Lupus Foundation of America
@LupusOrg
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Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.
Washington DC
Joined February 2009
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.
@IANMHARDING
& other stars from
@ABCFpll
#putonpurple
for
#lupusawareness
! Join them 5/16 -
http://t.co/4u7rA8ECji
http://t.co/BAr6KzYr6G
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1K
Hydroxychloroquine (
#Plaquenil
/ HCQ) and chloroquine (Aralen) are vital medications for many
#lupuswarriors
.
Join our
#WithoutMyHCQ
campaign NOW and help us ensure people with
#lupus
have access to their meds by reaching out to your members of Congress❗️
50
604
789
.
@IANMHARDING
joins us for
#PutOnPurple
! Wear purple & tell people why so others
#KnowLupus
http://t.co/4u7rA8E4tK
http://t.co/gm57T7qhmQ
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If you are a person with
#lupus
experiencing challenges accessing
#methotrexate
(
#MTX
), please email access
@lupus
.org with details of your experience.
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There’s a lot of discussion today of Selena Gomez’s announcement regarding a kidney transplant due to lupus kidney disease (nephritis).
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We applaud
@selenagomez
for taking the time to take care of herself, & for highlighting this hidden aspect of lupus.
Selena Gomez taking time off after 'anxiety, panic attacks and depression' due to lupus
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LFA staff Nicole Padilla & Wendy Rodgers, who's also a
#lupuswarrior
, attended the
@iHeartRadio
release party last night for
@selenagomez
's new album, Rare.
Congrats on your new album and thank you for continuing to share your story and being a voice for people with
#lupus
.💜
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Tune in Monday and Tuesday for our fellow
#lupuswarrior
, Selena, and Francia's full interview📺
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.
@IANMHARDING
is supporting
#PutOnPurple
Day, are you? Help us raise $10K for lupus research!
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.
@MoTancharoen
was diagnosed with
#lupus
at 15. In her 20’s, lupus began to attack her organs.
Watch Maurissa’s video to learn more about her lupus story and join her in making a difference in the fight to end lupus!
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Methotrexate is an important part of lupus care. We are aware of reports that some people are having difficulty accessing methotrexate in the wake of the Supreme Court’s ruling in the Dobbs case.
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Thanks to
#lupuswarrior
&
@AgentsofSHIELD
co-creator and Executive Producer,
@MoTancharoen
, YOU have the chance to be a S.H.I.E.L.D Agent!
Make a donation to enter to win a trip for you and a friend to LA, visit the set, meet cast members, & much more!
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If you were playing the 3pm game on
@hqtrivia
, today, then you heard
@ScottRogowsky
talk about
#WalktoEndLupusNow
and
#LupusAwarenessMonth
.
Thank you, Scott, for raising awareness. You rock!
#hqtrivia
#hqties
Hey
@hqtrivia
it’s
#LupusAwarenessDay
and someone I love is impacted by this disease. She also happens to be a big fan of
#hqtrivia
Do you think we can get Quiz Khalifa aka
@ScottRogowsky
to wear purple and shout out Team Savannah?!
#LupusAwareness
#LupusAwarenessMonth
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We’ve hit our first
#GameOnToEndLupus
milestone with the team raising $50,000 (celebrate emoji) – and day one isn’t even over! To celebrate, our GOTEL partner
@CORSAIR
is giving away some amazing products!
To enter, like and RT this post!
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BREAKING NEWS❗️ President Trump signed into law today a FY 2019 spending package that includes more than $14 million in new funding specifically for lupus research and education.
Thank you lupus advocates for helping to secure this significant victory for lupus research!
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13-year-old Amarissa won’t let
#lupus
stop her from training w/ gold medalist
@gabrielledoug
.
#MyWish
http://t.co/FevCDHYjiq
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BREAKING NEWS: moments ago, the House of Representatives passed two funding packages providing nearly $19 million for lupus-specific programs and $41.7 billion for the
@NIH
!
Thank you to every lupus advocate who raised their voice to make this possible. Learn more:
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You may have heard that a new virus called coronavirus is spreading around the globe.
