Alexion
@AlexionPharma
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Alexion, AstraZeneca Rare Disease is focused on pioneering new possibilities for the rare disease community.
Boston, MA
Joined February 2011
The path to a hypophosphatasia (#HPP) diagnosis can be difficult. Vague, varied symptoms can often lead to missed signs, many doctor visits and uncertainty.
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Due to the unpredictability and fluctuating symptoms of generalised #MyastheniaGravis (gMG), those living with this #RareDisease may feel invisible. Learn about the power of feeling seen while navigating life with gMG in Rare Connections in gMG. Watch at
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People living with paroxysmal nocturnal haemoglobinuria (PNH) can experience a delayed diagnosis by 10 or more years due to diverse symptoms and varied clinical presentation. Explore the signs and symptoms of PNH below. #PNHDay2025 #PNHAwareness2025
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On Global #PNHDay2025, we’re joining the rare disease community to bring attention to paroxysmal nocturnal haemoglobinuria (PNH). By deepening awareness and understanding, we’re committed to improving outcomes for those living with PNH. #PNHAwareness2025 #TogetherForPNH
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On Sept 23, we united virtually for Rare Conversations with the global rare disease community—sharing experiences, insights and the power of data to drive change. Thank you to all who joined! #RareConversations #RareDiseaseCommunity
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Like many rare diseases, there’s limited awareness of generalised #MyastheniaGravis, a rare autoimmune disorder characterised by loss of muscle function and severe muscle weakness. We’re committed to advancing understanding of this #RareDisease to benefit patients across the 🌎.
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aHUS is a type of thrombotic microangiopathy (TMA), a group of severe and potentially life-threatening rare disorders that cause blood clots and damage to blood vessels, which can lead to organ failure and death. See the signs, symptoms & complications of TMA ⬇️ #aHUSDay
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Today on #aHUSDay, we recognise those living with atypical haemolytic uraemic syndrome. We are inspired by the strength and resilience of the aHUS community and remain dedicated to improving care for those affected by this severe and devastating disease. #aHUS24Sept
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Neuromyelitis optica spectrum disorder (#NMOSD) is a rare and debilitating autoimmune disease characterised by unpredictable relapses or attacks. Discover more about this condition and its impact below.
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Hypophosphatasia (#HPP) can affect males and females of all ages, with certain symptoms more common based on a person’s age.
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Genomic newborn screening holds the potential to transform the diagnostic journey for families by enabling early action to make a meaningful difference. Learn how: https://t.co/SMs1u6r8IU
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With more than 400 million people worldwide living with a rare disease, and 10,000 rare diseases known to exist today, rare diseases are not as rare as we may think. Learn more
alexion.com
Understanding the challenges of a rare diagnosis and the journey that follows is critical to the work we do. That's why we partner so closely with patients and caregivers to ensure it's their stories...
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Haematopoietic stem cell transplant-associated thrombotic microangiopathy is a type of TMA, a group of severe and potentially life-threatening rare disorders that cause blood clots & damage to the walls of the smallest blood vessels, that occurs following HSCT. Learn more below.
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The severity of hypophosphatasia (#HPP) can be wide-ranging. Signs and symptoms of the disease may present in many different ways and accumulate or worsen over time.
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Are you passionate about making a difference in patients' lives? At Alexion, we're pioneering groundbreaking therapies for rare and devastating diseases and looking for top-tier talent to join us. Could you be up for the challenge? Let’s find out: https://t.co/NCjFO2eMJI
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Join RareConversations on Sept 23! Hear patient advocates and experts discuss the real impact of rare diseases and new ways to drive change. Rare disease patients, caregivers and members of patient advocacy groups can register now https://t.co/dK1HqFmsdH
#RareDiseases
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