Tim Tobin
@tptobin
Followers
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Following
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Media
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Statuses
67
Lawyer living with ALS. Husband. Father. Blessed.
Joined March 2012
RT @SenatorBraun: The #PromisingPathwayAct is proudly bipartisan, and gaining steam every day. This week we're proud to add @SenatorRicket….
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RT @SenatorBraun: There’s been a lot of positive momentum for the Promising Pathway Act following our hearing last week. Thank you to our n….
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Grateful to have been part of #promisingpathwayact press conference before #PPA hearing last week. Thanks to all involved including @iamalsorg PPA team, @bsw5020, @sabrevaya, @drjpo, Fighting for future & PPA advocates we have lost: @CoreyPolen, @sandymorris333 and @becky_mourey
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RT @iamalsorg: In DC? If so, join ALS advocates on 10/26 for a press conference and Senate Aging Committee meeting on Promising Pathway Act….
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RT @Troy_W_Fields: Let's have every Senate Aging Committee member at the hearing on 10/26 and let's pack the hearing room with people seeki….
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RT @iamalsorg: Tell Congress about the ALS community's need for faster access to promising drugs before their upcoming Senate Aging Committ….
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I am going. I hope to see you there!.
Come on out, Alexandria!.
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Common sense legislation!.
New action!
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Please like Brooke's tweet!.
@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.
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Thank you @RepGallagher @RepMikeQuigley @RepWesterman @RepSwalwell for introducing the Promising Pathway Act for much needed new #FDA conditional approval pathway for terminal diseases with unmet need. Excited to now have bipartisan bills in House and Senate (S. 1906). #EndALS.
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Thank you @SenatorBraun @gillibrandny @lisamurkowski @kevincramer and @SenatorWicker for the Promising Pathway Act for needed new #FDA conditional approval pathway for promising drugs for those with terminal diseases like #ALS
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RT @SenatorBraun: “Americans with life-threatening and terminal diseases like ALS don’t have time to waste on a bureaucratic journey throug….
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Thank you so much to friends from my law firm @HoganLovells for coming out to support and volunteer at #ALSinDC flag event put on by @iamalsorg. Grateful for ongoing support from all at #HoganLovells for me and #ALS community!
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I am honored to have been included in a story about the great @PatriciaManhar1 and grateful to @ShereeWLWT for telling it. Thanks to @iamalsorg for great #ALS event in DC.
wlwt.com
A mother from Mason who has been battling ALS for three years is taking her battle to Washington, D.C., pleading with lawmakers and the Food and Drug Administration to give her and others "a fighting...
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RT @SenGillibrand: FDA approval can take 10+ years — but patients with life-threatening, rapidly-progressing diseases like Alzheimer's and….
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Dear @US_FDA, @FDACDERDirector & @DrCaliff_FDA, the #SOD1 ALS community needs you to approve #Tofersen. Do the right thing! #EndTheLegacyApproveTofesen.
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RT @MinoSean: Thank you @SenatorBraun and @SenGillibrand.🙏❤️.#PromisingPathwayAct. I hope that ALS advocacy groups can commit to helping pa….
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