@Clive_Smith_ @stuart5smith well done you two good role models.

Wishing Happy Thanksgiving to all our American friends, families and followers 🧡 #Thanksgiving #Haemnet

Hemab’s clinical studies for Von Willebrand disease (VWD) are now actively enrolling. • VELORA Discover: Understanding bleeding and treatment experiences in participants with Type 1 VWD • VELORA Pioneer: Evaluating HMB-002 in participants with VWD Progress starts with

I’ve just voted for 'Making Waves: The Gozo-Malta Swim' by @HaemoSocUK in the @SmileyCFA You should view and vote here too https://t.co/5HBnBgi5P4 #CharityFilmAwards #cfa26 #charity

The NIHR Research Professorships scheme could be your chance to lead health, public health, or social care research at a professorial level in England. Our Research Professors come from varied career paths, not just the traditional academic route. If you have a strong record in

The latest papers published in The Journal of Haemophilia Practice focus on the intergenerational impact of the Contaminated Blood Scandal, stakeholder roles in sustaining patient organisations in India, acquired haemophilia A, and issues in clinical practice for haemophilia.

Are you 18–30 and living with a rare disease — or supporting someone who is? We’re looking for 6 young advocates to join the Raising Youth Voices Project for #RareDiseaseDay 2026! Speak up. Lead change. 🌍 👉️Apply now: https://t.co/VLpi8h4XSu

We just raised $157M to build the ultimate clotting company. But what really drives a great company are the people who take on problems no one else could solve. Few teams get to say they're working to give patients their first chance at an active, healthy life. If you’re

Until recently, our understanding of Factor VII deficiency (FVIID) was largely based on male patients, overlooking a critical group: women. Before the 1990s, published case reports were 70–80% male, reflecting a diagnostic bias that overlooked heavy menstrual bleeding, even

🎉 Registration is now open for #WFHCongress2026! Save 15% until January 31 with early-bird registration! Join the global #BleedingDisorders community in Kuala Lumpur, April 19-22, for the world’s largest event in #hemophilia & bleeding disorders care: https://t.co/zmiUoNerIT

Really important questions here @haemnet @HaemoSocUK @EAHADnews @EHC_Haemophilia @wfhemophilia

🔴 1 in 3 doctors & nurses in Europe is struggling with depression or anxiety. 🔴1 in 10 has recently thought they would be better off dead. 🔴1 in 3 faces bullying or threats at work. 🔴1 in 10 has been physically assaulted or sexually harassed. These are the findings of

Did you know October 10th is Hereditary Factor X Deficiency Awareness Day? This ultra rare bleeding disorder, affects around 1 in a million people worldwide. Many are unable to access treatment with factor X concentrate. Check out Brian Branchford's commentary on two FXD case

Please take time to add your voice to the @EAHADnews survey on rare bleeding disorders. If you are rare, make your voice heard! https://t.co/DlRNgufpqv

This week, we're shining a (purple) light on ITP — or immune thrombocytopenia — for Global ITP Awareness Week. Over on the Haemnet blog, we take a closer look at ITP and its impact on women who took part in our Cinderella study. Find out more here: https://t.co/c9ygHpBZyI #ITP

Really important to remember #mentalhealth as we look at the physical. Carers too!

📢 Help advance research in Von Willebrand disease (VWD) The VELORA Discover study is now enrolling people living with Type 1 VWD. Your participation can help deepen understanding of the condition and shape the future of care. If you have Type 1 VWD, or care for someone who

This week is Global ITP Awareness Week! Immune thrombocytopenia — or #ITP — affects around 9.5 adults in 100,000 at any one time, but can occur at any age. People with ITP have too few #platelets in their blood. This means the blood can't clot properly, and can result in easy

Four generations. One misunderstood condition. Solutions in reach for the first time. In the next installment of The First Generation of Prevention series, we spotlight Emma, a nurse living with Von Willebrand disease (VWD). Emma’s story is shaped by a legacy of misdiagnosis

In a hospital, just listening to a nurse discuss his very difficult journey to work this morning. Perhaps one of the striking tube drivers might want to do a job swap for a day?

Dr. @katekhair reminds us that when patient organizations create space for all bleeding disorders, the impact goes far beyond community building. Peer-to-peer connection can spark engagement in research, interest in new therapies, and stronger voices for change. Watch part 3 of