Lupus NI
@lupus_ni
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Lupus Northern Ireland is a voluntary support group of @lupusuk. Our aim is to raise awareness of the condition and provide support to people with #lupus in NI.
Northern Ireland
Joined September 2017
Join us this Saturday for our support group meeting and a chance to hear from Lupus Specialist Nurse Cathal Boyle. https://t.co/ZyWD0Ln3Jk
#lupus #BelfastHour
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Today is #WorldLupusDay 💜 Lupus is a chronic autoimmune disorder where the immune system of the body attacks itself, affecting around 1 in 1,000 people living in the UK. Learn more about #lupus at https://t.co/4QcJNaoKk0.
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Lupus NI meet ups are back! First up on Saturday 8th April we’re organising a casual coffee get together at 2 Royal Avenue, Belfast at 11am. Don’t worry if you can make it, we hope to announce another meeting with a guest speaker soon! https://t.co/y0t75X12To
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Today kicks off #LupusAwarenessMonth! October is all about raising awareness of #lupus which affects around 1 in 1,000 people living in the UK. Let's support our community together! 💜
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If you’re interested in attending support group meetings, remember to fill in our survey to have your say on how they should run 👇🏻 #Lupus
After taking a break during the pandemic we’re beginning to plan for the return of support group meetings. We want to hear your views on how these meetings should run. Please take a few minutes to complete our short survey before 05.08.22. #lupus
https://t.co/1u8cpemlVo
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After taking a break during the pandemic we’re beginning to plan for the return of support group meetings. We want to hear your views on how these meetings should run. Please take a few minutes to complete our short survey before 05.08.22. #lupus
https://t.co/1u8cpemlVo
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💜 October is Lupus Awareness Month 💜 You can find information and resources at the @LUPUSUK website to share with your friends and family to help raise awareness: https://t.co/gV7etYhvpR
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The JCVI has issued a recommendation that COVID-19 booster vaccines should be offered to people at higher risk of severe disease from coronavirus infection this winter (including #lupus). We'll update our website to answer your questions shortly. https://t.co/aqzM9JTt8c
gov.uk
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Delyth (who has #lupus) spoke to @BBCNews about feeling abandoned as COVID restrictions are lifted. Many immunosuppressed people have less protection from vaccines. We must be aware of those who are more at risk and continue to protect them. #WearAMask
https://t.co/yNFXrmsyIO
bbc.co.uk
Three people who were told to shield during lockdown share their concerns as rules are eased in England.
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PIP claims: Too many Northern Ireland people 'unfairly rejected'
bbc.co.uk
Repeated failings by the department and firm responsible for PIPs amounted to "systemic maladministration".
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Do you know someone living with #lupus in #NorthernIreland? A @QUBelfast student is carrying out a study as part of her thesis for @MaastrichtU into people living with lupus in NI during the pandemic. To find out more email sr.bradley@student.maastrichtuniversity.nl
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Today is #WorldLupusDay! 💜 Did you know it takes an average of 7 years for a patient to receive a diagnosis of #lupus in the UK?
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Today is #WorldKidneyDay. The #kidneys are one of the most commonly affected organs in people with #lupus and early stages tend to have no obvious symptoms. It is important that urine is monitored regularly by a doctor. https://t.co/eDohShvvi7
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This is shocking. Most people with lupus are diagnosed and treated by Rheumatologists, to have to wait SIX years for a first appointment allows a lot of time for damage to be done to the body that could be avoided by easily available medication.
"People are often living with pain and fatigue and obviously with arthritis, mobility is an issue" @NIVArthritis
https://t.co/E4t4EfjD6m
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We've updated our info & guidance about #lupus and #COVID19Vaccines: https://t.co/5p3YjRSlDD There has been some confusion and misinformation regarding the AstraZeneca vaccine. We want to provide reassurance that this vaccine is considered safe for people on immunosuppressants.
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Thank you to everyone at @lupus_ni for their support and promotion of our work!
We’re very grateful to the team from Queen's University Belfast who carried out this important research and hope the findings will help healthcare professionals as they treat lupus patients 💜
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Lead by @QUBMedEd medical student @blaithin45 conducted this important person-centred research https://t.co/RdYFzLViIW with @MccourtCollette @skin_dok about the impact sun exposure can have on those living with #lupus #cle & holistic insights to develop photoprotective behaviours
What is CLE and how could managing exposure to sun help prevent anxiety and inflammation of organs? Click the link box below to find out more. #Lupus | @MHLSQUB | @lupus_ni | @BelfastTrust
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