Hughes APS Trust
@hughesapstrust
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The Hughes APS Trust (formerly GHIC) We fund research to raise awareness and improve care for patients with Antiphospholipid Syndrome (APS).
United Kingdom
Joined August 2017
We’re proud to announce that Professor Graham Hughes has been awarded an MBE for his outstanding services to Lupus and Hughes syndrome. This honour recognises his lifelong dedication and commitment to improving patients’ lives worldwide. #MBE #Lupus #HughesAPSTrust #aps
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🎉 Big news on APS Awareness Day! GHIC (Graham Hughes International Charity) is now Hughes APS Trust. New name, same mission — supporting those affected by APS. ❤️ New website coming soon! Stay tuned. #HughesAPSTrust #APSawarenessDay #NewNameSameMission
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We wish the new Romanian Antiphospholipid Syndrome group success. APS/Hughes Syndrome is a global disease without barriers. It’s extremely important experts are available to counsel, advise and manage affected patients and their relatives everywhere
Launching the Romanian Group for Antiphospholipid Syndrome! @SerbanAugustin, @ioana_saulescu , Simona Caraiola! #APS
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Great article on what your Rheumatologist should know when managing APS/Hughes Syndrome pregnancy…and of course what patients should expect their Rheumatologists to know….keeps us all on our toes 😂
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🤰#Pregnancy in #APS: what should a #rheumatologist know? https://t.co/FMyLVQR9ug 👉🏻Check out the complete special issue on #APS by @RheumJnl
@FraCrisafulli10 @micaela_fredi @LazzaroniM @CeciliaNalli @piantoni_silvia
@APSsupportUK @APSFA @afosfolipido @ern_reconnet @sil_aps
academic.oup.com
Abstract. This review focuses on the management of reproductive issues in women who have antiphospholipid syndrome (APS) or are carriers of antiphospholipi
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Important study demonstrating that not every APS/Hughes syndrome patient is the same! Some APS patients are not anti coagulated on warfarin but may take aspirin or Plavix. The risk of re-thrombosis (more blood clots) is no different to those on full anti coagulation.
Our most recent publication on thrombosis recurrence and major bleeding risk in non-anticoagulated thrombotic antiphospholipid syndrome patients. We want to thank all APS ACTION members for their contributions.
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Adrenal glands make essential for life hormone Cortisol. APS/Hughes Syndrome can induce haemorrhagic infarction (lack of blood supply) of Adrenals. Hey presto-no cortisol! Insidious, difficult to spot, CT scan, Synacthen test and Antiphospholipid antibody screen confirm diagnosis
1/6 Glad to share our latest publication, this time; the fascinating overlap of rheum and endo in our study on adrenal hemorrhage in APS. Incorporating cases from @MayoClinic and a systematic literature review. https://t.co/57xin3Gk4x
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Interesting article by Evangelatos et al in previous post suggesting the risk of progression of atherosclerosis (“furring up” of the arteries) in APS is higher than healthy controls and even higher than in diabetes which already carries a substantial heart disease burden
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7-year follow-up atherosclerotic plaque progression in patients with antiphospholipid syndrome versus diabetes mellitus and healthy controls
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In this article, our founder Prof. Graham Hughes discusses what needs to be done to improve the quality of life for Antiphospholipid (Hughes’) Syndrome patients 40 years after he first described the syndrome. Still many unresolved issues, but much hope these can be addressed.
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A very Happy New Year to one and all. Our New Year’s resolution is to continue to strive for better care for patients with Hughes’ syndrome, to improve their quality of life and ensure knowledge about the condition amongst healthcare professionals also improves.
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Thanks to Mags and Sally for being front of house on our GHIC stand at RheumaPreg 2023 in London. A super meeting, great speakers
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Our own Professor Graham Hughes, part of the international scientific committee of RheumaPreg, will chair the session on Challenges in Lupus and APS pregnancy. Stay tuned as we bring you updates both from our GHIC stand at the meeting and important updates from the talks.
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GHIC are proud to be a sponsor of RheumaPreg 2023. This international meeting will bring together world class speakers including our founder, Professor Graham Hughes, to discuss the challenges in managing pregnant women with Rheumatic disease.
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Discussed at Ten Topics 2023, the new Classification Criteria for APS/Hughes Syndrome…with Prof Graham Hughes and Prof Hasan Shehata (Obstetrician) on the panel with Profs Munther Khamashta (Dubai) and Guillermo Ruiz-Istorza (Spain)
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Our Founder, Professor Graham Hughes, presenting the keynote talk at the prestigious Ten Topics in Rheumatology international meeting in London yesterday. You know you’re in for a treat when the person who discovered Hughes Syndrome is providing the education!
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And what about ChatGPT’s answer to what is Hughes Syndrome?…pretty accurate and potentially a useful starter guide for anyone who wants to know more about the condition..Let us know if you’ve had any run-in’s with AI…
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Who has joined the Artificial Intelligence (AI) world? We tried ChatGPT…amazed how quick it is for providing information, still in its infancy so will improve..check this out..type in a request, the answer is immediate..In case you were wondering about our founder…
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For an overview of APS/Hughes Syndrome especially pertaining to men, please access this free access article. It’s an excellent article. Well, we would say that, as three of our Trustees wrote it…no bias, honest!
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Headache, an all too common feature not just of APS/Hughes Syndrome, but also those who have the antibodies but have never had any thrombosis. Not routinely screened for and often related just like normal migraine, whereas blood thinning such as Aspirin is far more helpful
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