PJ Morrison
@wastelessme
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1,635
Following
1,439
Media
836
Statuses
10,214
I was born-I will die-in between I try- previously a Crisis Management Pro-Troubleshooter & Late-night comic-Now health advocating-LongCovid 45 months
Cork/Waterford Border
Joined March 2021
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Last Seen Profiles
Pinned Tweet
The many who have experienced LongCovid who can see the patterns will not standby and watch others become othered. We will still warn and shout and produce plans “see attached 2 page tri-fold plan” to reduce impact - to keep the many who we don’t want to join us safe &🧵
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My wonderful Dad died yesterday-we tried to keep him but he flew away -each time worlds fell apart he picked us up-Thanks Dad for staying so long we were so lucky to have you-A light’s gone out on earth it now shines the brightest in the sky-Ar dheis Dé go raibh a h'anam dílis
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@RebeccaStott64
This is my dogs mail order teeth cleaner chew toy-Penelope-he’s taken to sitting in the chair by the window with it dangling from his mouth 🤣
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For anyone who has had a white film coat on their tongue post Covid infection I’m amazed to report that these Oral probiotic lozenges containing BLIS K12 have over 2 days given me back a pink tongue for the first time in 4 years 🙌
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In my healthy ignorant pre
#LongCovid
state I never realised how many debilitating diseases there are with no treatments & no tests & not only that but no actual research or belief that they even exist outside our heads & Twitter-its like wondering into another terror dimension
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I am now excellent in bed-well I’ve been pacing ish for 2+ years-anyone with
#LongCovid
will get this-the many days spent watching life go by listening to those outside living “normal lives”-I’ve been angry-sad-and also thankful to be alive and for this view-what’s your view?
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To those using the term fatigue and mild in a minimising way-I never realised what the expression “bone tired” really meant until I caught Covid and scaling the stairs to bed was managed on all fours with a banging heart a light head and more than once the stairs became my bed
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This
#longCovid
lasts for up to 1 year rhetoric needs to change-risk & devastation of a life interrupted/debilitated is real-many with it have been unwell for 3yrs+ finding that out on Twitter where the experts live really messes with your head-recovery is my job now at 34months
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A family friend died unexpectedly recently - I didn’t go to the funeral due to well “No masks” - I just heard that his brother and 2 of his sisters are not doing so well and are in hospital with suspected pneumonia - please make “normal” make sense
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A neighbour whispered she was considering masking to the supermarket-what did I think? I didn’t bring LongCovid or research into it & said well it’s the right time to ramp up mitigations-when I asked her what there was to think about she said “the looks”🙄 🤦♀️ herd mentality again
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@1goodtern
That’s scary high - At my Dads funeral our priest “who is a wise & wonderful man” who happens to have Asperger’s made sure all doors side & back & windows remained open & kept the reading <400 - Dad would have been Impressed I know I was
#CleanAirEU
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@elisaperego78
@LaRougeAbeille
I worked in pandemic planning We knew in 2009 with H1N1 -our plans Included sanitising, masking- quarantining, distancing & isolating for 10’days -yet when Covid arrived -they waited 🤦♀️ I watched from the sidelines horrified & still do as the talk about it in the past tense 😡
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I’ve had a good week yet today I feel so sad -
#LongCovid
is such an up and down ride that when you feel good you’re afraid to be positive in case it’s just the lull before yet another storm it’s psychologically exhausting and not who I am but it is - does that make sense?
