PZ
@pzneedsrest
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Music🎶 Film🎞️ Investigative Journalism🧐 Hot Chips🍟 Happiest by the sea 🌊 I used to do things, now living small as a #pwME #MillionsMissing 👻
Whadjuk Noongar Boodjar
Joined November 2013
I often think "when I'm better I'm going to find #pwME around my area and cook them meals and bring them treats and make sure they have clean and cosy bedlinen and just be a little helper". Because that's what I need, a little helper 😔.
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It was just over a week ago that this investigation by @emilydugan ran in the UK. What is going on? . Is this another warped strategy to deal with the increasing numbers of sick and disabled children?.
New: the hundreds of parents being investigated for child abuse when they seek help or diagnosis for their sick children.
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⚠️ Please see below. Isla's mother is @Swiftsswallows . This is an absolutely terrifying situation for a grieving family. Does anyone in the UK have legal connections and can assist?. #pwME .#MillionsMissing .#GreatestMEdicalScandal.
Sarah Boothby, “Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed…”
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RT @atlajala: Palestine Film Index now has 700+ films, 50+ publications, & various other resources. we remain committed as we continue to w….
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RT @robynasaldino: $350 for critical medical appt needed by 8/4. No movement yet on this. Cannot reschedule. Trying to stay out of the hosp….
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RT @robynasaldino: Many of you are cool with allowing disabled people to suffer and die while simultaneously claiming to be in community an….
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And who funds you?.
@ZacharyGrinDPT @davidtuller1 The crowdfunded fellah could remove it. But chooses not to.
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"The deep phenotyping has been done, there's nothing wrong, physiologically, with the patients' bodies. ". Where do you start with this? .When people only read what they want to and deny the biomedical science?. Just stop. Your ignorance is on full display.
@Squashedhedgi @ZacharyGrinDPT @davidtuller1 (1/2) It's not a prejudice, it's a conviction that the disorder a psychiatric (or functional, if you wanna be politiically correct), in nature. The deep phenotyping has been done, there's nothing wrong, physiologically, with the patients' bodies. The idea that we're not seeing.
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The way you guys have a big sook and troll patients when people are not subservient to you and your ideology begs the question of how well adjusted you all are. If you have a genuine interest in this field, listen to the experts researching the physiology of the disease.
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Also as evidenced by your assertion that pwME defending themselves means we (insert sarcasm) "are all totally mentally healthy normal well-adjusted people". Like, you expect us to just keep taking your bullshit?!.
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⬇️.
@DrMBotha A study was done a couple of years ago analysing comments from discussions on the subreddit r/Medicine. "Doctors’ attitudes toward specific medical conditions".
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Yes, #pwME should just standby while doctors/medical staff share their nonsense opinions and misinformation about their disease. 🫠. Nevermind the stigma and contempt of ME/CFS held by doctors as evidenced by commentary in their own social media forums (study below in next post).
@ZacharyGrinDPT @davidtuller1 Seems to be one of those places where CFS patients coordinate attacking people on public forums who have a different opinion on what the CFS is. Also, another proof that CFS patients are all totally mentally healthy normal well-adjusted people.
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RT @SaveLizNevra: 🚨 Only *7 DAYS* until August rent is due!. I need 642.43£ or $855.12! Please keep donating, sharing. ❤️ Rent PayPal: http….
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RT @geoffers1967: The NHS must take measures to STOP Dill deteriorating - Sign the Petition! via @UKChange.
change.org
The NHS must take measures to STOP Dill deteriorating
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This is why we have to look after each other. We can't become numb to the suffering of others. Hold on to your humanity.
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