Anne Alarilla
@AlarillaAnne
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Analyst @HealthFDN | PhD candidate @UCLchildhealth/@GOSHDRIVE | health, data and psychology on the side 👀 | 🇵🇭 | Views are my own | she/her
Joined March 2019
The 12 hour stays are ummm 😢 We need the same focus and operational grip on 12 hour stays as we do for 4 hours. Last year 4 hour performace improved, while 12 hour worsened. The greatest harm occurs in the 12 hour stays
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Home | The Health Foundation. This is an excellent and timely report. A few thoughts…..
health.org.uk
The Health Foundation is an independent charitable organisation working to build a healthier UK.
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Urgent care worse than pre-pandemic, think tank says
bbc.com
The Health Foundation argues that the NHS was "in distress" this winter with A&E waiting times reaching a record high.
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Last week ONS published analysis showing that an A&E wait of 12-13 hours is associated with a more-than-doubling of the chance of death within 30 days, compared to a wait of 2-3 hours. But how many deaths is that? 🧵 1/12 https://t.co/W5su2rsc1T
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🎉 R scholarship applications open on January 20! If your team (government or nonprofit) works in applied epidemiology in a low- or middle-income country, you could get access to our Intro to R course and Support Desk! Details: https://t.co/ZimrOwWABy
#Rstats #epitwitter
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🌠With many thanks to my co-authors @DaviesGwyneth @dr_jowray @cortina_borja @joshkeith and Prof Neil Sebire (6/6)
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👈Further research should explore the technical considerations needed to maximisie the potential value and support the scalability of PROMs data in routine care (5/6)
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🧩This is likely to have a downstream consequence on the potential value of PROMs data at the patient, immediate cllinical level and for population level analytics (4/6)
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🏘️Leading to different configurations and fragmented approaches to implementation that may influence how the data are accessed, used and shared (3/6)
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📈Electronic systems for collection, storage and access of PROMs in the routine care of children and young people in the hospital setting is popular and there are a variety of platforms available (2/6)
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🛜 What are the electronic systems used to collect and capture patient reported outcome measures (PROMs) from children and young people in hospitals and how are they configured? Our scoping review explores this https://t.co/RSy1lpTA95
@ich_ppp @GOSHDRIVE @HealthFdn 🧵👇 (1/6)
journals.plos.org
Author summary Patient reported outcome measures (PROMs) are questions that ask about a patient’s views on their health and health status, the use of PROMs as part of standard care can improve the...
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With many thanks to the rest of the authors 🤩 @DaviesGwyneth @dr_jowray @eliza_kath Also first PhD publication for me🎉 (7/7)
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🪛Our R code is available here: https://t.co/XUbo0cCwe6 And our Mural is available here: https://t.co/rOGHijf2Dl (6/7)
github.com
Contribute to HFAnalyticsLab/PROMs_PREMs_in_CYPs_Scoping_Review development by creating an account on GitHub.
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💫PROMs and PREMs have the potential to improve care of children and young people but more work is needed to enable meaningful use (5/7)
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🔨 For service developement results help w/ improvement and planning 🧱There is currently a bottom up approach, starting with single centres and clinics ⛓️Specific challenge such as privacy concerns and weight proxy and self reports needs to be considered (4/7)
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📈Results are used for a variety of purposes including screening/monitoring and assessing treatment/care outcomes 🪧For direct clinical practice they help guide conversations and involve patients but access to information is important! (3/7)
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🙋🏻♀️We found 172 studies that mentioned the use of patient reported outcome measures (PROMs) or patient reported experience measures (PREMs) in routine hospital care. 💻Electronic methods are popular (2/7)
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👀Do we ask children and young people (and their parents/carers) within the hospital setting what they think about their health or their care? And how do we use this information? ➡️Our paper in @BioMedCentral ( https://t.co/hDcSfuJx7L) explores this 🧵⬇️ (1/7)
link.springer.com
Systematic Reviews - Patient-reported outcome measures (PROMs) measure people’s views of their health status whereas patient-reported experience measures (PREMs) are questionnaires measuring...
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PhD studentship opportunity at @UCLchildhealth supervised by @Ofran_a, @cortina_borja and me, on #cysticfibrosis, #healthinequalities and #treatmenteffects. Deadline 13 Dec 9am.
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Clinicians suffer every day from slow broken computers, EHR downtime & poor access to vital information. The Clinician Digital Maturity Assessment (cDMA) was designed by clinicians to measure experiences & pain points of EHR. Complete it here:
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