scotswarrior84
@scotswarrior84
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My journey with Stage 4 Endo, PCOS & Fibromyalgia. I am a Warrior & a Fighter 💛🎗 💜 IG, FB & TikTok: scotswarrior84 / admin @endowestlothian
Joined October 2019
The honest truth about the reality of #Endometriosis. 💛🎗 Thanks to @WellbeingofWmen for a well written piece & the support of @endowestlothian
#EndoMarch #EndoWarrior #LightUpYellow #ChronicIllness #ChronicPain #GynaeHealth #IAm1In10 #EducateOurYoung #EndEndo #ThereIsNoCure
"It had fused my bowel and womb together... it was in the ligaments going out of my back." Suzanne was diagnosed with endometriosis 22 years after first getting symptoms. Read her story on @thefemedic: https://t.co/tWfM9mUwj2
#EndometriosisAwarenessMonth @endowestlothian
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What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️ At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop. A huge thank you to everyone who gave their time!
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Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝
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We already have a few people walking for ENDO1000, why not join them and raise money for endometriosis research? Link in our bio for our fundraising kit 🏃🏼♀️➡️
The Edinburgh Kiltwalk is coming… September 14 in the Capital. 🤩 Walk & fundraise for a cause close to your heart and make a real difference. Book now: https://t.co/zFQ7MvSJQs
#Kiltwalk2025 #KiltwalkEdinburgh
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@JDKirkBooks @DavidTennantPod He needed to tell her something the night he died. Although you feel there is something more sinister You could feel the tormented loss & grief of Sarah. The behaviour from Nick would swing from love to suspicion. It’s a book about grief, jealousy & AI. #PsychologicalThriller
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I haven’t read anything by @jdkirkbooks before. However, when this came up onto my suggestions & seen it was narrated by @davidtennantpod & @mslouisebrealey. This book drew me in with its many twists & emotional rollercoaster. Sarah has lost her husband Nick. (2/3)
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Finally managed to get back into books. However these days they are mainly audiobooks. I can listen while I get organised for the bath/bed routine. Plus I can also do it while I’m doing any housework & don’t need to have my ears listening for “Mummy/Mama”. (1/3)
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Now that we've selected our app developer, it's time to brainstorm! We kicked things off with a focus group last week. We'll be working with different groups of users over the development of the app to ensure it's user friendly and asking the right questions! @ENDO1000project
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Our project lead for clinical studies, @DrLucyWhitaker, on some endo myths!
Wellbeing of Women funded researcher Dr. Lucy Whitaker from the University of Edinburgh is breaking down the myths around endometriosis. For more information and tips on managing symptoms, click here: https://t.co/Cpb8PpR5gc
#EndometriosisAwareness #WellbeingOfWomen
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It was an absolute pleasure to meet up with some of our southerly ambassadors in London last night to get inspired for next steps. We’re excited to keep pushing the ENDO1000 project towards our goal of raising £1M to fund this crucial research #endometriosis #1in10 #talkendo
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"there’s been a complete reframing of this disorder as a neuroinflammatory whole-body condition" - ENDO1000 co-lead Philippa Saunders spoke to Scientific American about changing understanding of endometriosis away from it just being gynaecological https://t.co/rr7TJ9BSC0
scientificamerican.com
This disease is now genetically linked to widespread inflammation, asthma, migraines, and more
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Meet the ENDO1000 team! Francesca Hearn-Yates, PhD Researcher, on how her research fits in with ENDO1000. Head to the ENDO1000 website for more info about the team and sign up to our mailing list to stay up to date! (Link in bio) #womenshealth #oneinten #talkendo #endo1000
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Made a resolution to run a marathon, or climb a big hill*? You could do it sponsored, in aid of ENDO1000! Head to the Donate page for our fundraising toolkit or speak to us for help in getting started with sponsorship! *other activities welcomed! https://t.co/BjVGfxv0vP
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In the UK, women & those #AFAB 1 in 10 have #Endometriosis. 1 in 5 have #PCOS. I have both. Yesterday, another #GynaeCondition was added to my current 2! #Adenomyosis has joined the party! 1 in 10 have #Adenomyosis. What does that make me?!
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This might cause controversy but I loved #Rudebox so I don’t care if no one agrees with me. In my opinion it was a good song. 😀 @robbiewilliams
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Finally managed to watch @robbiewilliams on #Netflix. I have always loved RPW during & after his #TakeThat days. What a brilliant watch! It just goes to show that you shouldn’t judge someone’s choices when you don’t know the full story. #BeKindAlways
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Taking 22 years to finally be listened to & diagnosed with #Endometriosis!! This is NOT good enough. To wait another year to be diagnosed with #PCOS!! This is NOT good enough. This is being FAILED by those who swore an oath to prioritise the Health & Wellbeing of patients.
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It’s not just male medical professionals who have fobbed us off. It has happened with some female medical professionals. It’s about a lack of education & training. There is still too much #Misinformation around women’s health.
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Why is there so little money out into #WomensHealth?! Why do we have to fight to be believed & listened too?! Why do we have to continually go to any Medical Professionals to be #Gaslighted & #Ignored?!
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