It's Symptoms Saturday. There are over 200+ symptoms of Fibromyalgia, and it can be a lot, many people don't know how to react when they hear this. Today we would like to know what symptoms have got you today or what are your worst ones? As always a members of the team are

What was your first reaction to hearing you had fibromyalgia? Has that feeling changed? If so, how?

Can someone name all the health conditions where people are told they just need to learn 'acceptance' and try yoga instead of getting medicines, when there are medicines that exist which can help them? Asking for a friend. 🙄🤨 #ChronicPain #ShareOurPain

Nondisabled neighbor to me a wheelchair user: “I don’t like the term disabled. You’re not disabled. You’re differently abled.” It takes a certain amount of audacity to tell disabled people how to identify ourselves. Nondisabled people don’t get to dictate our identity.

Elevating voices is so important. This is one newsletter you won’t want to miss. #chronicillness #disability #DisabilityRights

Has anyone made a list of Spoonie Slang or a Brainfog Dictionary? Cos I've got a new item today: Clean Oven = Washing Mashine. #SpoonieLife #SpoonieProblems #SpoonieSlang #Brainfog #MEcfs #pwME

So much for not watching the movie! 🤦🏽‍♀️ I realized about a half hour ago that I never took my meds earlier and couldn't figure out what was wrong so I got myself all wound up trying to figure it out and here we are! Tired & in pain with a very wonky brain! #SpoonieProblems

Trying to remember how much I’ve had to drink this evening (non alcohol) and wondering if I need to use the little energy I have to go pee before bed. I’ve been about an hour ago 🙈 #spoonieproblems #spoonie #mecfs

It takes an incredible amount of audacity for a nondisabled person to tell a disabled person not to call themselves disabled.

Fibro flare & chronic migraine day tried to ruin our day date today but managed to have a relatively good day but had to cut it short because I was nauseated 😒 #SpoonieProblems #intracranialhypertension #pseudotumorcerebri

I’m an exhausted space cadet today #decrease #prednisone #spoonie #problems

When you knew things weren’t good but not this bad… #lupus #as #spoonie #problems

One of those #spoonie problems. In fairness you are doing the right thing. You need to weight up cost and energy. Listen to the body and don't over do it for it or the mind and also you.

"When you're sick, you should stay home* & rest** so that you don't get worse." - health pros everywhere *except if you have COVID, please take that to work with you **except if you're chronically ill, please push yourself as much as or more than humanly possible

Has someone written a realist, step by step apocalypse planning guide for disabled people as a community and as individuals?

Sicko problems. I bought a weighted blanket…It’s too heavy to lift 😂. #sicko #spoonie #NEISvoid

When getting dressed means putting on a hoodie over your pyjamas #MECFS #pwME #spoonie #Spoonieproblems

Is anyone else forgetting how to tell time? The 12s are messing me up. Another thing #mecfs is taking from me. #pwME #chronicillness #spoonieproblems

Please remember that chronic illnesses and disabilities vary in severity for everyone and can even vary day to day for us.

Wheelchair use is not a surrender. Wheelchair use is not giving up. Wheelchair use is not lazy. Wheelchair use is not a defeat. Wheelchair use is not failure.