Lewy Body International
@lewybodyint
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To promote awareness & knowledge of Lewy body dementia globally through a network of international dedicated LBD organisations. Secretariat by @lbsorg
North West, England
Joined August 2022
Following a meeting of members of Lewy Body International it has been decided to introduce a World Lewy Body Dementia Day on the 28th January 2024. This date was chosen as it is the birthday of Dr Lewy.
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Dementia with #Lewybodies patients treated with CT1812 (antagonist of #sigma2 receptor) for 6 months experienced improvement in #behavioral, #functional, #cognitive and #movement measures compared to placebo.😊👌
A new drug has shown promise for Dementia with Lewy Bodies in the just released data from the SHIMMER (CT1812) trial. The data just released revealed that participants taking CT1812 performed better across measures of behavior, function, cognition, and movement. The treatment was
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We are developing a new educational #boardgame! Any boardgame design companies pls get in touch! @Jmswats @MeganPolden @ReadmanRose @arc_nwc @lbsorg
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The isoAsp7-Aβ variant is the highly abundant Aβ form in #Alzheimer's disease and dementia with #Lewybodies. In aggregation assays, the isoAsp7-Aβ variant shows instant #fibril formation without lag phase. https://t.co/zKDlCyGGR1
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Our annual Scarf For Lewy event raises awareness of Lewy body dementia and brings our community together. Lisa shared with us: "I had spinal surgery last year and have been struggling with my mobility since. This gave me a focus and something positive to do in memory of my mum."
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Please sign and share our #LewyList petition which we will be taking to Westminster for the World Lewy Body Day. Your signature can make a monumental difference. Despite affecting an estimated 100,000 people in the UK, a diagnosis of Lewy body dementia is often missed due to
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Excited to come to @Griffith_Uni !! Big thanks to @KatarzynaLion for organising 🤓 @arc_nwc @livuninews @LivUniResearch
We are looking forward to you joining us on Wednesday! @Griffith_CMH @kerryn_pike @Griffith_Uni @Griffith_Health
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Next Winter, Thomas Skinner will be rowing 3,000 miles across the Atlantic Ocean to raise funds for us. "My father-in-law, Jon, is suffering from an incurable disease called #Lewybody Dementia." We look forward to following Tom's journey 🚣♂️ https://t.co/yzXgClZ5Qr
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Exciting news for people with Lewy body dementia. Early days but nilotinib, a blood cancer medicine, is showing staggering success in slowing or even reversing dementia in new trials. We will be keeping our eyes on its progression. #lewybodydementia #dementia
dailymail.co.uk
Nilotinib, a blood cancer medicine, was previously shown to improve movement and mental function in a small group of patients with Parkinson's disease-related dementia and Lewy body dementia.
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Add this to the list of microplastics (Dementia with Lewy bodies and Alzheimer's disease) https://t.co/vq9lIa0Xhg
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So proud to present my books to @MichaelDHiggins and his wonderful wife who made us feel so welcome,it was an amazing day
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On the final push for the last few participants if you live with a Lewy Body Dementia and have hearing loss or care for someone who lives with a Lewy Body Dementia and has hearing loss please get in touch! 🩵
🧵PARTICIPANTS NEEDED! Do you live with Parkinson's Dementia or Dementia with Lewy Bodies and have hearing loss? Do you care for someone with Parkinson's Dementia or Dementia with Lewy Bodies who also has hearing loss? If Yes we would LOVE to hear from you! Please RT
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Grey matter networks in women and men with dementia with Lewy bodies: subtle differences but could be important for precision medicine. Congratulations 👍@annegret_habich @DrFerreiraD
https://t.co/Ruriw99IRP
nature.com
npj Parkinson's Disease - Grey matter networks in women and men with dementia with Lewy bodies
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Jeter une pièce dans la fontaine de Trevi fait du bien à soi mais aussi aux autres 😊👍
🇮🇹⛲ En jetant une pièce dans la Fontaine de Trévi comme le veut la tradition, beaucoup l'ignorent mais ils font une bonne action. Une fois ramassé au fond de l'eau, l'argent est ensuite donné à une association caritative. 📺 @FlorenceCrimon, @LilouBotta, @marionhuguet21
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Excited to share the programme for #LewyBodyUK2024 to be held in Newcastle on 18th June 2024 for researchers and clinicians. Brilliant speakers include @HeatherMortiboy @DrElieMatar @DrEmHenderson @ProfJTOBrien @AarslandDag. Sign-up today! with @John_PaulTaylor @C__OCallaghan
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Did you know dementia with Lewy Bodies is closely related to Parkinson’s disease? This #ParkinsonsAwarenessWeek we’re sharing the common signs and symptoms that Parkinson’s disease and dementia with Lewy Bodies share. Share to raise awareness. 🧡
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Parkinson's disease progression slowed by antibody infusions | New Scientist
newscientist.com
Monthly infusions with the drug prasinezumab appeared to slow the progression of motor symptoms in people with advanced Parkinson's disease
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Excited! Make sure to come along to Plenary Session 4 on Thursday lunchtime to hear about three solutions of reducing #inequalities in dementia by involving the public! And come by the @lbsorg stall to check out our fun board game 🎲 - the #DementiaINequalitiesGame!
Join over 1,000 delegates who have already registered for the #ADI2024 conference, taking place on 24-26 April. Register as an online delegate to learn the latest insights, innovations and inspirations from wherever you are in the world: https://t.co/Ktm5RSAhdK
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