Karen Gray
@karenmurraygray
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I’m Murrays mum. He has drug resistant epilepsy. Seizure free since June 2019 -due to Whole Plant Cannabis Oil with THC. Fighting for NHS access. Decriminalize!
Edinburgh, Scotland
Joined January 2016
Meet Jorja Direct — your new streamlined pharmacy service for medical cannabis, in partnership with Belfair’s Pharmacy. ✔ Faster dispensing ✔ Better stock ✔ Tracked delivery Less stress. More support. Reliable care, every time.
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Valid Prescriptions. Denied in Hospital. When a patient lacks capacity, their prescribed medication shouldn’t stop at the hospital door. The Reality Children and adults with valid cannabis prescriptions face dangerous gaps in care when admitted to NHS hospitals: 💔 Parents
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Sign our open letter today: https://t.co/g6Q3Q7yi9Y Write to Your MP: https://t.co/HlGucIENhz Sign Our Petition: https://t.co/nviOwYH7I7
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Why is a simple signature still a barrier in both NHS hospitals and private prescribing for medical cannabis patients? ✍️ We live in a digital age, yet patients with legal medical cannabis prescriptions are still facing delays and distress in NHS hospitals because the law
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Joanne has jumped through every bureaucratic hoop only to find it leading to yet another block in her journey to obtain her child’s medical cannabis access. @BenBoisterous has been using cannabis oils to treat his cerebral palsy clonus, and severe epilepsy since 2016, after
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Ali, an ex mental health nurse, began using medical cannabis in 2018 to treat her Functional Neurological Disorder (FND) and cancerous tumour. She believes that medicinal cannabis has not only shrunk her tumor but also manages her symptoms far better than any pharmaceuticals she
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Elaine's daughter, Fallon, 31, was diagnosed with Lennox-Gastaut Syndrome (LGS), a rare and severe form of epilepsy. Seven years ago, Elaine took Fallon to Holland, where she was prescribed cannabis oils that transformed her life. However, this life-saving treatment costs the
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Families face a stark reality: private prescriptions for cannabis oil can cost £500 a month and in some cases exceed £2,000 per month, while flower costs around £200–£400 for adults with chronic pain. This financial strain forces many to seek illegal alternatives. The Need for
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018 #PatientAccess #PatientSupport
Nearly twelve years ago, Deb participated in an interview where a resident doctor mentioned ongoing cannabis trials in the U.K. Despite this, the government, @DHSCgovuk and medical professionals continue to claim they lack sufficient evidence. So, why is that evidence still
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#CannabisAwarenessMonth #cannabISmedicine #MedCanAwareness #forgottenchildren2018
#PatientAccess
#PatientSupport
In a powerful video, Thomas shares his heart-wrenching plea to the government for access to cannabis-based medicines for his son, Elliot, seven years after the law changed to allow specialist doctors to prescribe. After obtaining a private appointment, Thomas was devastated to
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Supporting #MedicalCannabisAwarenessMonth
#cannabISmedicine
#MedCanAwareness
#forgottenchildren2018
#PatientAccess
#PatientSupport
In 2017, Karen initiated a petition to secure access to medical cannabis for her son, joining forces with other families under the Families4access banner, later campaigning with End Our Pain with the other #forgottenchildren2018. These families believed that the 2018 amendment
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#MedicalCannabisAwarenessMonth
#cannabISmedicine
#MedCanAwareness
#forgottenchildren2018
#PatientAccess
#PatientSupport
We are proud to announce that End Our Pain is participating in Medical Cannabis Awareness Month this November! Throughout the month, we’ll be sharing heartfelt video clips from patients and families whose lives have been positively impacted by medical cannabis. We also want to
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Please add your name to this letter. It will help the children that have been left behind when the law was changed allowing cannabis to be prescribed to them - 7 years later the children have received NO help.
A Call to End Our Pain: The Delays in Cannabis-Based Medicine Trials for Paediatric Drug Resistant Epilepsy Yesterday, I attended a BPNA meeting regarding the long-awaited trials of cannabis-based medicine for paediatric drug resistant epilepsy. The news is disheartening: these
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Please add your name to help others. (Remember to confirm via your email once signed) https://t.co/hncOtJ8WDf
🚨 Families Demand Answers from @DHSCgovuk Our open letter reveals how NHS Trusts were advised not to comment on cannabis-based treatment access—leaving families in silence and applications blocked. 📄 Read the full campaign letter: https://t.co/cfSTz9KxnG ✍️ Sign the open
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Nearly 7 years and access is STILL cruelly denied for children - only adults can access via the private market. This is NOT what we campaigned for.
Medical cannabis is now legal in the UK, but too often patient access is cruelly denied. Visit https://t.co/D29sFtrWNu to email your MP urging them to act. #EndOurPain @end_our_pain
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🎉 Last year, we had so much fun at the Great North Run while raising money for children with intractable epilepsy! This year, our runners are all set and ready to go. Please support them. 💜 https://t.co/HcIluwZ9T0
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There are many children that rely on cannabis oil. The UK law changed 6 years ago and families are still having to pay vast amounts for this medication privately. It’s appalling! Please help by signing this petition asking for funding. https://t.co/Y3zFuSzNUR
change.org
Urgent Government Reimbursement Scheme for Children accessing Medicinal Cannabis
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The law was changed in 2018 specifically to help the children of families who campaigned for NHS funded access. These children have not been helped - this is why we set up @IntractableUK The cannabis industry has grown, meanwhile the children have been forgotten about.
This National Epilepsy Week, we must highlight the ongoing struggle for children's access to medicinal cannabis in the U.K. Despite 2018's legal changes, many remain denied NHS access. We need clearer guidelines, better education for doctors, and a commitment to patient care!
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Fantastic article by @Cannabis_Trades on the work of Guy Coxall from @SeedOurFuture_, a man who deserves more recognition across the UK for his tireless work on behalf of patients. ➡️ https://t.co/0mpQ439V1P "Guy turned his energy toward bold, direct action. He founded Seed Our
cannabistrades.org
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Since 2018, families have been left to fund their kids only medicine that stops seizures. Worse still, the very expensive (private) supply chain in the UK appears to be failing to provide consistent production of this medication. #TwoTierKeir
The government's inaction is a disgrace. While our children suffer and face life-threatening shortages, bureaucrats hide behind excuses. It's time to prioritize our kids over politics! #StopBensSeizures #UrgentActionNeeded read more using the link 🔗. https://t.co/XTId1jQTy1
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