Pretty sad that this is my life now. Everything I've ever worked for, taken from me. Have a read of this @wesstreeting and @AshleyDalton_MP and decide if the ME community still doesn't deserve appropriate funding for the ME action plan #ThereForME #ME #mecfs #FundThePlan.

RT @Channel4News: ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested. They’ve found e….

RT @ABrokenBattery: Clip: On Channel 4 News, Prof Chris Ponting tells a participant that the DecodeME study found eight genetic difference….

An incredible feat of endurance yesterday from Dillon, completing the marathon swim in 19hrs, all in aid of @MEResearchUK 💪🏊 Plenty of awareness raised for the ME community. One unexpected benefit of this awful disease is seeing how deeply kind some people are 💙.#ME #MECFS

Dillon is almost finished his marathon swim. Yes, he's swimming 42km today for @MEResearchUK! That's 18hrs of swimming. This isn't getting the coverage it deserves. Does anyone in the ME community have any contacts in the MSM who could help us get more coverage??.#ME #MECFS

Very lucky to have my friend Dillon swimming a marathon for ME this month. I'm not sure the average person grasps how insane this is! He's looking at about 18hrs+ of swimming. Absolutely insane. Please help us to share this story and fundraiser!.

RT @tessamunt: I’m so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/….

Im very lucky to have such great people in my corner ♥️ My friend Dillon heard my ME story and decided he's going to swim a marathon to raise funds for @MEResearchUK. Most people struggle to run a marathon and he's swimming one! You can donate here #ME.

You can still donate via the link below

My amazing family and friends at the Belfast marathon today raising funds for @hope4mefibroni. Special shout-out to my bro Daniel for doing the marathon and my cousin Orla for walking a half marathon by mistake! Plenty of funds and awareness raised #running #Marathon #belfast

RT @hope4mefibroni: Tomorrow, 19 runners will raise the roof in Northern Ireland for #MEawareness in @belfastmarathon 💪 Hope4ME 🏃‍♂️ .Best….

As always, thank you so much for everyone's support and kind messages. Any shares would also be greatly appreciated!.

2. Contact your local MLA and ask them to attend an ME research event at Stormont on 13th May from 14.00-14.40. You can contact them via this link ➡️ You can use the email template on the next tweet or use it as inspiration. The more personal the better.

There are 2 ways you can help us-. 1. Donate to our fundraiser. Money is tight for everyone right now so any donation would be massively appreciated! .

My amazing family and friends are doing the Belfast marathon on the 4th May to raise funds for @hope4mefibroni. I'm well aware of how lucky I am to have so many brilliant people supporting me. Hopefully someday I can pay them back. #ME #triathlete. Here's how you can help us 🧵.

RT @hope4mefibroni: Thank you to the incredible **19** family members & friends of @james_walton96 taking part in @belfastmarathon - raisin….

RT @KatyBruce108: ⚠️."#pwME dies in poverty & squalor after DWP removes his benefits as Labour cuts PIP by £4.5bn.David had #ME fibromyalgi….

Yesterday, 40 labour MPs voiced concerns over their parties inheritance tax plan for farmers. It's clear there are still some good politicians left. The real question now is how do we get them on board to properly support the ME action plan? #thereforme #MECFS #ME #LongCovid.

RT @JoanMcparland: @AbilityNI have featured #MyalgicEncephaliomyelitis in their Spring edition selling all across N.I. Very grateful as it….

Thanks to @StuOnSport for reaching out and doing this piece and helping us raise awareness amongst a new demographic. I'd always hoped to feature in @tri247 one day for my sporting exploits, not for my bad health. #ThereForME #mecfs #millionsmissing @actionforme @ThereForME_UK.

RT @ABrokenBattery: 🆕 Full Article in the Times by Sean O'Neill #MECFS. If we can’t learn from errors, families relive tragedy for nothing….