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I burst into tears last night-my body is broken-standing up and sitting down causes so much pain now-once I danced & ran & walked miles a virus changed all that yet still many repeat “it’s mild” do they realise the pain those words Instills-are they blind to the many suffering
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So went to the optometrist to check out the floaters-now sitting in eye emergency as they’re not happy with the back of my eye-nurses talking about
#longcovid
& increase in ER patients-eyes dilated-waiting-guy with mask under his nose-I don’t have the f’ing energy for this 🤦♀️
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@1goodtern
It’s my biggest fear for my parents who are in their 80’s - the care less society we live in now - if one more person says “sure they are a great age” or “they’ve had a great life” as if they’re ready for the rubbish shoot I won’t be responsible for my actions ffs
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Started tweeting to find ways to improve my post covid health-but as I have so few followers people don’t think I’m legit?? 2 years sick I had other things on my mind-I’m never gonna be a Twitter messiah-my fingers don’t have the strength-perhaps I should just talk to myself
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Just been to the hospital for a gastro checkup 44 months post a covid infection that has left me vulnerable to “infection etc” & this is how we are still being protected Not protected “wash your hands” - Not a mask or Hepa in sight 🤦♀️ it’s in the Feckin air
#CleanAir
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@glitterygooner
@RebeccaStott64
🤣 Alfie seems to fetch it whenever a man enters the house - it always makes me look away stifling a laugh at the obvious disbelief and discomfort in their eyes-it warms my heart - good boy 🐶
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My sister in law started me back into the sea last week - my front garden is the sea but walking on sand & stones has been hard as my body is now fragile - but I’m managing to don my shorts & stand up to my knees for 10mins as the waves massage & that’s enough-it’s huge progress
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@brownecfm
Spot on I had so many fungal infections that I never had before & my immune cells are low -
#LongCovid
community warned about the avalanche & highlighted the risk-yet here we are maskless but one small mercy people are still washing their hands although most dispensers are empty
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My 83yo mother just heard that two of her friends died unexpectedly in hospital-she msg’d me “everyone is dying-we are
old but there’s plenty of life & love in all of us-we are dropping like flies-it’s like we don’t matter-when did the world become so cold” what do we value now?
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It should not be the job of the sick to ask their health professionals to ensure a safe environment - ignoring or refusal to practice respiratory hygiene is not giving care it is endangering lives-that is not living with covid it’s state sponsored eugenics
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@1goodtern
That was me - now I need a shoe horn to put on my shoes that have Velcro ties - I weep for those who know and the many yet to know 😔
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@makeupartist524
Had a conversation with my dentist earlier-she witnessed my LongCovid impact-asked me how I was mentally & also now managing protection & reintegration-I told her Hell No-I’m a long way off reintegration as it’s not a level playing field too many willful hazards=ableist people🤷♀️
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@fitterhappierAJ
When I worked in crisis management & pandemic planning we had a rule about the biggest threat to success
The EGO
-In a crisis the unknowns are everywhere but egos will dismiss them Because they know 🙄 So leave the EGO at the door they inhibit mitigation & cost lives
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@1goodtern
Do you think this is a terning point - I so hope it is - I’d love to know if he was able to use logic to bring his colleague down from the immunity debt bull ?
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@annitht
I completely get this - I remember telling my parents “if this is my life I don’t think I can do this” in the midst of illness - I would not have been able to survive without them - My Dad died 4 weeks ago & without him my world has become less understanding & hopeful 🫂
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@LaRougeAbeille
Me too I was a writer & comedian by n8 & up until now 29months I’ve found it so hard to produce any real work I suppose because I can’t process societal denial into words that don’t translate as raging rants-I feel let down & artistically I want better than that-I miss flow 💙
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@1goodtern
In our fourth COVID-19 year - becoming immunocompromised is not an unlikely possibility with repeated infection and waning vaccine protection - LongCovid & life as you know it on Hold is a likely probability without risk mitigations
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@makeupartist524
This entire 🧵 could be so many of us - it resonates like an earthquake in my brain-I sometimes wonder am I delusional that things will improve that society will turn from Me to We to value each other-I feel like I have lost my anchor my sanity so often-🙏 your tweets r anchoring
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@1goodtern
But also it would appear that many of the journalists & presenters reporting the facts of the impacts on people’s lives-are not taking any additional preventative steps-they still think “it can’t be me” invincible health belief in a pandemic must be a psychological issue?
