PZ
@pzneedsrest
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Music🎶 Film🎞️ Investigative Journalism🧐 Hot Chips🍟 Happiest by the sea 🌊 I used to do things, now living small as a #pwME #MillionsMissing 👻
Whadjuk Noongar Boodjar
Joined November 2013
Rest in Peace to every Palestinian person Israel has killed and never got an obituary, funeral, or flag raised for them.
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If you follow people who disparage pwME or the illness itself, to me that is the equivalent of following neo-nazis, racists, misogynists, terfs... If you are "hate following" you are still giving them oxygen by contributing to their follower count to build their platform.
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If anyone is wondering what happens when a person with severe ME has no support—they die. They become homeless. They disappear. Their stories are erased. At best, they’re remembered as tragic incidents of people who “lost their battle with mental health issues”
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Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this! All participants IG handles tagged at the end 💙💙 #SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
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On this Severe ME Awareness Day, I present to you my newest exhibition: “In the Absence of Light”. It is a deeply personal photographic essay that tells the story of my experience with very severe ME — the toughest period of my life. 1/2
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On #SevereMEDay we think of those who are suffering with the worst, most debilitating form of #MyalgicEncephalomyelitis If you've experienced #SevereME it will be one of the most difficult things you've lived through. #GreatestMEdicalScandal
https://t.co/KaXfHNSEFC
dialogues-mecfs.co.uk
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"All of these signals align with how people with ME/CFS describe their illness" Yep. If you listen to the language we use, it's pretty unmistakable. We know our bodies. #MyalgicEncephalomyelitis
#MillionsMissing
#pwME
#GreatestMEdicalScandal
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Sorry, not sorry to all the neurologists, neuropsychs and other #MyalgicEncephalomyelitis science deniers who insist we are depressed and anxious... You've gotta do something about those false illness beliefs! #GreatestMEdicalScandal
#MillionsMissing
#pwME
*None* of the 8 genetic variations associated with #MECFS overlap with those found for depression or anxiety #DecodeMEStudy
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I often think "when I'm better I'm going to find #pwME around my area and cook them meals and bring them treats and make sure they have clean and cosy bedlinen and just be a little helper" Because that's what I need, a little helper 😔
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A Palestinian state isn't some reward. It's a right. It's their country.
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It was just over a week ago that this investigation by @emilydugan ran in the UK. What is going on? Is this another warped strategy to deal with the increasing numbers of sick and disabled children?
New: the hundreds of parents being investigated for child abuse when they seek help or diagnosis for their sick children https://t.co/yfFZ4bgkNB
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⚠️ Please see below. Isla's mother is @Swiftsswallows . This is an absolutely terrifying situation for a grieving family. Does anyone in the UK have legal connections and can assist? #pwME
#MillionsMissing
#GreatestMEdicalScandal
Sarah Boothby, “Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed…”
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Palestine Film Index now has 700+ films, 50+ publications, & various other resources. we remain committed as we continue to work collectively on it's expanding form. as always, we hope it can be useful as tool in study & struggle towards liberation. https://t.co/pVAz1oYeAz
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$350 for critical medical appt needed by 8/4 No movement yet on this. Cannot reschedule. Trying to stay out of the hospital. Please help. Constantly being online and using this much energy is worsening my baseline.
Bedbound, multiply-disabled, chronically ill DV survivor struggling to survive, needs community support! • Crucial medical care and disability supports not covered by insurance/benefits • WL items to improve/maintain accessibility, safety, and care TYSM! (🔗 in next post)
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