People with
#lupus
are at increased risk of infection. Take care of yourself and lower your risk.
#COVID2019
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Lupus Awareness Month kicks off today! We have tons of things going on and can't wait to pump up the purple! Make sure to use our social hashtags throughout the month so we can follow how you'll be spreading awareness!
#LupusAwarnessMonth
#LAM18
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We continue to work hard for you through this pandemic. Today, we issued a joint statement to the White House
#Coronavirus
Task Force, Congress + nation’s governors urging them to take action to ensure ppl with
#lupus
have access to hydroxychloroquine (Plaquenil) and chloroquine.
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We partnered with national patient orgs to submit a letter to Congressional Leadership and the Administration calling for implementation of needed patient protections to include ensuring people with
#lupus
continue to have access to hyrdroxychloroquine (Plaquenil).
#coronavirus
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Lupus is the 10th leading cause of death among women between the ages of 15 and 24 years old. Help us change these statistics!
A portion of proceeds from every “Looking Forward” print sold will support a
#lupuswarrior
. Go to to make a difference today!
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We're excited for actor
@ianmharding
to join us at our
#LA
#WalkToEndLupusNow
tomorrow! Watch his
#lupus
story now
http://t.co/G2mpgtpxbU
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Art brings people together. It tells a story. It makes you feel something...
Today is the very last day to get a limited edition photo+a message from
@IANMHARDING
, while also supporting the millions living with lupus.
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Though we don't always look sick, we are. Today, we will shed light on just how cruel this disease is.
In honor of
#LupusAwarenessMonth
share your story using pictures or text using
#LupusAwarenessMonth
and
#MyLifeWithLupus
hashtags.
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Special thanks to
@IANMHARDING
@WhoopiGoldberg
the cast of
@AgentsofSHIELD
@TimGunn
and other
@lifetimetv
stars for supporting
#KnowLupus
!
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Help us raise lupus awareness and make
#lupus
visible by watching and RTing our new What is Lupus video featuring individuals from the lupus community!
Show others what it's like to diagnose, treat, and live with this disease.
#LupusAwarenessMonth
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The day is finally here!
#LupusAwarenessMonth
has officially begun!
This May, you can help us get closer to our mission of a life with no lupus by sharing our messages and shareables to raise lupus awareness and funds for more research, and ultimately a cure!!!
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We heard a storm hit the city over night?❄️🌬 We are that storm!
Headed off to meetings with members of congress!🤝 The snow won't stop us from advocating for our health!💪✊️
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.
@ianmharding
has been raising awareness & funds for
#lupus
in honor of his mom Mary. Watch their story now: !
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In honor of his late aunt,
@52Mack_
wore these
#lupusawareness
cleats.
Thank you for your continued support, Khalil!
@ChicagoBears
#MyCauseMyCleats
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Happy birthday
@IANMHARDING
🥳!
To celebrate, he's released his “Looking Forward” print. Each one comes with a message from Ian, himself! ONLY available for 10 days at & each print raises money for lupus💜
Let’s celebrate by doing some good together!
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Kidney disease is one of the leading causes of disability and early death in lupus.
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The health of all people with lupus is of utmost importance to the Lupus Foundation of America. We are working with our Medical-Scientific Advisory Council to guide our efforts going forward so we can help ensure that people with lupus have access to the treatments they need.
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BREAKING NEWS: the House of Representatives has approved legislation that would provide $17.5 million for lupus-specific research programs at
@CDC
and
@DeptofDefense
, as well as significant funding boosts for
@NIH
and
@MinorityHealth
#LupusAdvocacy
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We're thrilled to turn
@EmpireStateBldg
purple 10/8 for
#lupus
research & awareness. Join the fight
#ESBgoespurple
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Congratulations to filmmaker and
#lupuswarrior
@ava
on receiving the 27th annual Dorothy and Lillian Gish Prize for elevating women and people of color through her work! via
@thr
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Most symptoms of
#lupus
aren’t often visible, but can affect every aspect of life; physically, mentally and emotionally, relationships etc.
