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Lupus Foundation of America Profile
Lupus Foundation of America

@LupusOrg

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Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.

Washington DC
Joined February 2009
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@LupusOrg
Lupus Foundation of America
1 day
@Essence Already stopped by? Tag us in your photos, we’ll be reposting all weekend!.
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@LupusOrg
Lupus Foundation of America
1 day
We’re live at #EssenceFest (@Essence) in New Orleans! 💜 Come see us at Booth #2521 to connect, grab materials, and learn how you can support people living with #lupus. 📲 Don’t miss a moment! Be sure to follow us on Instagram for live updates:
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@LupusOrg
Lupus Foundation of America
1 day
🫀 #FactFriday: People with #lupus face a higher risk of heart disease. Common risk factors like high cholesterol, high blood pressure, and diabetes are more common—along with other contributors like low activity and certain medications. 💜 Learn more:
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@LupusOrg
Lupus Foundation of America
2 days
Approximately 25% of Americans with #lupus receive healthcare through Medicaid. Read our response to #HR1's passage & how its cuts to #Medicaid will create even more barriers to accessing the care that's so critical to living with this unrelenting disease:
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@LupusOrg
Lupus Foundation of America
2 days
Have you ever thought of joining a support group? They offer a place to build community in an understanding environment where people with #lupus come together to share & help each other. Find out more about our support group network:
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@LupusOrg
Lupus Foundation of America
3 days
RT @Chocolatte1516: Just got nationally featured by the @lupusorg 💜. Lupus doesn’t define me. I’m healing loudly for those who suffer silen….
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@LupusOrg
Lupus Foundation of America
3 days
🏃💜 Running the 2025 TCS New York City Marathon with a secured entry? You can still join the Lupus Foundation of America’s inaugural team!. Get team gear, training support, and more — all while raising funds to help end #lupus. ✨ Reply to learn how to join!
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@LupusOrg
Lupus Foundation of America
4 days
☀️ July is #UVAwarenessMonth! UV exposure can increase the risk of #lupus flares. Discover how UV light can impact people with lupus, and learn ways to protect yourself indoors and out. Learn more and stay tuned all July for more sun safety tips:
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@LupusOrg
Lupus Foundation of America
5 days
As early as tomorrow morning, the Senate will vote on H.R. 1, the One Big Beautiful Bill Act, which could significantly impact the Medicaid program. Contact your Senators today & urge them to vote no & protect access to health care for people with lupus:
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@LupusOrg
Lupus Foundation of America
5 days
💜 “It’s in those moments where I see people get permission to not be okay.” In our new blog, lupus warriors Kevin, Jason, & Richard share what it means to live with #lupus as men — & how feeling supported makes all the difference. 🔗 Read their stories:
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@LupusOrg
Lupus Foundation of America
5 days
Congratulations to everyone who took on the 2025 Virtual 6 Challenge!. More than 380 challengers completed 6 miles in 6 days—raising over $66,000 to support #lupus research, education, and support services. Thank you for every mile, every donation, and every story shared.
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@LupusOrg
Lupus Foundation of America
5 days
As #MensHealthMonth wraps up, we’re keeping the conversation going. Men with #lupus face barriers to care—from delayed diagnosis to limited support. 💙. Catch up on this month’s resources and keep supporting men with lupus year-round:
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@LupusOrg
Lupus Foundation of America
5 days
Have a car, truck, boat, or RV you no longer need? 🚗 Donate it to the Lupus Foundation of America and help fund research, education, support programs, and resources for people living with #lupus. 💜. Turn your unused vehicle into hope—learn more:
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@LupusOrg
Lupus Foundation of America
6 days
💜 Meet Ajah — a #lupus warrior, creative, wife, and advocate diagnosed at just 13. Lupus has shaped every part of her life, but it hasn’t silenced her. She shares her story to uplift other young, queer, creative warriors. Read Ajah’s full story:
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@LupusOrg
Lupus Foundation of America
7 days
We’re heading to #EssenceFest (@EssenceFest) next week and can’t wait to connect with new faces and our #lupus community in New Orleans! 💜 Come visit us in the Community Hub to learn more about lupus, pick up resources, and meet our team!
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@LupusOrg
Lupus Foundation of America
7 days
🎉 Here are June's top 20 Facebook birthday fundraisers! We’re so grateful for your dedication and impact. 🎂 Got a birthday coming up? Celebrate with a fundraiser for the Lupus Foundation of America! Fuel #lupus research, support, education, and more:
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@LupusOrg
Lupus Foundation of America
7 days
RT @jvaktv: Built another PC for the @lupusorg GOTEL Charity with @cococonfession! Nothing like another fresh rig to help level up for a gr….
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@LupusOrg
Lupus Foundation of America
7 days
RT @LAlupusLady: It takes “an average” of 6 years for a person to get accurately diagnosed with #lupus. One step/mile at a time. Support….
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@LupusOrg
Lupus Foundation of America
7 days
💜 Meet Jim. He shared this photo to show the side of #lupus many don’t see—hospital rooms, IVs, and tough moments that often go unseen. This #MensHealthMonth, help break the stigma. If this feels familiar, you’re not alone. Share your photo:
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@LupusOrg
Lupus Foundation of America
8 days
It's #NationalSunglassesDay 😎 DYK 1 in 7 people with #lupus find that UV rays from sunlight or indoor lighting make their lupus symptoms worse? ➡️ Swipe to see fellow lupus warriors rocking their shades! 🕶️ . Learn more about managing light sensitivity:
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