Yes...the grip of my neurodegenerative disease is forever tightening. Yes ...I feel myself sporadically awash with hot, furious balls of fury when I am immobilised against my own will (#again #daily…

This is me at my worst. I have no control over my body whatsoever. My limbs have a mind of their own now. It feels like they are possessed 👻. The medical term for this is dyskinesia. 😮 📝🏥👩‍⚕️⚕️ -------------- The…

Suffering is an integral part of being human. Show me a human being who hasn't suffered and I guarantee you that they are chatting baloney. But suffering, as we all know is subjective…

The fact that our bodies work at all is A-M-A-Z-I-N-G. The way in which they maintain a delicate state of homeostasis, which allows us to see, feel, taste, move, create, destroy, love.…

behold! the complex cocktail of drugs i have to take every day, every 2-3 hours to not feel stiff, rigid and corpse-like. https://t.co/iZVez0EvOF

Fascinating programme...regardless of whether ot not you have PD. The drug was experimental,the neurosurgery procedure was experimental,the instruments used to perform the surgery were experimental.I am in awe of the courage of the participants.Kudos to the NHS team too.

Dyskinesia See the full video here: https://t.co/qV6BRlZ1s5 It is the last 1-2 minutes were the power of deep breathing is actualised. #youngonsetparkinsons #dyskinesia #yopd #meditation #breathingdeep #mindfulnesspractice #thepowerofnow https://t.co/NdhZot1L4J

Parkinson's meds stop working. I am weak. Vulnerable. And pretty useless,to be honest. I use this video only for illustrative purposes. Parkinson's meds (for a lot of people) are the differenc between living and merely existing. https://t.co/yhNXJSdFkN

The effects of dyskinesia on me. Apologies for background noise and poor picture quality. I am 100% amateur. But I think you still get the picture. https://t.co/NOk6510qMC

Huge thanks to our amazing @heartofengland PD patients who inspired this QI success https://t.co/5sESOfuJji

“I’m taking charge of my health so I can live the life I want.” Susan Mollohan on her decision to receive DBS:

Being diagnosed with #parkinsons before the age of 40 is rare and a lonely place #parkinsons52 https://t.co/RRpASLPTAG via ^Steve