Just because people can't see the impacts of lupus, doesn't mean they don’t exist - help us Make Lupus Visible this
#LupusAwarenessMonth
!
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Actor
@IANMHARDING
has been working to raise
#lupus
awareness in honor of his mom Mary. See how he says Thanks, Mom!
http://t.co/SuzIDRchcz
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BREAKING NEWS: The House of Representatives passed a spending package including more than $14 mil in funding for lupus-specific research. This package now heads to the desk of President Donald J. Trump, who is expected to sign it into law.
Read more:
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***
#Coronavirus
Updates
@CDCgov
has recommended that people with serious underlying health conditions stay home & avoid other people as much as possible through 3/30/20. Serious underlying health conditions include any condition that weakens your heart, lungs, or immune system.
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Global experts agree
#hydroxychloroquine
(Plaquenil) shortages due to
#coronavirus
must be addressed.
#Lupus
flares can increase in as little as 2 weeks after stopping the medication.
Learn more.
#LupusResearch
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It’s
#WorldLupusDay
! As you rock your best purple outfit or accessories, join the global lupus community and take ACTION today to Make Lupus Visible! (🧵1/2)
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A behind the scenes peek at our latest
#LupusNow
story w/
@IANMHARDING
& his mom Mary, who is living with
#lupus
.
http://t.co/r422t0QWOA
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.
@AngryJoeShow
is on the front page of
@Twitch
right now for the
#GameOnToEndLupus
event! Check em out!
#LupusAwarenessMonth
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The Lupus Foundation of America stands with Black Americans and communities of color against racism, injustice and violence – and we are committed to addressing the systemic inequalities that impact the health of people with lupus.
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Our friend, Wendy Rodgers, writes a letter in
@HuffPost
telling her lupus story and thanking
@selenagomez
.
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Today is
#PutOnPurple
day. Share your reason for wearing purple and post a picture using the hashtag to show how you went purple today!
#LupusAwarenessMonth
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Today,
@AstraZeneca
announced the
@US_FDA
approval of Saphnelo™, a new treatment for adults with moderate to severe SLE.
#LupusResearch
also shows Saphnelo reduces disease activity, improves skin
#lupus
and joints, and the ability to taper down steroids.
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@steelers
@SteelersCR
@Chargers
@_tscott78
@Bstreetshoes
@ChargersCR
When
@Ravens
'
@ALevine41
found out his sister, Alisio, was diagnosed with
#lupus
, he knew exactly which cause he wanted to raise awareness for – his cleats are for Alisio and
#lupuswarriors
alike!
@RavensCommunity
#MyCauseMyCleats
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@Cocochaneladair
@theboimerch7
@4MyCiTy2
@nazim_mohammaad
@AmericanCancer
@StJude
Happy to report that we now accepts
#Dodgecoin
and other types of cryptocurrencies!🙌 Check it out:
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If you're a
#lupuswarrior
who can't go without your HCQ (
#hydroxychloroquine
/
#Plaquenil
), continue raising awareness of the shortage of this med and
#chloroquine
(Aralen) by sharing this image, the hashtag
#WithoutMyHCQ
and the consequences of not getting these meds.
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Powerhouse
#spoonie
advocate &
#lupuswarrior
,
@morethanmySLE
has been making his voice heard on the Hill for the past 2⃣ years, fighting for patient rights & continued research funding.
Add your voice to the fight this March at the National
#LupusAdvocacy
Summit!
#RisingVoices
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Lupus is a global health problem that affects people of all nationalities, races, ethnicities, genders and ages.
During today's
#WorldLupusDay
, share the following expert-led report, published by
@WorldLupusFed
, to improve the global understanding and impacts of
#lupus
.
#LAM19
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Thanks to all lupus advocates! Today the US House of Representatives passed the Omnibus Appropriations bill, that will boost funding for lupus research and education programs!
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BREAKING NEWS! The House of Representatives just passed legislation that includes more than $20 million in lupus-specific funding and $47 billion for the
@NIH
in fiscal year 2021!
