Breakdown of the central synapses in C9orf72-linked ALS/FTD https://t.co/ZPwAXZ1CMc A nice review from Layla, Brigid, and Co.

A new review article from JWAC members @laylainlab @DavideTrotti1, @haeuslerlab, and Brigid is out today!

We love this quote too and glad it motivates our scientists 💪🧪

New research from @haeuslerlab linked below!

New #JeffersonResearch from @haeuslerlab finds that a crowded molecular environment can influence the DNA structures formed by mutations in the C9orf72 gene. The study provides new drug targets to treat neurodegenerative diseases like ALS that are linked to the C9orf72 mutation.

https://t.co/RpCUuX0iWL Link to an article published in the Philadelphia Inquirer this week with a quote from our own Dr. Piera Pasinelli #als #genetictesting

Give For Lou Day at the Weinberg ALS Center https://t.co/8pt7iEaELK #fundraising

Christine is one of our many talented PALS in the Weinberg ALS family. She has a passion for her interest in decorating with a mixture of eclectic colored glass, china, and fabrics. Happy belated birthday to her 🎉 @cmoretti520 ! https://t.co/PxFQs43pM1

Ashley brought her expertise of growing patient-derived neurons to our labs and studies how these neurons become dysfunctional and die in genetic forms of ALS. #ALSAwarenessMonth #nevergiveup #ALSResearch

Research Spotlight: Meet Ashley Boehringer. She is a Postdoctoral Research Fellow in the Weinberg Center. Ashley is involved in several projects, including collecting and analyzing patients’ bio-fluids and skin cells used in the lab to identify markers of disease progression.

Meet Our Clinical Director: Hristelina Ilieva, MD, PhD Dr. Hristelina Ilieva is the Clinical Director of the Weinberg ALS Center. Today we talk to Hristelina about her role in clinic and what inspired her to work with ALS patients. https://t.co/p5aGj6K83H

She provides mental health support for our patients. She also coordinates the Visiting Volunteer program for our local ALS Association Chapter.

Clinical Highlight: Meet Gail Houseman. Gail works with the ALS Association Greater Philadelphia Chapter, but we are lucky to have her as a weekly member of our Multidisciplinary Team at the Weinberg Center.

In reality, know one knows how long their lives will be. What ALS has given us is the desire to soak in every last available moment of the life we now have! ~ Ron 5/5

signed a one year lease on an apartment. We now spend our days taking long morning walks, eating great food, learning Spanish, having weekly dinners with mom, relaxing on the beach or the deck of our apartment and enjoying Mazatlán’s famous sunsets. 4/5

several times and really loved this wonderful Pacific coast city and all that it has to offer. So, on December 1, after renting out our house and shedding most of our earthly belongings, we took one-way flights to Mexico, lived in an Airbnb for six weeks and thereafter 3/5

be taking from me and us, we would make sure to live every available moment to its fullest. We thus decided to accelerate our retirement plans—to relocate to Mazatlán, Mexico! Why Mazatlán? My wife’s mother and husband have lived there for years and we’d visited 2/5

I was initially diagnosed last July 14 at Jefferson. Over the course of the next month, my wife and I secured a second, third and fourth opinion. Accepting the diagnosis was really challenging. This said, by October, we decided that rather than focusing on what ALS might 1/5

Brittany is currently a medical student at Thomas Jefferson University, since publishing Stop Requested: A Collection of ALS Poetry in 2019 we wanted to follow up to see how the impact of her experience with ALS patients inspired her to be a better future physician. #ALSAwareness

Ever cheerful and engaging with everyone she interacts with, Sindhu displayed great perseverance during her master thesis work and application process for graduate schools. We will miss her but wish her the best in her next endeavor! #ALSAwarenessMonth #ALSResearch #nevergiveup