are a variety of platforms available (2/6)
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@AlarillaAnne
Anne Alarilla
11 months
🛜 What are the electronic systems used to collect and capture patient reported outcome measures (PROMs) from children and young people in hospitals and how are they configured? Our scoping review explores this https://t.co/RSy1lpTA95 @ich_ppp @GOSHDRIVE @HealthFdn 🧵👇 (1/6)
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journals.plos.org
Author summary Patient reported outcome measures (PROMs) are questions that ask about a patient’s views on their health and health status, the use of PROMs as part of standard care can improve the...
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@AlarillaAnne
Anne Alarilla
1 year
With many thanks to the rest of the authors 🤩 @DaviesGwyneth @dr_jowray @eliza_kath Also first PhD publication for me🎉 (7/7)
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@AlarillaAnne
Anne Alarilla
1 year
💫PROMs and PREMs have the potential to improve care of children and young people but more work is needed to enable meaningful use (5/7)
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@AlarillaAnne
Anne Alarilla
1 year
🔨 For service developement results help w/ improvement and planning 🧱There is currently a bottom up approach, starting with single centres and clinics ⛓️Specific challenge such as privacy concerns and weight proxy and self reports needs to be considered (4/7)
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@AlarillaAnne
Anne Alarilla
1 year
📈Results are used for a variety of purposes including screening/monitoring and assessing treatment/care outcomes 🪧For direct clinical practice they help guide conversations and involve patients but access to information is important! (3/7)
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@AlarillaAnne
Anne Alarilla
1 year
🙋🏻‍♀️We found 172 studies that mentioned the use of patient reported outcome measures (PROMs) or patient reported experience measures (PREMs) in routine hospital care. 💻Electronic methods are popular (2/7)
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@AlarillaAnne
Anne Alarilla
1 year
👀Do we ask children and young people (and their parents/carers) within the hospital setting what they think about their health or their care? And how do we use this information? ➡️Our paper in @BioMedCentral ( https://t.co/hDcSfuJx7L) explores this 🧵⬇️ (1/7)
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link.springer.com
Systematic Reviews - Patient-reported outcome measures (PROMs) measure people’s views of their health status whereas patient-reported experience measures (PREMs) are questionnaires measuring...
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@DaviesGwyneth
Gwyneth Davies
1 year
PhD studentship opportunity at @UCLchildhealth supervised by @Ofran_a, @cortina_borja and me, on #cysticfibrosis, #healthinequalities and #treatmenteffects. Deadline 13 Dec 9am.
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@EllenCoughlan
Ellen Coughlan
1 year
Clinicians suffer every day from slow broken computers, EHR downtime & poor access to vital information. The Clinician Digital Maturity Assessment (cDMA) was designed by clinicians to measure experiences & pain points of EHR. Complete it here:
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