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IDEA-FAST-Project Profile
IDEA-FAST-Project

@ideafastproject

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Identifying Digital Endpoints to Assess Fatigue, Sleep and Activities of Daily Living in Neurodegenerative Disorders and Immune-mediated Inflammatory Diseases

Joined December 2019
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@ideafastproject
IDEA-FAST-Project
7 months
Have you checked out the IDEA-FAST publication “Regulatory Qualification of a Cross-Disease Digital Measure: Benefits and Challenges from the Perspective of IMI Consortium IDEA-FAST” by Nobbs et al., 2023? 🔗 Read the full article here: https://t.co/9p923sEvr9
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@ideafastproject
IDEA-FAST-Project
7 months
Check out the newest IDEA-FAST paper in @npjDigitalMed “Association of real life postural transitions kinematics with fatigue in neurodegenerative and immune diseases.” Read here: https://t.co/QORGHvVWsj @IHIEurope @EFPIA @UKSH_KI_HL
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@ideafastproject
IDEA-FAST-Project
8 months
Check out the IDEA-FAST paper “Evaluation of walking activity and gait to identify physical and mental fatigue in neurodegenerative and immune disorders” It examines a possible relation between gait measures and severe fatigue Read here: https://t.co/5z7RZVRxqM @IHIEurope @EFPIA
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@ideafastproject
IDEA-FAST-Project
8 months
💡New IDEA-FAST paper: “Fatigue-Related Changes of Daily Function: Most Promising Measures for the Digital Age”. This review examines parameters for fatigue in immune-mediated inflammatory and neurodegenerative diseases. 🔗 Read article: https://t.co/rFjfyVbqQU @IHIEurope @EFPIA
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@ideafastproject
IDEA-FAST-Project
8 months
Early Career Researchers are the driving force behind innovation in #DigitalHealth! Their passion, fresh ideas, and dedication are advancing our understanding of fatigue & sleep disturbances. Read more about our inspiring ECRs and their stories:
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@ideafastproject
IDEA-FAST-Project
8 months
📢The IDEA-FAST Zenodo Community is now up and running! There you can access all our publicly available IDEA-FAST publications. Access everything here:
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@ideafastproject
IDEA-FAST-Project
9 months
✨ Happy Holidays from the IDEA-FAST Project Team! 🎄✨ As 2024 comes to a close, we would like to extend our heartfelt gratitude to our consortium, partners, and supporters. IDEA-FAST is progressing thanks to your dedication and hard work. Read more: https://t.co/XfSFc3fG6A
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@ideafastproject
IDEA-FAST-Project
9 months
💡"Fatigue and sleep disturbances aren't minor inconveniences—they're barriers to a full life" shares @ParkinsonMadrid PI, Miriam Grande Discover how IDEA-FAST is transforming patient care using digital tools Learn more: https://t.co/Bq7Ntri1Ao #IDEAFAST #digitalendpoints
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@ideafastproject
IDEA-FAST-Project
1 year
📢 Early career researchers are key to IDEA-FAST’s success! 🌟Check out our latest spotlight on Dr. Ekaterina Sorkina from the Newcastle Upon Tyne Royal Victoria Infirmary. Discover her journey and role in advancing digital health research. Read more: https://t.co/LxTEqDI8Nx
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@chl_hinchliffe
Chloe Hinchliffe
1 year
📢I'm very happy to share that my paper with @ideafastproject has been✨#published✨ 🚶We explored the relationships between real-world measures of #gait and #fatigue in chronic diseases! Read it here: 👉 https://t.co/TqIfzlj6jv Thank you to my co-authors and colleagues
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link.springer.com
Background Many individuals with neurodegenerative (NDD) and immune-mediated inflammatory disorders (IMID) experience debilitating fatigue. Currently, assessments of fatigue rely on patient reported...
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@ideafastproject
IDEA-FAST-Project
1 year
📢We proudly announce the latest edition of the IDEA-FAST Newsletter! Find out about recent events, publications, our General Assembly, and other @ideafastproject related news Read here: https://t.co/MlysAgh3XZ @EFPIA @IHIEurope @NeurogeriatricK @ParkinsonsUK @NIHRNewcBRC
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@ideafastproject
IDEA-FAST-Project
1 year
On March 12th-13th, the IDEA-FAST consortium gathered to discuss current progress and next steps during the 2024 General Assembly. Over 100 consortium members took part in the sessions, in person and online Read more about the discussions and sessions: https://t.co/TrI2Nm3fYR
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@ideafastproject
IDEA-FAST-Project
1 year
Early Career Researchers: We talk to Laura Kuijper, site coordinator and researcher at Leiden University, involved in the planning and implementation of IDEA-FAST Read more: https://t.co/CTfWfAYh0A Follow to learn more about IDEA-FAST’s young scientists #imi_neuronet2
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@ideafastproject
IDEA-FAST-Project
1 year
🚶‍♀️Patients with Rheumatoid Arthritis (RA) struggle on the daily with chronic inflammation of the joints, along with weakness, fatigue, and weight loss Here we explore the hallmarks of RA and the efforts of IDEA-FAST Learn more about our endeavors at https://t.co/OsCxr4yHln
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@ideafastproject
IDEA-FAST-Project
1 year
🚶‍♀️Individuals with Primary Sjögren's Syndrome (PSS) face daily struggles with blurry vision, fatigue, and joint pain, among others 💤Here we explore the hallmarks of Sjögren's, and IDEA-FAST's efforts to understand the nuances of fatigue and sleep disturbances in this condition
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@ideafastproject
IDEA-FAST-Project
2 years
Our General Assembly is underway! @Faing07 and Nikolay Manyakov gave an introduction to IDEA-FAST’s achievements and goals for the year ahead Presentations by @dw104, Walter Maetzler, and Chris Bull followed with overviews of their ongoing work, challenges, and next steps
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@ideafastproject
IDEA-FAST-Project
2 years
💤People with IBD deal with symptoms like diarrhoea, abdominal pain, and weight loss daily. Sleeplessness and fatigue are some of the most exhausting manifestations for the patients We explore the hallmarks of IBD and our project's endeavors Learn more: https://t.co/OsCxr4yHln
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@ideafastproject
IDEA-FAST-Project
2 years
🚶‍♀️ Living with Systemic Lupus Erythematosus (SLE) means battling respiratory and movement disorders, with the main symptom reported being constant fatigue In this post we shortly explore the hallmarks of SLE and IDEA-FAST's efforts Learn more at https://t.co/OsCxr4yHln
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@ideafastproject
IDEA-FAST-Project
2 years
🚶‍♀️ Individuals with Parkinson's Disease are burdened with a variety of motor symptoms, while often struggling with sleep disorders as well Here we shortly explore the hallmarks of Parkinson's Disease Learn more about our project's endeavors at https://t.co/OsCxr4yHln
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@ideafastproject
IDEA-FAST-Project
2 years
🚶‍♀️People with #huntingtonsdisease face the challenges of hypokinesia and hyperkinesia, cognitive decline, sleep disorders, and more daily. In this post we shortly explore the hallmarks of Huntington's Disease. Learn more about our project's efforts at https://t.co/OsCxr4yHln
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