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What is it about the left side post covid? At 25months I started a reformer Pilates class & all 5 members have left side weakness? I know I’ve seen mention of left side a few times on here - has there been further research?
@Gronnet
anyone know?
#LongCovid
#CovidIsNotOver
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@RioSlade
If you google “pink eye causes” you’d never join the dots - I find most people walking about doing normal are not on Twitter - they are unaware their response will be nobody told me & they’re not wrong & that’s how gov’s it would appear manage risk their default setting = apathy
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@NateB_Panic
The human race are adept at looking away as they say “that could never be me” or worse still it never happened it’s a conspiracy-nothing surprises me about the pervasive health privilege that so many believe is in their dna -until that day when a C19 changes their 🧬
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How do you deal with birthday wishes when you’re sick? How do you remain zen and not fill with bile? Finding it difficult to respond to the annual messages from “friends” wishing me the “Best day ever” hope I’m treating myself? Oh the irony am I a bad person for feeling like 🖕
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An in-person LongCovid Conference - it’s great that people are discussing Long Covid but wouldn’t it be nice if it were accessible for all 🤷♀️
Let's see how
@NHSEngland
have done
#longcovid
today
Already met
@trishgreenhalgh
and spotted
@Daltmann10
Hoping to gain useful insights for
@CHSScotland
and
@scotgov
Say hello if you are here!
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@Harvard
Expert of what? Definitely not of the immune system and how it responds to Covid - is Harvard really putting their name to this - ask the real experts the Post Viral community - we all know better - we are the proof that you refuse to see - 1 in 10 infections = Long Covid 🤦♀️
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@coconutlulz
@longcovidIRE
@IrelandIww
Finally - respecting everyone’s right to a safe and inclusive space - I hope that others follow so the playing field is equal for all as everyone’s health should matter
#CleanAir
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I walked 11k steps today & laughed a lot - took my sneakers off and paddles the sat down on the sand & got back up unaided-it wasn’t graceful but I’ll take it-major milestones
#smallsteps
#LongCovid
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I went for a walk with the dogs and my neighbour and stopped for a birthday drink-we sat outside in the rain “hoods up” and laughed-I managed 2 glasses of house cab sav and am now off to bed-2moro I’m a year older & grateful to have turned a corner after 21 months
#LongCovid
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@DrPStewart
Out of interest what does the grip test tell you from a neuro perspective - asking as someone who pre covid had a farmers grip 💪 and post covid has that if a fish 🐠
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I am managing a decent 20minute walk most days now - giving thanks for the improvements the past while - this time last year I was not in a good place physically - at 37 months things can improve
#LongCovid
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I made the daily journey to the garden with the 🐶 I am his slave I’d like someone to follow me around & tend to me “not with plastic bags mind” 😂 anyways back in bed and thankful for my window it’s been my constant source of nature & meditation when health deserted me
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@vicmidnightsun
What I find really alarming is how late they are in reporting this impact of covid - And it takes a well known person falling ill to do a story and then they brush over the opportunity to minimise the impact to people by minimising the impact - is that an oxymoron 🤦♀️
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@MrkStdngr
😔 Mark I felt like my life was over ar 8-15 months-but I am now at 85% 25months in-with rest/time & patience “which has always been for me in short supply” there is light I never thought I’d say that in the midst of the despair-when I thought I can’t do this anymore but….