#LupusAdvocacy
To learn more about this funding and next steps, check out our post:
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Today, the House of Representatives passed legislation including $5M in funding for the Lupus Research Program at the DoD. Our Foundation& lupus advocates led the work to establish this program & we continue to make our voices heard to ensure continued funding.
#lupusadvocacy
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Our heartfelt condolences go out to the family of
@janice_freeman
, who competed on season 13 of
@NBCTheVoice
in 2017 and this weekend lost her battle with lupus.
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Happy
#InternationalSelfCareDay
! Managing lupus can take a lot out of us; make sure you take the time to take care of yourself today and every day. You deserve it! 💜
Here are some tips to promote physical and emotional health:
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We're excited to be with over 350 advocates at our 2019 National Lupus Advocacy Summit today. Follow us over the next two days for updates on
#lupus
research, treatments and more!
#LupusAdvocacy
#RisingVoiceFollow
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Whether you're a
#lupuswarrior
or support a warrior, we're all on a mission to defeat lupus. Happy
#NationalSuperheroDay
!
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Learn how we're advocating for
#lupuswarriors
to ensure you have access to your
#lupus
medications as potential treatments for
#coronavirus
continue to be studied.
#COVID19
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We are working with
@ArthritisFdn
to urge state pharmacy boards and other key stakeholders in the drug supply chain to take immediate action to ensure the availability of vital medications for
#lupuswarriors
and those living with rheumatoid
#arthritis
.
Read more.
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#LupusAwarenessMonth
is off to an exciting start as Congress released a bill including $13M in new lupus funding.
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.
@MaskedSingerFOX
host,
#lupuswarrior
, and advocate
@NickCannon
is dropping on your TL to wish you a happy
#PutOnPurple
Day today and hopes you'll get involved and continue to show your support for the
#lupus
community during
#LupusAwarenessMonth
this May!
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40% of all people with lupus, and as many as 2/3 of children & teens w/ lupus, will develop kidney complications.
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Glad to see the
@TODAYshow
spreading awareness with great, educational coverage this morning! Visit our Facebook page to join the discussion
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#Hydroxychloroquine
(
#Plaquenil
) is currently being studied as a potential treatment for
#coronavirus
but there's no evidence that taking Plaquenil is effective in preventing
#Covid_19
.
Read more.
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Watch
@IANMHARDING
accept the Barlin Family Award for his work as a celebrity awareness ambassador. Read more:
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Despite this, 73% of Americans between 18 and 34 know little or nothing about lupus.
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A new treatment for
#lupus
nephritis has just been approved!
Today, we heard news from
@AuriniaPharma
that the
@US_FDA
has approved Lupkynis™ as the 1st-ever oral therapy for lupus nephritis.
#LupusResearch
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#Lupus
is an unpredictable & misunderstood autoimmune disease that affects ~1.5M Americans, including
@AntonioGibson14
’s cousin.
This disease is difficult to live with, diagnose & treat & we can’t thank Antonio enough for helping us raise awareness of lupus!
#MyCauseMyCleats
.
@AntonioGibson14
explains the meaning behind his
#MyCauseMyCleats
and why he chose to support
@LupusOrg
!
Bid ➡️
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Look at this wave of purple!
Here are the many
#lupus
advocates who went to Capitol Hill this morning to speak to their representatives! 💜💜💜
#LupusAdvocacy
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Today is the day! We’re excited to make change at the 2018 Lupus Advocacy Summit!🏛 If you’re here with us or following along virtually via Tw or our FB live interviews, join the conversation using
#LupusAdvocacy
#RisingVoices
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Happy
#PutOnPurple
Day from the LFA National office!💜 Pump up the purple and make sure to use the
#PutOnPurple
and
#POP19
hashtags to show us how you decided to Go Purple to End
#Lupus
and share your reason for participating.
#LupusAwarenessMonth
#LAM19
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BREAKING NEWS: Last night, the Appropriations Committee in the House of Representatives approved $10 million in funding for the Lupus Research Program at the Department of Defense!
