Jody de Vos MND @jodydv78 X Profile

Jody de Vos MND

@jodydv78

Followers

348

Following

656

Media

408

Statuses

2K

Music addict, travel & photography enthusiast, gay & living with Motor Neurone Disease since 2nd July 2014 #MNDWarrior

https://t.co/fpNQeetgCn

Holmfirth, West Yorkshire, UK

Joined December 2011

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Jody de Vos MND

@jodydv78

9 years

Been watching this trailer for five days and still can't find a stream or download link for the whole show! It's...

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Jody de Vos MND

@jodydv78

9 years

Another day, another publication this time front page! Thanks to my Mum for continually and tirelessly fighting...

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Jody de Vos MND

@jodydv78

9 years

How dying man Jody de Vos was left in agony after nursing blunders

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Jody de Vos MND

@jodydv78

9 years

Thank you so much Carl Austin for the most thoughtful and unexpected gift you have ever given to me. Yes this...

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Jody de Vos MND

@jodydv78

9 years

Wishing I could be in my home town Kenmare with my family to attend the funeral and celebrate the life of my dad...

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Jody de Vos MND

@jodydv78

9 years

I may be slowly dying from Motor Neurone Disease but I do my best not to grumblle because I believe there is...

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Jody de Vos MND

@jodydv78

9 years

Praying I live to see this on 9th Dec (10th w/time diff) unless @Madonna fancies sending a draft copy? #ALSWarrior #FinalStages #RebelHeart

Madonna

@Madonna

9 years

Let's Go out there and Fight for what we Believe In!! 🙏🏻 Rebel ❤️ Tour coming Soon! 🎉🎉🎉🎉🎉🎉🎉🎉Showtime Dec. 9th

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Jody de Vos MND

@jodydv78

9 years

LOVE this jumper! Shame that I would never have the opportunity to wear it! #bedbound #fashion #mndwarrior

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Jody de Vos MND

@jodydv78

9 years

One of the most beautiful songs ever written...

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Jody de Vos MND

@jodydv78

9 years

I cannot believe Lisa Parkinson flew all the way rom Australia for a week with the sole purpose of spending a day...

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Jody de Vos MND

@jodydv78

9 years

Oh yes! Countdown has begun! Fingers crossed I get to see this! It is more important than making it to Christmas!

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Jody de Vos MND

@jodydv78

9 years

Night from hell. District nurses out three times. Faulty alarming syringe driver since 1am. Ugh! Waiting up for...

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Jody de Vos MND

@jodydv78

9 years

Couldn't think of a better way to spend a Thursday! #Madonna #Celebration — watching Celebration: The Video Collection

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Jody de Vos MND

@jodydv78

9 years

Now This Is What I Call Music!

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Jody de Vos MND

@jodydv78

9 years

Thank you everyone for your messages and comments over the past week or so. Had some beautiful sunflowers from...

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Davina Rivers

@DavinaRivers

9 years

@Madonna introducing @jodydv78 ....he has been told he is now in the final stages of #ALS! Please RT and messg if you can.....thank you 😘👍💙🙏

Jody de Vos MND

@jodydv78

9 years

Lucky I got this done when I did! This is the Gay Times article in this month's edition (not a link to purchase...

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Jody de Vos MND

@jodydv78

9 years

And I even have 'Music' at the end of the service to cheer everyone up!

Jayne Halhead

@Jaynes__World

9 years

@Madonna It would mean so much to @jodydv78 to receive a message from you. Jody is in the final stages of #MND (#ALS in the US).... :'( x

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Jody de Vos MND

@jodydv78

9 years

Lucky I got this done when I did! This is the Gay Times article in this month's edition (not a link to purchase...

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Jody de Vos MND

@jodydv78

9 years

Hearing the words 'You're coming towards the final stages of your disease' was difficult. Jokingly I said 'well...

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Jody de Vos MND

@jodydv78

9 years

Hey @ricky_martin As we are both in Gay Times this month I wondered if you could share my battle with MND / ALS?

Jody de Vos MND

@jodydv78

9 years

Thanks to @mndassoc @GayTimesMag for helping me share my struggles with MND. Follow my blog https://t.co/qLzDP9I63n

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