ENDO1000
@ENDO1000project
Followers
299
Following
249
Media
87
Statuses
246
UK-wide project that will gather data from apps, smartwatches, healthcare records & biospecimens from 1000 people with endometriosis #TALKEndo💭
Edinburgh, UK
Joined September 2022
We thought we should probably re-introduce ourselves 👋 We're ENDO1000, and here is a run down of who we are and what we want to do. You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
2
6
10
WOMEN | HEALTH One year since I launched the £1 M fundraise #TALKEndo 💭 @ENDO1000project @exppect @horne_research @EdinburghUni “This fundraising effort is not just symbolic; it is essential to the progress of the ENDO1000 project. Every pound raised helps strengthen the
It's the one-year anniversary of our #TALKendo campaign! @MarieMacklin has shared her reflections on her website: https://t.co/58qqjUNuYk 💭 We want to say thank you to Marie, our ambassadors, and everyone who has supported ENDO1000 so far! 🎉
1
4
8
It's the one-year anniversary of our #TALKendo campaign! @MarieMacklin has shared her reflections on her website: https://t.co/58qqjUNuYk 💭 We want to say thank you to Marie, our ambassadors, and everyone who has supported ENDO1000 so far! 🎉
0
2
7
#MondayMotivation The beauty of Kiltwalk is that you can fundraise for ANY charity close to your heart!❤️Which charity will you be walking for in 2026? 👉 Tag them in the comments to let them know!
0
2
4
It can hold you back. 💼 Thank you to ambassadors Elizabeth, Lyndsey and Catherine for sharing their experience with us #TALKEndo 🩸
0
2
6
We loved last weeks UK Endometriosis Network event 👏 Taking place at the University of Edinburgh we heard so many speakers sharing the work they do to help those living with #endometriosis, and about the life-changing research taking place in labs across the UK.
0
2
6
Researchers from the University of Oxford have seemed to uncover why people with #endometriosis are more likely to develop other autoimmune disorders. Our co-director Andrew Horne offered comment in the @newscientist article! You can read more at the link in our bio 🔬
1
8
13
We’re at the UK Endometriosis Network today, with a number of partners, clinicians and researchers discussing what the future of endometriosis could be #TALKendo #EndoNet25
0
1
10
When did you last have to plan months ahead for work? ☝️ More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
0
2
7
Women | Health @ENDO1000project @exppect @EdinburghUni @horne_research 1 in 10 women suffer from Endometriosis. Fundraising campaign £1 Million for research with 1000 women. “The measure of a country and their government is how they support us women and our health”. Find out
0
2
4
WOMEN’S HEALTH Endometriosis Great article by @EndometriosisUK in @ScottishSun . A huge step would be for our governments to allocate a new pioneering budget into pioneering research. Proud of @ENDO1000project team and to be founding Ambassador at #TALKEndo 💭 where we
#Endometriosis doesn't just affect personal life. Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
1
4
8
Massive thanks to the awesome @endowestlothian for raising £1,400 in aid of endometriosis research @ENDO1000project Check out their Team JustGiving page
justgiving.com
Help Candice and Claire EWWL raise money to support The University of Edinburgh
Kiltwalk ☑️ What a fantastic day with these amazing ladies! 💛 I’m so proud of us and our wee team. A huge thank you to everyone who has donated to our JustGiving page – your support means the world. 💛 @ENDO1000project @exppect with Dionne, Tracy, Robyn, Holly & me!
0
3
5
#Endometriosis doesn't just affect personal life. Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
1
10
21
Kiltwalk ☑️ What a fantastic day with these amazing ladies! 💛 I’m so proud of us and our wee team. A huge thank you to everyone who has donated to our JustGiving page – your support means the world. 💛 @ENDO1000project @exppect with Dionne, Tracy, Robyn, Holly & me!
2
4
8
Good luck to @endowestlothian ladies for supporting @ENDO1000project through their participation in @thekiltwalk xxx
1
1
3
What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️ At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop. A huge thank you to everyone who gave their time!
0
6
16
WOMEN’S HEALTH 1 in 10 TALKEndo 💭 @ENDO1000project
@exppect @horne_research “It’s now time to #TALKEndo and do all that we can to support Professor Andrew Horne and his wonderful team here at Edinburgh University – drive forward this pioneering research that will transform
0
7
11
Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸 Which of these are you picking up? 👇
0
1
8
What is the ideal future of endometriosis diagnosis? You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
0
5
12
Really looking forward to this workshop we’re hosting on diagnosis in #endometriosis at the @UoE_EFI. Bringing together patients, clinicians and researchers to discuss current and future diagnosis in endometriosis. See you there! @exppect @EdinUni_IRR @ENDO1000project
1
8
23