Life_on_lars_2021
@life_on_lars_21
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I'm Rebecca, colorectal cancer survivor, affected by pelvic radiation disease and lars. Trying to raise awareness and support other sufferers xx
Cheltenham, England
Joined August 2022
Please can all healthcare professionals take the pledge to get the term Pelvic Radiation Disease recognised. Please can you share so others are aware. It's a life changing disease & result of cancer treatment. Please help 🙏 💕 xx @SamanthaBostoc3 @DrLisaDurrant @RadiotherapyUK
📢We’re calling on healthcare professionals to take the #PRDPledge to ensure #PelvicRadiationDisease is widely accepted as a serious consequence of cancer treatment — one that requires focused research and education. Find out more. Take the pledge ✔️ https://t.co/kaWItNWekg
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📣 Please respond to the @DHSCgovuk call for evidence for the new England national cancer plan, especially on #LivingWithAndBeyondCancer (my favourite subject 😀). You get 500 words on LWBC, so please use them! Deadline 29 April 2025 https://t.co/DfLQzw1aID
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Amazing to see really positive things happening with late effects 💕 xx
Aftercare for patients experiencing the late effects of pelvic radiotherapy varies across the north east Please see poster below for details of our focus group @egglestoneuk @LaneCae @Gateshead_NHS @LesleyLesleys @macmillancancer @PRDA_uk @NicolaHand3
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Fantastic! Thank you Sara! Very proud of how influential the #PelvicRadiationDisease Best Practice Pathway is proving to be https://t.co/pqWXrUam11
#MASCC24
prda.org.uk
The Best Practice Pathway will support healthcare professionals to address the holistic needs of people affected by long-term side effects of pelvic radiotherapy. The document will help to develop...
Prof Sara Faithfull @FaithfullProf presenting clinician and patient feedback on the @PRDA_uk best practice pathway @CancerCareMASCC
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Hows this for a scary statistic. Thank you to @radiotherapy_uk for raising awareness xx
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The day after we came back from holiday. I think he missed me 😍 #afterradiotherapy #aftercancer #supportaftercancer #vinnie #vinniedog #vincenzo #vincenzocorleone #prd #lars #dogsofinstagram #lifeafterradiation #lifeaftercancertreatment #lovehim
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While sorting through paperwork, I found this. It has really useful tips for people struggling to get out of the house. You definitely need a bag, some people have more than one. Imagine a baby change bag for adults. What do you put in your bag? Any tips? 😘 ×× #incontinence
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Great to see these topics being given the importance they deserve xx @PRDA_uk #lateeffects #supportaftercancer #lifeaftercancer #rtlateeffects
Imperative these conversations are had with patients, great to see this is on the curriculum
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This is my bad day kit, it goes everywhere. My other kit has meds, cleaning bits, nappies, clothes etc. End of last year & start of this year were tough, I wasn't coping. Today I'm sorting prd paperwork, getting back on top. So many things I can't wait to share with you 🥰
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Great to see the @UniofNewcastle study on #PelvicRadiationDisease as a poster @BritSocGastro #BSGLIVE24 showing the barriers to diagnosis and holistic care for people with chronic bowel effects of pelvic radiotherapy 👏 5 key recommendations from Adam Biran, Linda Sharp & team👇
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As some one that suffers with rectal bleeding, it's good to see that these late effects are being taken seriously. The more I bleed, the worse I feel...drained, confused and so tired. It impacts on daily life and it doesn't just affect me...it affects my family & friends too 😫
Visitor to the @PRDA_uk stand @BritSocGastro #BSGLIVE24 praised this presentation - really important to keep raising the debate about management of bleeding in this group of patients as it can seriously impact on quality of life #PelvicRadiationDisease #RadiationProctopathy
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Another reason for being grateful for radiotherapy that has damaged my body & changed my life forever? Keeping me alive to see this little bundle of joy 💕 I'm going to be a nana again. Baby girl due November 💕😘 @DrLisaDurrant @SamanthaBostoc3 @PRDA_uk #pelvicradiationdisease
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Fantastic news that there is so much interest in what the @PRDA_uk are doing to help those with late effects ❤️
Busy start to Day 2 of #BSGLIVE24 @BritSocGastro @BSGTrainees Lots of interest in what @PRDA_uk is doing to help people with bowel problems after radiotherapy 👍👏 #RadiationEnteropathy Also our Best Practice Pathway https://t.co/pqWXrUam11
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Really good to read this & to see more advances and understanding in how cancer treatments affect patients and not just from the treatment & immediate side effects. Scanxiety is very real & the late effects from the treatments are debilitating in so many ways & last a lifetime 😕
An estimated 25% of patients with cancer suffer from depression and distress. Less crippling but noteworthy is ‘scanxiety’—anxiety related to surveillance and waiting for and receiving results.
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How true is this...especially after years of colorectal cancer followed by pelvic radiation disease and lower anterior resection syndrome 🤦♀️😘 xx @bowelcanceruk @PRDA_uk #cancerlateeffects
#pelvicradiationdisease #loweranteriorresectionsyndrome
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These kits are so important. I was diagnosed with IBS for 18 months, before realising my issues might be something else...thanks to seeing an episode of Outnumbered where the dad had IBD. Early diagnosis is vital xx @bowelcanceruk @DrLisaDurrant @macmillancancer @SamanthaBostoc3
The NHS bowel cancer screening kit can detect signs of cancer before you notice anything is wrong. The kit is automatically posted to everyone aged 56 to 74, and the programme is expanding to include those aged 50 to 55 by 2025. #BowelCancerAwarenessMonth
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Good news from the bowel screening test. I was told that due to bleeding from the rectum because of cancer treatment & prd, screening tests wouldn't work. If you're offered these tests...please do them xxx @PRDA_uk @DrLisaDurrant @macmillancancer @bowelcanceruk
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Such an amazing team of radiographers doing so much for those like me with late effects/pelvic radiation disease. Thank you 😘💕 @SamanthaBostoc3 @DrLisaDurrant and the team @SWRTLateEffects
https://t.co/FaPzsakGyy Radiotherapy Late Effects improving quality of life @SWRTLateEffects #whatmatterstoyou #personsalisedcare
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The @PRDA_uk want to assess the impact of the Best Practice Pathway. If you have read/used this document, please fill in the short survey. This document is vital for the treatment & education of this awful disease, please send the link on xx @SamanthaBostoc3 @DrLisaDurrant
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