Kristin Schneeman
@kschnee66
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Director at FasterCures, venture philanthropy advocate
Joined April 2012
RT @NIH: NIH Director Dr. Jay Bhattacharya has announced that the NIH Public Access Policy, originally slated to go into effect on 12/31/25….
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RT @statnews: “The word ‘science’ is in the US Constitution.".@BillNye gives a passionate speech at the #STATBreakthrough Summit. https://t….
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Excited to see @BillNye and @NAF_Ataxia’s Andrew Rosen building awareness of ataxia and the critical importance of federal funding of fundamental science #STATBreakthrough @statnews
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Frank discussion about “What Science May Lose” in current administration. @HollyLynchez suggests that industry should exhibit more support for federally funded academic on which it relies for innovation #statbreakthrough @statnews
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UPenn’s @kiranmusunuru reminds us that innovations like CRISPR often start with @NIH funding, and miracle gene therapies for ultra-rare pediatric patients may only ever happen through federally-funded academic N-of-1 trials #statbreakthrough @statnews
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Great conversation with @EliLillyandCo ‘s Janelle Sabo about their effective approach to community-based clinical trials #statbreakthrough @statnews
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This is what #RareDiseaseDay2025 is all about.
“When I was born, EB was a death sentence. Life expectancy was two. But now? The technology has finally caught up. This is an exciting time for the EB community.” – Hodges Caldwell Jr., EB Patient @Eblifestyle717 . For decades, Epidermolysis Bullosa (EB) was considered
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RT @SusannahFox: NEW SURVEY: 15% of U.S. households are affected by rare disease or an undiagnosed illness. Their lives are characterized b….
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Flabbergasting. Who does he think the government’s money belongs to? Who gets the remaining 60% exactly? 🤔.
🚨 #BREAKING: President Trump has announced he’s considering a DOGE Dividend after it was proposed to him by Elon Musk. “We’d give 20% of the DOGE savings to American citizens and 20% goes to paying down debt.”. LFG! 🔥
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RT @AnnieWaldman: Calgary stopped adding fluoride to its water in 2011. What happened?. "The need for intravenous antibiotic therapy by c….
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RT @fastercures: @FasterCures’ latest report explores the barriers, benefits, and opportunities associated with advancing more patient enga….
milkeninstitute.org
In 2022, FasterCures published a report titled The Current Landscape of the Science of Patient Input, which examined the progress of patient engagement (PE) in
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It was a real pleasure and privilege to have this opportunity to hear from @LizFowler_ about the important work she and her team are doing @cmsinnovation!.
CMS Innovation Center Director @LizFowler_ recently sat down with @fastercures Senior Director @kschnee66 to talk through shared priorities such as person-centered care and the Quality Pathway. Learn more about the Innovation Center: #HealthCare
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Even considering the source, this is shocking. We cannot go back to a place where this kind of talk is normalized. Everyone needs to understand where the true threat to our democracy lies. This is not a drill.
nytimes.com
In a caustic and discursive speech in Ohio, former President Donald J. Trump once again doubled down on a doomsday vision of the United States.
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RT @PFMDwithPatient: Only 10 days left to nominate for the Made with Patients Awards 2024 🎉.✨ Submit your nominations for champions and ini….
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Incredible news, congrats to our friends at @EveryCure and @ARPA_H!.
Every Cure to Receive $48.3M from ARPA-H to Develop AI-Driven Platform to Revolutionize Future of Drug Development and Repurposing. Read the press release here:.
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RT @fastercures: The deadline for @FasterCures’ LeadersLink mentorship program is Thursday, Feb 29. Don’t miss your chance to increase you….
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Devastating news for Ms. Williams and her loved ones. I hope this diagnosis helps them better understand what is happening and helps her get the care she needs and deserves. #FTD.
The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),”
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RT @fastercures: One week until the @FasterCures’ LeadersLink mentorship program application deadline (Feb 29). Don’t miss your chance to i….
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RT @POTUS: Aleksey Navalny's courage will never be forgotten. This tragedy – further proof of Putin's brutality – reminds us of the stake….
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RT @ADeAngelis_bio: A medical journal has retracted two studies claiming to show the harms of the abortion pill mifepristone — studies cite….
statnews.com
The mifepristone studies were detracted due to flaws in the research and undisclosed ties to anti-abortion groups by the authors, according to the publisher.
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