Jenny Preston (Mrs D’Arcy in personal life)
@jen_preston1
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Patient & Public Involvement Policy Manager/University of Liverpool. PhD student. All views my own. Read my latest #Research https://t.co/rNyc3nwfjG
Liverpool, England
Joined February 2011
'The scope, intent & extent of published conceptual frameworks of frameworks for patient & public involvement in health & social care research: a rapid scoping review'. New paper in Health Expectations https://t.co/j0R0AsHbq3 open access!!
onlinelibrary.wiley.com
Introduction The United Kingdom National Institute for Health and Care Research (NIHR) allocates funding and provides infrastructure, training and capacity building for research. NIHR expects that...
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'How are patient partners involved in health service research? A scoping review of reviews.' New paper in BMC Research Involvement & Engagement https://t.co/BvQWN9oZg1 open access!!
researchinvolvement.biomedcentral.com
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Diogo Jota’s brother André Silva, 25-year-old Penafiel player in Portuguese 2nd League, has also passed away following the accident. Rest in peace, André. 🕊️
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I can’t say the way I feel at the moment I can’t get my head around it!it’s like apart of my family has passed away, Absolutely gutted all our thoughts are with the family YNWA❤️🙏
I’m absolutely devastated to hear the news of Diogo ❤️❤️
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'Impact of involving young people & family caregivers in developing reporting guidelines for paediatric randomised trials'. New commentary in BMC Research Involvement & Engagement https://t.co/LCIFFPWFR1 open access!!
researchinvolvement.biomedcentral.com
Background Patient and public involvement (PPI) is increasingly recognized as important, yet no guidance exists on integrating young people and family caregiver perspectives in the development of...
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Thanks for sharing Jonathan 🙏
'Impact of involving young people & family caregivers in developing reporting guidelines for paediatric randomised trials'. New commentary in BMC Research Involvement & Engagement https://t.co/LCIFFPWFR1 open access!!
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It’s #Red4Research Day! Here at NIHR, we're wearing red today to celebrate everyone who makes health and care research possible, from participants and volunteers to researchers and support teams. Thank you for being part of research which is improving healthcare for everyone.
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Take a look at this webinar focused on involving children and young people in research 🧒 Teams from NIHR and Generation R will share insights from a recent face-to-face event and what matters to young people when taking part in research. Sign up here:
eventbrite.co.uk
We will share insights from our recent event, where children and young people from across the UK discussed their role and voice in research
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Fasting is the strongest medicine on Earth. It fights inflammation, detoxifies your body, and burns excess fat effortlessly. But if done wrong, it can destroy your physical and mental health. Here’s how to fast properly (backed by science):🧵
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Michael Beresford explains how the Sycamore study led by @EATC4Children and co funded by @VersusArthritis has led to worldwide treatment developments for young people with uveitis and JIA.
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"I am Polly Foster. Future rheumatology nurse." When Polly's family shared this photo with us, it made us smile the biggest smile. We absolutely LOVE your poster. #MoreThanMyArthritis #ThinkJIA #JIA #JIAUK #PaediatricRheumatology #ChildrenGetArthritisToo @presociety_ @eular_org
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Michael Beresford explains how inflammation is a driving force of many inflammatory autoimmune conditions such Juvenile Idiopathic arthritis & the huge impact it can have on young people's lives. Supporting research to help change this remains a priority for us @VersusArthritis
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A lovely day indeed. Thank you @EATC4Children for inviting me and congratulations on a successful, inspiring event with children and young people at it's heart ❤️ @VersusArthritis
🎉 That’s a wrap on the Showcase Event! 🎉 What an inspiring and impactful day! 💙 🔹 Takeaways: ✅ YP's voices shape the future! ✅ Research is driving new treatments for childhood diseases. #BetterTogether #EATC4Children
@AlderHey @DeborahAlsina @lup
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We are at Alder Hey hospital today for @EATC4Children who are sharing the importance of research and especially involving families in research! Come say hi if you are here too!
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🎤 Dr. Eve Smith is now speaking! Specialising in Lupus Nephritis, she’s sharing insights on urine biomarkers and her work on TARGET LUPUS, a study aiming to improve treatment while reducing steroid use in childhood Lupus. #EATC4Children #LupusResearch #TARGETLUPUS
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The #EATC4Children Showcase is underway! Kicking off with an inspiring welcome from young people and key speakers at Alder Hey. Exciting discussions ahead!
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Young people's voices leading the conversation! 💙 Our panel of young people and parents are sharing powerful stories about their journey in research and why patient involvement matters. #YoungVoicesInResearch
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The EATC4Children Showcase Event is almost here! We’ll be bringing together young people and charities to highlight the latest in paediatric research. Stay tuned for live updates from the event! Who’s excited? 🙌 #EATC4Children #Countdown #PaediatricResearch #StrongerTogether
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