Gwyneth Davies
@DaviesGwyneth
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UKRI FLF (UCL), paediatrician (GOSH), mum. Research: Cystic Fibrosis, treatment burden, co-design, health informatics, pragmatic clinical trials. Views my own
United Kingdom
Joined November 2013
🛜 What are the electronic systems used to collect and capture patient reported outcome measures (PROMs) from children and young people in hospitals and how are they configured? Our scoping review explores this https://t.co/RSy1lpTA95
@ich_ppp @GOSHDRIVE @HealthFdn 🧵👇 (1/6)
journals.plos.org
Author summary Patient reported outcome measures (PROMs) are questions that ask about a patient’s views on their health and health status, the use of PROMs as part of standard care can improve the...
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🚨 New in The Lancet Respiratory Medicine Phase 3 data on vanzacaftor–tezacaftor–deutivacaftor in #cysticfibrosis Read open access here: Patients aged 6–11 years https://t.co/d7R7w1hsgo Patients aged 12 years and older https://t.co/Xl4qJtcS2C
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We currently have spaces on the RGRC for CF community representatives. Head to our website to read more about what's involved, why the community voice is so important, and how you could join the committee. (2/2) https://t.co/SjiiztQaya
cysticfibrosis.org.uk
At Cystic Fibrosis Trust, we fund lots of amazing research – but how do we decide which projects to fund? That’s where our Research Grants Review Committee comes in, also known as the RGRC for short....
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At the Trust, we fund lots of amazing research – but how do we decide which projects to fund? 🤔 That’s where our Research Grants Review Committee comes in, a group of CF clinicians, researchers and people from the CF community who review applications for funding. 🔬 (1/2)
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👀Do we ask children and young people (and their parents/carers) within the hospital setting what they think about their health or their care? And how do we use this information? ➡️Our paper in @BioMedCentral ( https://t.co/hDcSfuJx7L) explores this 🧵⬇️ (1/7)
link.springer.com
Systematic Reviews - Patient-reported outcome measures (PROMs) measure people’s views of their health status whereas patient-reported experience measures (PREMs) are questionnaires measuring...
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PhD studentship opportunity at @UCLchildhealth supervised by @Ofran_a, @cortina_borja and me, on #cysticfibrosis, #healthinequalities and #treatmenteffects. Deadline 13 Dec 9am.
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🚀 The #SudlowReview sets out five recommendations to transform the national health data ecosystem. This provides a pathway for overcoming the barriers that delay the safe and secure use of health data to improve lives. Explore them in more detail 👇 🧵 (1/7)
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Latest paper from @FizzyoCF in press: @gizemtanriver, @SanjaLovesData, @Niksfil, @hldouglas, Me, Kunal Kapoor, @DaviesGwyneth, Nicky Murray, @RachelPhysio, @nowDrRob, @MainEleanor
"Using heart rate data from wrist worn activity trackers to define thresholds for moderate to vigorous physical activity in children and young people with cystic fibrosis" The latest Fizzyo publication in press @JournalofCF:
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A healthy childhood is the bedrock of a thriving nation. The @ncbtweets' roadmap for the healthiest generation of children ever, launched today, reflects the evidence from our own child health research. (1/3) #ThriveByFive
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We are pleased to share the 2023 Registry Report, as well as the latest findings from our patient experience survey in adult CF care. Click the link to read our article, where you can also read these new findings in full. ➡️ https://t.co/xx3qpkJdSS
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The North American CF Conference or ‘NACFC’ – is the largest research conference dedicated to cystic fibrosis in the world. Read the blog on our website for highlights on what was discussed. ➡️ https://t.co/pYvFtuhGS3
#ResearchWednesdays #cysticfibrosis #NACFC
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Child Health Research #PhD #Studentship now available @UCLchildhealth Deadline 13th December. See https://t.co/xVTMKyxISl for more details
ucl.ac.uk
Apply for a fully funded PhD at UCL’s Great Ormond Street Institute of Child Health and take part in pioneering research that transforms child health worldwide.
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Research in the NHS is not a luxury. To unlock its benefits for patients, the NHS and the economy, we also call for: ✅ Protected time for research leaders in the NHS ✅ A reversal in the decline of clinical academics ✅ The use of patient data as a resource good for all
Clinical research is good for patients, the NHS and the economy. But in a health service under pressure, it’s often seen as important but not urgent. Our new briefing outlines why embedding research is fundamental to transforming the NHS. ⬇️ https://t.co/eP9XTsxyl7
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Are you an early career researcher finding it challenging to navigate career in academia? Read our paper with Ian Viney and tell us if our findings resonate with you👇🏾 https://t.co/WF9KmHdua7
@The_MRC @UKRI_News
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1/2 Last year @louisetingbris, a public contributor with lived experience, created this brilliant diagram outlining how patient and public involvement (#PPI) can be integrated into every step of the research life cycle ⬇️
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Starting our editor's pick for this week is @Klharron's methods primer on data linkage in medical research. You can ready the full methods primer here: https://t.co/9xHyMmtXI7
#bmjmeditorspick
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Many are unaware of the respiratory illness #RSV, but it causes 20,000 hospitalisations each year in babies under 1, just in England. A new vaccination programme has launched for pregnant women and older adults aged 75 to 79. Prof Dame Jenny Harries said on the programme 🔽
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1/3 households in UK living in cold, damp dwellings, affecting children's lungs, mental health & schooling; damaging health of adults @MichaelMarmot told @BBCr4today; not seen in colder countries like Sweden & Finland - their homes are fit for purpose
instituteofhealthequity.org
Left Out in the Cold: The Hidden Impact of Cold Homes
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