Brian Fog
@useless_priest
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Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Amsterdam, The Netherlands
Joined January 2015
Everything is on the patient. Everything. Finding out how the illness works. Finding out you need to pace (despite what you're told). Deciding how to much risk to take with infection. Finding out how to mitigate infection. Deciding how much risk to take with treatment.
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"Crypto to Christ" -Ep 002 of Unquenchable Fire is live I sat down w/ my Dad to share my 8 year journey in crypto. Losing millions chasing memes & leverage, launching ZynCoin but finally realizing no amount of money could satisfy my soul God gets the glory YouTube link below:
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Elon just revealed exactly how the X algorithm works I spent the last 14 hours straight reading all 400,000 lines of code of the brand new X algorithm What I read blew me away Here’s everything you need to know about how to go viral and if you can still get shadowbanned: 🧵
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The RECOVER-TLC webinar has had fantastic highlights, but this is a major, major drawback. People are so sick they haven’t been able to communicate in YEARS. Where is the recognition? Where is the urgency? Where is the help?
@NIH So far the NIH has utterly failed to acknowledge that there are people in this community who are losing the ability to EAT, who are skeletal, who can't speak or tolerate sound or light, who have tried everything and nothing's working
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Exceptional live-tweeting of the RECOVER meeting by @x3r0gx4
Ok I’m going to make a thread with some of my thoughts from the RECOVER meeting (not a meeting summary, by no means comprehensive):
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Had enough of Lindsey Graham? You aren't alone. Graham has betrayed President Trump and pushed for endless war. Vote Paul Dans and send an America-First fighter to Washington. Click below to learn more about Paul:
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What this means is that the national positivity figure - the one UKHSA use on the dashboard, the one journalists refer to, currently at 9.25% - is wrong. It is skewed downwards.
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I've never found the term crash descriptive. It gets as far as "I've done too much and something bad is about to happen." It doesn't imply whether the bad thing will be PEM, PESE, whether it will be temporary or permanent, etc.
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Considering Salvatore Mattera has gone to the trouble of building a website for people with LC, "centering on their personal experiences", he's extremely quick to dismiss same.
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Prove your trading skills and gain up to 90% of your simulated profits. Don´t wait, your future starts today!
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Type 4: "ME is an illness characterised by PEM which renders the patient unable to exceed an unreasonably low energy envelope. There are many other facets that it incredibly disabling. Many cannot work and some patients are confined to their rooms for decades requiring constant
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Type 3: "The main thing of course is fatigue. Tiredness, tiredness, tiredness. That's mostly what you need to know. We need to help people with their tiredness." Knowledge: poor Intentions: often good ...
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Type 2: "Of course LC is a real physiological illness. The mind and the body are connected." Knowledge: good enough to encrypt their language Intentions: sometimes good, sometimes bad ...
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Type 1: "This illness is purely in the mind. People need counselling and to move around as much as possible." Knowledge: poor Intentions: bad ...
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There are 4 types of people who speak publicly on ME and ME-style LC: 👇
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1) Excellent take on @DrHegedues video about ME. "Those affected by #MECFS are not portrayed as complex subjects with often tragic biographies, but rather as projection surfaces for social irritations. Their illness is not analyzed medically, but rather https://t.co/PY0nwvX3pd
scienceandsense.de
Vorbemerkung Die nachfolgende Analyse zum Video von Janos Hegedüs über ME/CFS ist kein Kommentar im klassischen Sinne, sondern der Versuch, einen kommunikativen Beitrag in seiner rhetorischen...
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Every single share, every single donation counts. Nevra’s survival depends on this. https://t.co/T5WTYptkQT ^ Link to her GFM and her story Thank you for reading. https://t.co/SqW2RQfLD0 GFM https://t.co/VpLL9hBwcq
#MutualAid #pwME
#SevereMECFS #SevereME #DomesticViolence
gofundme.com
Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety
Part 1. Emergency update 🚨 IMAN here ‼️ Nevra is still paralyzed. The situation has not changed. We are running out of time. #MutualAid #pwME
#SevereMECFS #SevereME #DomesticViolence
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I think im gonna paint MORE borzoi cause this quote has been sitting warm in my heart lately
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I HAVE HAD SOME EXPERIENCES WITH FOOD(S) Eating and Cooking - OVER THE YEARS - I was introduced to food much like most people had been, from my family of origin. I began by watching what my mother cooked for the nine of us in the family, for her and my father and we seven
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I am someone who has to hold myself back. Not once have I ever done too little. It’s probably the reason I slid from mild to severe #MECFS over the past 5 years. What she claims she believes here is not what I saw her do in my appointment.
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High GDP per capita is being discussed as an outcome of the 4-day week but isn't it equally likely to be the other way around?
The Netherlands is setting the standard for shorter working hours with the highest proportion of part-time workers in the developed world and high productivity
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The usual refrain is that the precautionary principle (along with COVID minimisation etc.) justifies almost any degree of exaggeration. Counterpoint: it doesn't.
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