Thanks to every lupus advocate who raised a voice to support this program!
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Having any chronic disease, including lupus, can lead to feelings of helplessness, rejection and sadness and can take a toll on your well-being.
Take the time to learn about the signs of clinical depression and what to do if you feel you're depressed.
#MentalHealthAwarenessDay
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BREAKING NEWS: 2020 will be the first time in U.S. history that Congress has provided more than $15 million for lupus-specific programs in a single year – beating the previous high by more than $4 million.
Learn more here:
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Know the signs and symptoms of
#lupus
and use this video to learn more and spread awareness during
#LupusAwarenessMonth
.
#LAM19
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Living with lupus means operating on a daily basis when every thing in our body is telling us, NO!
Whether its family, friends, pets, an awesome job ect show us what your motivation is that helps you push through every day.
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Good morning! It's day 3 of
#GOTEL2023
, and we're just $43K from our goal. Will we hit $175K to help fund research and information for people with lupus?!! {dramatic chord} We need your help! Pick a streamer, get your popcorn, participate, and donate:
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Wondering why you have a rash across your face, why your joints ache, or why you’re always tired? Watch this short video and ask yourself if your symptoms could be related to lupus. Please RT/Share!
#LupusAwarenessMonth
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BREAKING NEWS❗️ The federal spending package including nearly $20 million in lupus-specific funding and passed by Congress has now been signed into law by the president!🙌
#LupusAdvocacy
BREAKING NEWS: the House has approved legislation providing nearly $20 million for lupus programs at
@CDCgov
,
@DeptofDefense
&
@MinorityHealth
, plus $45 billion for
@NIH
.
The package is expected to be passed by the Senate & signed into law by the president next week. Learn more:
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Have you ever had trouble explaining lupus to others? No matter how hard we try, some people just don't get it! But, don't worry, we've got your back!
Take a look at 10 talking points that will help you educate those that aren't
#lupuswarriors
.
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Kick off
#LupusAwarenessMonth
with us, and let's make lupus visible together!
Most lupus symptoms aren't visible, but the impact of this disease is real. Join us in raising lupus awareness this May! Learn more and see how to get involved at
#LAM
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We’re so proud to have teamed up with NFL's
@Chargers
star
@AntonioGates85
to design his custom lupus awareness cleats that he’ll wear this Sunday for
#MyCauseMyCleats
. Find out how lupus has impacted him and see more photos of his custom cleats…
Excited to unveil my custom-designed lupus awareness cleats that I’ll wear this Sunday to support
@lupusorg
and to pay tribute to my sister Pam. Read about
#MyCauseMyCleats
story and check out more pics here:
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It’s
#PutOnPurple
Day!
Join us in spreading lupus awareness and raising money for childhood lupus research.
Share your purple by tagging us and using
#PutOnPurple
and
#POP18
– and don’t forget to donate by visiting
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It takes nearly 6 years from the time people with lupus first notice symptoms until they obtain a correct diagnosis. This is unacceptable and must change!
You can help change this! Join us as we begin our 6⃣-day countdown to
#LupusAwarenessMonth
!
#LAM19
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We’re proud to announce that we've committed $3.8 mil in funding over 5 yrs to support an innovative new lupus study
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We've been talking about all the reasons movement can help your body cope w/ lupus. We know it can sometimes be challenging, so let’s start slow
This week, we’ll feature 1 low-impact exercise each day. Doing 8-12 repetitions of each gives the most benefit, but don't over-do it!
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Stand with
#lupuswarriors
around the globe and add your name to the list of those that have pledged to raise awareness of lupus, so more can understand the seriousness and complexity of this awful disease.
#WorldLupusDay
#LupusAwarenessMonth
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Earlier today, the Senate Appropriations Committee advanced their 2020 Defense funding bill which includes
#lupus
as a priority condition eligible for research funding!
Thanks to every lupus advocate who spoke out in support of this critical funding!
#LupusAdvocacy
#RisingVoices
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