Taylor MacLean
@tayloremaclean
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Program Manager at Additional Ventures 💚 LVAD (1/2015) & Heart Txplt (12/2015) Recipient 🫀 Psychiatric Occupational Therapist & Maine-iac 🦞
Boston, Massachusetts
Joined February 2022
Great debate tonight at the dinner for #SVIM2024. Impactful basic and clinical research presentations with personal stories of SVD that will stay with me throughout my career. @AdditionalVent
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@scott_leezer “We are fine until we’re not okay, it happens so fast.” We need a sense of urgency and advocacy to help those with CHD now and for a long time in the future
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Full house bright & early this morning at @AdditionalVent #SVIM2024 to hear from patients/families with #chd and @DrKeilaLopez for discussion on health equity, mental health, behavioral cardiology, & impact of drivers of health on brain connectivity from fetal cards to ACHD 🫡
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Kicking off the Single Ventricle Investigator Meeting 2024 today in Denver! Ready for an exciting few days 🔬🧬🫀 @AdditionalVent #SVIM2024
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We're just one year away from the Single Ventricle Investigator Meeting 💫 #SVIM2024 convenes Oct 17-19 in Denver, CO! Don't miss out on this incredible opportunity to connect with multidisciplinary researchers & clinicians in the #singleventricle space! https://t.co/hpklY0Enhb
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As his patient, his former employee, & an overall huge fan of @akshaydesaimd - this is THE COOLEST! Hope to see a few video clips circulating after this session at #HFSA2023 🫀 🚲 Love the interactivity, the creativity, and the concept 👏🏻 @NirUrielMD @KatyFraser5
Wake up your mind & body with @Abbottcardio at an experiential learning event at #HFSA2023: A New Spin™ on Heart Failure. @NirUrielMD & @akshaydesaimd will use stationary bikes to simulate heart failure symptoms. Spots are limited, Register here: https://t.co/MdTB6qEpkP
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Great to see @NKasparian empowering individuals living with #SVHD on how to bring up mental health with their care teams. It’s a team effort. #SVPatientDay @FontanOutcomes
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With $2.25M, how would YOUR team tackle single ventricle sequelae? 💭💡 #fundingopportunity #singleventricle @AHAScience Learn more and apply: https://t.co/dM0D45lnvo 📆 Pre-Proposals (LOIs) are due December 19th!
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👀 We've been cooking up an exciting collaborative opportunity for the field, and we can't wait to share! Stay tuned for something BIG - announcement coming tomorrow❗#fundingopportunity #singleventricle
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We're deeply sorry to hear of the loss of Amy Silverstein, who died at 59 on Friday. Amy was a two time heart transplant recipient, brilliant author, and tireless advocate for #truthintransplantation. Her fight goes on, and her work will not be forgotten. https://t.co/qGxu14MYbe
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“Standing on the edge of death now, I feel compelled,” writes Amy Silverstein (@ajsilverstein16), “to use my experience in the transplant trenches to illuminate and challenge the status quo.”
nytimes.com
Organ transplantation is mired in stagnant science and antiquated, imprecise medicine that fails patients and organ donors.
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Kendall has been reporting and writing on the broken organ transplant system for years, and now the Biden admin is finally going after the failing nonprofit that controls everything. A great reminder of what can happen when disabled people are allowed to tell their own stories.
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Impactful new initiative @CincyChildrens directed by @NKasparian supporting physical AND mental health of patients and families affected by #CHD 👏👏 https://t.co/tWLJtfPVyf
We’re thrilled to announce the creation of the Heart and Mind Wellbeing Center! The center was created to provide emotional support and mental healthcare tailored specifically for patients with congenital heart disease and their families. https://t.co/UO9Y9O1L9o
#mentalhealth
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Very excited & proud to publish in @JAMACardio our study of remote hypertension and cholesterol management in more than 10,000 patients @BrighamWomens, bringing specialty care to diverse patients at scale & improving clinical care https://t.co/Xl3GFinsIs,
https://t.co/wSpyr0zrzu
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Wanna take a sec to compliment @AdditionalVent for the ways they’ve connected the physicians & researchers with patients @ #SVIM2022. Everyday btw sessions they play these messages from the families about their hopes & fears. It’s emotional. It’s real. It’s motivating. Thank you.
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It's a beautiful day in Baltimore, MD! #SVIM2022 kicks off today at 4 PM with keynotes from @jameson_rich, @kk_does_science, Michel Puceat & @allen_kiona - followed by a fireside chat on #singleventricle funding landscape Check in 2-8 PM - See you soon! https://t.co/wsCfym3riF
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Grateful to be 1 in a million 🙏🏼🫀♻️
In the organ donation & transplant community, scars tell the story of second chances thanks to an organ donor’s selfless gift of life. We’re honoring & celebrating #1MillionTransplants in the U.S. with these & more stories at https://t.co/2qv3XPu4Ji
#LivingItForward #DonateLife
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I hope to see you all there! So excited to share these two amazing initiatives where I am honored to spend my time.
Don't miss it! We're sponsoring an information fair & happy hour all about #ProjectSingular & @FontanOutcomes - two game-changing innovations in the #singleventricle space! REGISTER https://t.co/qDDBClyN4N 📍Join us at #Cardiology2022 Sept 1st at 4PM PT
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Many thanks to @armish for amplifying this important initiative! We're seeking photos & perspectives from #singleventricle patients & parents that would like to share their stories with our research community at #SVIM2022 ➡️ https://t.co/aFDcAv8b9x
https://t.co/zIUDTSIL4R
docs.google.com
Thank you for your interest in sharing your photo and perspective for our Single Ventricle Investigator Meeting! Please answer the questions below and upload a high-resolution photo of you/your...
Hey #HLHS (or single-ventricle) parents/friends! Do you want to tell your story to a large group of amazing scientists who are actively researching ways of making our lives better? Here is your chance: https://t.co/K0V7ijrkEj H/T: the amazing @AdditionalVent / #SVIM2022 team
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