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@1goodtern
You remember the ventilators & PPE? if the gov finally cops on to the fact that it’s 1) airborne 2) impacting long term health 3) causing a workforce shortage as well as disability & death I hope to god Hepa contracts are MANAGED outside of the gov’s misappropriations process 🤦♀️
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@_CharleeGirl_
I had a courier cyclist in London shouting at me & riding fast beside my car-at the time I was like wtf until I stopped at the lights, spoke to him & realised my iPad was on my bonnet-he turned from road rager to hero I was 🙈 he was like no sweat love it’s good ironman prep
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@loscharlos
@CDCgov
Blue in the face from shouting about it & that’s not just from the shortness of breath or fatigue-it’s not an epiphany for any of us-if only they’d listened to us & to those who went before
#pwME
#cfs
#chronicillness
… maybe now they’ll realise we are all vulnerable
#LongCovid
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Just picked up my Dad’s death cert - having a 😢 in the car - nothing prepares you for this - how can the body keep up with the tears “Dad would have known - he would have read an article “ I so miss his Aquarius knowledge & smart arse comments to bring smiles to my days 💔
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6 months ago I couldn’t get up the stairs in my house I could barely dress, shuffle up the road but recently I feel like I may be getting ahead of it
#LongCovid
has been the toughest time of my life-I’m starting to think at 29 months I just may be winning with a little help 💙
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Why in Gods name are medical facilities not requiring masks to prevent transmission - this make me so angry it’s so preventable -
@DonnellyStephen
@CMOIreland
why are hospitals still not preventing airborne transmission? - they should be places of care & safe 😧
The
@HSELive
advising anyone who was at the Emergency Department in Galway University Hospital between 9pm on Sun March 3rd and 5pm on Mon March 4th may have been exposed to the virus.
ffp2/3😷 are essential in healthcare settings-full stop.
Stop the spread of AIRBORNE diseases.
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Today is my birthday-I’ve had many messages from people who’ve been silent all year as that’s how it works-society-the irony is not lost-receiving emojis of parties,cake & dancing I laugh as I can’t do any of those things but I’ll stay quiet and bathe in this false positivity🤦♀️
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@1goodtern
In the past 2 weeks there have been 4 unexpected deaths on my street - so many funerals - so many questions unasked and unanswered 😢
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@beansprouts_mom
When I was infected in March 20 a friend of mine who’s on a cocktail of HIV meds said-are you sure it’s not HIV as it seems very similar-you need antiretroviral drugs to clear it-he saw it-I don’t understand how nobody else did?
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@LauraMiers
Same here in Ireland there are a few guys they keep rotating and are now like rock stars - wrecks my head
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@brownecfm
🎯 in a crisis you plan for the unexpected hoping the unexpected never happens & if it does you mitigate with protections to reduce the impact & create better solutions to return to normal-not ignore the impact-let it rip then stop monitoring/managing/mitigating & wish it away 🤦♀️
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@HeyJanae1
Well apparently they are not accepting blood donations if you notify that you have LC - but many don’t realise so I would imagine it won’t be dissimilar to a hepatitis scandal in the future & they’ll say how could we know 🤦♀️ will psychologists say- it’s all in our heads then
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@alexmeshkin
Any country that responded in a timely manner-communicated effectively with the population- layered mitigations and didn’t downplay the impact or put all their eggs in one vaccine basket has managed the impact of the pandemic better than many others & saved lives
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@BarryHunt008
Someone comes along and makes a documentary and 😳 everyone is horrified & the government spends lots of money to show everyone that they “were unaware & if they did they would have done - absolutely nothing different as 🤔 hindsight” 🤦♀️
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@dianaberrent
@roxy_mojo
My brother is a smoker “he’s just giving up - vaping” not been sick- I’d been on at him for years pre covid to quit-then I read some research about ace receptors in mouth & nose were less in smokers & now I keep telling him to wait until there’s a sterilising vaccine to give up
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It’s my Mums 83rd birthday tomorrow -she’s been the one constant in this shitshow called
#LongCovid
-held me when I thought I’d prefer not to be here-her early onset has accelerated as a result of covid & everything-time spent with her is a luxury-we had 99s instead of cake-lush💕
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I’m starting to have better days but the fear of admitting it is scary-well when you know-you know what I mean
#LongCovid
&
#chronicillness
esp-I’m writing & finding humour & creating more & I think at 30/31 months I can dip my toe back into work whatever that looks like now 🤷♀️xx
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@healingfromlc
