Lelainia Lloyd (She/Her) ♿️🥌🎙✍️🦄
@tatterededge
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Lelainia Lloyd, Host of NMOSD Your Way Podcast (Canada & Global), Rare Disease Advocate, UBC Health Mentor, @JMIRS1 patient partner, wheelchair curler.
British Columbia, Canada 🇨🇦
Joined September 2008
What happens when three people living with neuromyelitis optica spectrum disorder (#NMOSD) write and exchange letters about their individual journeys and read them for the first time on camera? Watch our short film “Rare Connections in NMOSD” to see it unfold:
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SHEro. I hope she survives. Heartbreaking.
💔 While bullets were flying, 10-year-old Lydia Kaiser’s instincts were not to protect herself, but to shield her school’s therapy dog. She was struck and rushed into emergency surgery, while her father, a beloved gym teacher, helped protect other children until they were
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May he peacefully travel the path of souls. He was a fine actor & he will be missed.
Graham Greene has died. A Canadian acting icon, he earned an Oscar nomination for his role as Kicking Bird in Dances With Wolves. He also won a Grammy, Gemini and Canadian Screen Award, along with the Governor General's Performing Arts Award.
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Graham Greene has died. A Canadian acting icon, he earned an Oscar nomination for his role as Kicking Bird in Dances With Wolves. He also won a Grammy, Gemini and Canadian Screen Award, along with the Governor General's Performing Arts Award.
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“Dear Dr. Lloyd, We are delighted to extend a special opportunity for you to join us as a Speaker at our 2nd Global Conference on Otology, Rhinology & Laryngology…” #StillNotADoctor
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#OnThisDay - June 28, 1981 The day family, friends, and all of Canada lost Terry Fox to cancer. Terry started a marathon against cancer. Together, we can finish it. Donate or join us for the #TerryFoxRun on September 14 and start fundraising today: https://t.co/bg3aaIAzaF
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“Dear Doctor Lloyd, I hope you are doing We warmly invite you to submit your clinical manuscripts.” #StillNotADoctor
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Terry Fox. He was the best of us. Canada’s son. @TerryFoxCanada
Who is the first person that comes to your mind when you hear "Canadian"?
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The Hurricane (Bob Dylan) The Wreck of the Edmund Fitzgerald (Gordon Lightfoot) Tweeter & the Monkey Man (The Travelling Willburys)
What's a great song that tells a story?
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Living with a rare disease means navigating daily challenges, quiet victories, and a constant push to be seen and heard. Every story matters, and sharing them brings us one step closer to change. 💙 What’s one thing you wish people knew about rare diseases?
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Staying safe in the heat is important for everyone. But there’s more to consider when you have a neurologic condition: https://t.co/ZXe4hba3lx
#MS #Dehydration
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The phenomenal success of Stars Wars. It was on the news a lot. I was 6 in 1976.
What is the First major news story you remember as a kid?
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The coolest thing about being diabetic is how 50% of nights I almost d1e in my sleep, pretend like nothing happened, then wake up and go to work! 😂🤣😭 Happy Tuesday y’all!
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I will be speaking on this panel yo researchers about my experience mentoring future health care professionals over the last 13 years & why partnering with patients is so important. The conference takes place on Thursday, June 12th in Vancouver.
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Building a fort on the banks of the Assiniboine River.
It’s the 70s and you're outside with no toys… what are you doing?
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In the face of wildfires, we’ve seen heroism: military flying evacuees to safety, first responders protecting communities, volunteers stepping up, and evacuees showing incredible patience. Thank you to everyone who’s stepped up. The true spirit of Canadians shines through. 🤝🇨🇦
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Swedish blood banks text their donors to notify them to let them know their blood has helped save a life.
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