Here's my new website URL: https://t.co/7wQHm8y65W

Stop blaming workers and start recognizing corporate greed.

I want to say this "out loud": severe and very severe ME will kill you a lot faster if you don't have money and/or someone to look after you and look out for you. A lot of us don't have this. If we decline, our deaths will not be well-considered, well-documented 1/

Dear person reading this: you do not exist to generate profit for billionaires.

Being ditched by people when you need support the most will really make you look at people differently

Who's gonna tell the leftists on their third Covid infection that they are also disabled people

If you know, you know. If you don't, be grateful. Often, my mind feels blank. #MECFS #pwme #anxiety #brainfog #chronicillness #poetry

Do others notice that when you have a ongoing health condition, people often assume you haven't already tried everything possible to manage it?

I ordered an author's copy of my book from Amazon KDP. It's here and it's beautiful. #selfpublishing #writers #poets

After years of being accused of malingering, having depression and anxiety as the cause of my health problems, it's almost a relief to have test results that come back with concrete problems for why my body is doing the shit it does. #MECFS #pwME

Getting a referral to a rheumatologist.

I just had a follow-up appt with the PA over my xrays. Apparently I have arthritis and some vertebra are slipping and that's why my leg is going numb. It's always something new. FML. #MECFS #pwME

When someone who’s chronically ill/disabled says they can’t do something it’s not an excuse or them being negative it’s just matter of fact.

To poems. To secret poems. To notes app poems. To poems only for a while. To resonating poems in the void. To verse. To slant. To widely circulated. For poems only for lovers. For poems just for me. For poems that someone takes off our cheek and says, “Make a wish.”

When I'm reading a book or watching a movie and I know something bad us about to happen to one of the characters, I stop in the middle of the story because I can't bear for something bad to happen to someone I care about, even fictional characters. They're safe forever.

Got another Covid booster because I may have jury duty on Monday and I need to minimize my risk as much as possible. #CovidIsntOver

The goodness of your character does not depend on your obedience or subservience to an abusive man. #abuse #abusesurvivor #Healing #healingjourney #quotes

Yesterday, I was watching Tiktok videos and I felt this overwhelming sense of grief for all the life I cannot live. I cried & I rarely cry these day but yesterday I did. It's so disheartening to see people living their lives knowing you can only watch from the sidelines. #pwme

Getting an X-Ray today for my numb leg.

Pretty sure the psychiatrist and therapist are going to need a drink or 10 after hearing all the shit I've been through over the last 15 years.

I'm also getting an X-Ray of my lumbar area to see why my leg is numb all the time. Referred for PT. 😂 We'll see how long that lasts. Not long I imagine based on my current level of stamina, strength, etc. #mecfs #pwme