@Perospumpeh
Don’t write anything off-it was a surprise to me at 30 months how much I improved I don’t take anything for granted now-i never will again-at 12 months I wondered if I mattered if I could go on & I know I do & I know you do too-put yourself first now-sending 💕🫂
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@DailyJLee
I worked in crisis management for H1N1-we never used adjectives like mild we reduced impact with mitigations & the rule-prevention is the cure-unfortunately in this pandemic the global command & control rooms r full of self interest/conflict of interest & Egos-asleep at the wheel
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In 24 I shall nap more & resist the pre programmed societal unconscious need to increase my energy consumption wastefully - I shan’t download apps or coach to 5/10/20k I shall respect & listen to my body-protect my health & nap hard & give my cells time to rebuild my health
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Where did all my IRL friends go - all I did was get infected with an airborne virus in March 2020 - Making friends was always easy - obviously making the right ones is more complicated - some Life Lessons are hard
#LongCovid
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@brownecfm
44 months of endless Drs apts - aches and pains and mobility issues has convinced me - but unfortunately not many around me 🤷♀️
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Have our guts been the eye of the LongCovid cytokine storm all along? I know I felt it in my gut-so when I read-heightened gut-derived serotonin-released to cause gut dysfunction-increased the body’s immune response-irony of science if antid’s r a way out
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Today I managed the annual Stephen’s Day walk-last year I couldn’t climb the kerb- this year I climbed the hill -clambered over rocks -don’t get me wrong I’m not back to where I was but oh my! I feel that perhaps it just might be possible 🤞to hope again-this view was worth it
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The cold river air sandblasted my cheeks & the herons sang as I walked the muddy slob bank earlier today - This walk would have been like Everest for me last year-I am so thankful for here & now & for what I am able to do today
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@oldenoughtosay
In a previous life I attended meetings in there for contingency planning and I’d imagine there might be some additional beverages for purely medicinal purpose too of course
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@NicoleStoutPT
Thank you for sharing-I have unfortunately heard of many cases in the long covid community-I see people commenting “saves you from death”-as someone suffering from long covid since April 2019 & under the care of 3 specialists-I hope the vaccine protects others from this hell ❤️
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@Daltmann10
@JamesTGallagher
@p_openshaw
Unless I’ve read this wrong & I’m happy to stand corrected doesn’t his “with repeated infection we should build up natural immunity" just repeat the let it rip rhetoric of herd immunity or am I missing something 🤷♀️what about 1 in 10 infections leading to Long Covid 🤯
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@1goodtern
You forgot one - You have a van full of pills, potions, supplements, gadgets receipts from expensive pvt consultants that didn’t work but that you hoped might as nobody had any better ideas and still don’t coming up to 3 years
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@NorpelSam
💯 agree - I queried about blood donations too - silence - I’m sure there will be findings at some future point in time when organs fail - it’s all so f’d up 🤷♀️
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@JohnBrownsBody2
@LaRougeAbeille
Love this-but what the past 3 years has taught me as someone infected March 20 is that many have lost connection or never had a conscience-acting for oneself & nobody else is the default factory reset for more than I ever could have guessed 😢 perhaps there’s a hack but ……
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@irishexaminer
@j_corey02
I hope this article will give parents the confidence to ask for better in-school air quality & improve children’s health-the gov should have used the €62 million identified in 2021 to get ahead of infections-instead of their disjointed neglectful approach to impact reduction
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@cfs_jo
My nana used to always tell us clean underwear as you never know when you’ll be hit by a bus - which was always perplexing as 9 miles from the nearest town and No bus stop 🤔 so many questions never answered
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It’s 3 years today since my life changed-I took a plane to Ireland to celebrate my parents 60th anniversary-contracted a mystery illness suspected as an onset of “Panic” 🤦♀️ my heart & stomach exploded & I couldn’t breathe,sleep, eat-my body inflamed-maybe this year I’ll go home
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I’ve only started back - but I went big - next piece is in the works called pacing - this one is called pieces of grief
#shareyourart
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@mildanalyst
And would people step over the bodies? I worked somewhere once where a man was dead at his desk for a few days before anyone noticed & I’m sure there are mummified bodies in houses/flats from pandemic where nobody has noticed they are missing- it makes you wonder who we are?
