ENDO1000
@ENDO1000project
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UK-wide project that will gather data from apps, smartwatches, healthcare records & biospecimens from 1000 people with endometriosis #TALKEndo๐ญ
Edinburgh, UK
Joined September 2022
We thought we should probably re-introduce ourselves ๐. We're ENDO1000, and here is a run down of who we are and what we want to do. You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
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Welcome to our new series 'What's that?' Wednesday! . Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis. First up, what are the three different types of #endometriosis?
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Our Co-Director Andrew Horne recently visited Professor Renรฉ Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. ๐ค
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We already have a few people walking for ENDO1000, why not join them and raise money for endometriosis research? . Link in our bio for our fundraising kit ๐๐ผโโ๏ธโโก๏ธ.
The Edinburgh Kiltwalk is comingโฆ September 14 in the Capital. ๐คฉ.Walk & fundraise for a cause close to your heart and make a real difference. Book now: #Kiltwalk2025 #KiltwalkEdinburgh
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Weโre so excited work with @jessicaknappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio ๐๏ธ. Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.๐ฉธ
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Did you know we take donations big and small? .The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target. Find out more about how to donate at the link in our bio โค๏ธ
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Our survey around endometriosis and brain fog is still open ๐ง . Think this relates to you? Take 15-20 minutes to help us in our research ๐.
Do you have endometriosis or suspected endometriosis? . Take part in our research that explores the prevalence of brain fog in people with endometriosis ๐ง . Complete the 15-20 minute survey at the following link:
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Did you know we have a newsletter? ๐จ. If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
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Meet the ENDO1000 team! . Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes ๐ฌ. Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
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Ever had people ask 'what is endometriosis anyway?' because we definitely have! ๐ฉธ. We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website
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It's been a week since the Edinburgh Marathon Festival! ๐. Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000. Head to our website for more about fundraising & donate at the link in our bio!
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Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals ๐
. So far they have raised an incredible ยฃ1,580, donate at the link in our bio!
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RT @horne_research: Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presentโฆ.
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RT @horne_research: What a day! Incredible energy & inspiring conversations at the #wce2025 joint WES/WERF #Endometriosis Interdisciplinaryโฆ.
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Our lead for discovery science at the World Congress on Endometriosis ๐.
Wonderful #wce2025 talk from @douglasagibson from Centre for Reproductive Health at University of Edinburgh about his exciting work showing that women with endometriosis have a unique hormone signature - a potential novel non-invasive diagnostic test for #endometriosis @exppect
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When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health. We have already made an amazing amount of progress, but we still need your support. Find out more at
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Ambassador Lynsey has been doing a fantastic job raising money for our research. Thank you Lynsey!. To donate head to our website: or to Lynsey's JustGiving page!. #1in10 #endometriosis.
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๐๐ ๐ฅน .Thank you so much to everyone who has donated via JustGiving and/or entered our competition! Together we have raised over ยฃ1000 for Endometriosis research so far - enough to fund one participant in the @ENDO1000project ๐ญ๐ฅฐ
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Priscilla took the stage at our charity dinner to talk about how ENDO1000 will be the key to better diagnosis times so that less women have to spend years in pain. We raised an incredible ยฃ22,000 from our dinner but we still need your help to reach our goal, link in our bio!
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