Lupus Survivors
@lupussurvivors
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Empowering lupus survivors by sharing our perspectives on the impact chronic illness has had on our mind, body, and spirit. #lupussurvivors
Joined March 2009
Chances are those with #lupus have grappled with the question of managing symptoms at home or going to the ER during an apparent flare-up. Check out some guidelines around the topic here that may help making a decision easier: https://t.co/gyomIQGrO1
mylupusteam.com
“Should I stay or should I go?” Chances are you’ve grappled with that question during an apparent lupus flare, trying to suss out if your symptoms could be
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Many people with #lupus notice that they don’t feel well after drinking alcohol, and these unpleasant side effects can linger for days or trigger a flare-up. Learn more here about the impact of alcohol on lupus symptoms: https://t.co/3lUNWbqPAU
mylupusteam.com
Many people with lupus notice that drinking alcohol makes them feel unwell, and these unpleasant side effects can linger for days or trigger a flare-up. Dr
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Most #lupus symptoms fall within the broad categories of skin and hair symptoms, pain, generalized symptoms, neurological symptoms, and symptoms that affect the blood or urine. Learn more about symptoms that could occur here: https://t.co/iHDsXT36vn
mylupusteam.com
Systemic lupus erythematosus (SLE, also known as lupus) is an autoimmune disease. This means the immune system makes proteins called autoantibodies that ca
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We’re 2 weeks away from Lupus & You: After Dark! This event will take on the often-overlooked topic of sexual health and #lupus, including how menopause can affect intimacy, confidence, and connection. Don’t miss this candid, empowering conversation: https://t.co/uazFjhuA3p
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Medicare patients in 6 states who have chronic pain will soon have some treatment decisions made by AI. Medicare is trying to reduce healthcare costs by denying coverage for "low value" treatments like epidural steroid injections & spinal cord stimulators.
painnewsnetwork.org
By Pat Anson Medicare patients in six states who need epidural steroid injections, cervical fusions, spinal cord stimulators, arthroscopic knee surgery and other treatments for chronic pain will soon...
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The first time you get a fibro flare it can be scary. You are going along in your day to day life trying to cope with your fibro symptoms of fatigue, pain, brain fog, sleep problems & suddenly you feel like you have been run over by a bus. It's a flare! https://t.co/8emfIZAbyU
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#Anemia and other #BloodDisorders are common in people with #SystemicLupusErythematosus. Explore how lupus can affect your blood cells, possible symptoms, and treatment options here: https://t.co/MsXPMZAqbR
mylupusteam.com
If you’re living with lupus and find yourself feeling more drained than usual, it might be a sign the lupus is affecting your blood. Anemia and other blood
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💜 As September ends, we reflect on all your support has made possible & prepare for the year ahead. Your gift before Sept 30 lays the foundation for breakthroughs to come—creating better treatments, brighter outcomes & hope for a cure. 🌟 Give today: https://t.co/r8YiG3PZBL
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Hair thinning with #Lupus? 😟 Biotin is often recommended, but does it actually work? Here’s what you need to know about this supplement: https://t.co/qkKCr82ira
mylupusteam.com
Thinning hair is a common concern for people with lupus, including systemic lupus erythematosus (SLE), the most common type of lupus. If you’ve ever Googl
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A reminder as lupus survivors we are always balancing living life with safeguarding our health. Get well soon Nick! #lupus #lupussurvivor #lupuswarrior #lupusawareness
https://t.co/Kha5JfX99Z
pagesix.com
"This is a great lesson to take care of YOU or YOU won’t be able to take care of everyone else," the father of eleven kids wrote on Instagram Friday.
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CDC giving more flexibility to doctors to make decisions appropriate for patients with chronic pain. #chronicpain #fibromyalgia
npr.org
The updated recommendations seek to course correct after guidelines from 2016 were criticized for harshly limiting access to needed pain medication.
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"Now it was very real that I was dealing with chronic illness and would be doing so for the rest of my life. I wouldn't wear heels again." #lupus #chronicillness #chronicpain #fibromyalgia #lupussurvivors
healthline.com
The author, who has fibromyalgia and chronic fatigue syndrome, among other conditions, talks about her cyclical grieving process for her old life, healthy body, and dreams that are no longer a fit...
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Results of the MyLupusTeam survey identify members' most common lupus symptoms: fatigue, painful swollen joints, sleep problems, pain, and skin rashes. #lupus #autoimmuneillness #lupusawareness #lupussurvivor
mylupusteam.com
Lupus can come with a wide array of symptoms, including fatigue, insomnia, and skin rashes. In a survey of more than 500 members of MyLupusTeam, respondent
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Abortion bans threaten access to an inexpensive drug used to treat lupus. #methotrexate #lupus #autoimmuneillness #lupusawareness #lupussurvivors
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Drugs for people with suspected MS could prevent debilitating symptoms https://t.co/ibKJBMMRIP via @MailOnline #MultipleSclerosis #MS #treatment #medicine #drug #autoimmune #autoimmuneillness #debilitatingillness
dailymail.co.uk
In a world-first trial, British experts will explore whether treating patients at the earliest possible stage could prevent some from deteriorating in the first place.
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#Lupus drug Afimetoran may prevent symptoms, and reverse damage by inhibiting the function of cellular proteins that trigger immune system. #autoimmuneillness #lupusawareness #lupussurvivors
https://t.co/AUMpBiE3Bw
medicalnewstoday.com
Lupus is an autoimmune condition. It has a variety of symptoms and can affect many body parts. It is difficult to diagnose. Treatment can help manage symptoms.
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Chronic pain patient suggests a 3-pronged approach to managing pain. #fibromyalgia #chronicillness #chronicpain #lupussurvivors
https://t.co/HKWvowofWa
painnewsnetwork.org
By Beth Thorp, Guest Columnist The CDC estimates that 50 million Americans – just over 20 percent of the adult population – have chronic pain. About 20 million have “high-impact chronic pain,” which...
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Results from a research study suggest that spiritual support may improve mental and physical health outcomes for chronic illnesses. #lupus #autoimmuneillness #chronicillnes #lupusawareness #lupussurvivors
nicabm.com
Can spirituality cure chronic illness? Maybe not, but certain aspects of spirituality can contribute to the healing process. Here's the latest research.
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People with lupus are at higher risk of depression and anxiety because of all the stressors a chronic condition can bring on. Here’s how to cope. #lupus #autoimmuneillness #lupusawareness #lupussurvivors
https://t.co/dkob6W9xlm
everydayhealth.com
Managing a chronic condition like lupus can be stressful. Here’s what to know about the risk of mood disorders and how to manage mental health.
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A new research study reveals the risk factors associated with oral lesions in patients with lupus. #lupus #autoimmuneillness #lupusawareness #lupussurvivors
https://t.co/nlyUSVWbCp
lupus.org
New research finds oral lesions, including ulcers, redness, and spots in the mouth, are linked to several risk factors in people with lupus.
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