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@j_b_kennedy
I know quite a few living in U.K. with Irish passports who voted brexit - Read the daily mail and pulled the ladder up after themselves to more immigrants competing for jobs 🙄 needless to say I have a reduced circle these days!
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@SleepyJim0
It does - as does smoke & we outlawed smoking in enclosed spaces to protect employees and the public from exposure to the harmful and toxic effects of tobacco smoke & in 🇮🇪 we also have legislation for air quality yet??
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53
A win to share-I climbed 🤔 not cliffs but wow-I felt like her again-I forgot for a few seconds-my jeans are wet & my trainers soaked I felt accomplishment & my ❤️racing but in a wonderful joyful way-to think Xmas 21 I was shuffling around using a stick-38months
#LongCovid
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@1goodtern
March 2020-ambulanced to CUH hospital Cork where I was told breathlessness wasn’t a symptom “Italy was highlighting it” the man in the next room had the same symptoms-I was told to go home and isolate until I felt better-I never did-my discharge note read Panic Attack? 🤦♀️
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Mum 82yo-waits in the car whilst I go over the top-sorry I mean into the supermarket😆-watches as people go in & out -when I came out she said I’m no Dr or Scientist but when r they going to cop on to covid damage -every 2nd person looks wrecked & never seen so many limping 🤦♀️
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@Dreadful4Tymes
@LaRougeAbeille
Thanks for this tweet but It’s unbelievable that this even has to be explained imagine profiting off someone like they are a piece of meat - what a horrible excuse for a human being.
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@1goodtern
This is a story being played out in every village/town/city across the globe now ⬇️ 😞
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Funny how when I was in the depths of sickness I felt driven-I had goals to improve-now that I am improving I am struggling mentally as I look around & don’t belong-I can’t because I won’t accept this normal everyone embraces because that’s just it-it’s not everyone 🤦♀️
#cleanair
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@Dr2NisreenAlwan
An illness that can’t be seen doesn’t count-18months
#LongCovid
has taught me this-delayed NICE report breaks my heart-when I talk to people with ME/CFS who have been treated like pariahs for years-I’m angry-don’t be defeated-your voice shines-you stands apart from the status quo
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@Sheep_in_fog
I was in the hardware shop to get paint yesterday and two people danced their was out of the aisle I was in - it’s a comedy of errors the musical - I actually laughed out loud 😂
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@turnoftheshrew
I would add many Drs too-especially when they ask you if it runs in your family or maybe it’s your age or because you’re a vegetarian-you say no but I’ve had this virus & I believe it’s triggered inflammation & compromised my microbiome and my endothelium makeup🙄-no it’s anxiety
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It’s great covid boosters are available FROM TODAY for 18-49 yo’s & i know that in Ireland like most places in Europe & U.K. we put all our eggs in the vaccine basked but WHY is it being offered in the middle of a SURGE? We knew was coming? Where’s the population protection plan?
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Take time to help the forgotten-to invest in patient led research-to clean the air-mask in medical settings-to be less ableist-to accommodate our needs-you ask where are the workers-we are here-we’ve seen you-we’ve been waiting for you to enable us to leave
#LongCovidAwarenessDay
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@RhodaWatkins10
@shaboom
Isn’t it’ll funny how the narrative is all skewed towards minimising the infection, the transmission and explain away the long term impact of those still suffering and those that have debilitating illness that has no treatment - we are our own alchemists-specialists-experts 🤦♀️
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