Hope for PDCD Foundation
@hopeforpdcd
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Fundraising for a cure for Pyruvate Dehydrogenase Complex Deficiency (PDCD) & advancing research for rare diseases.
Folsom, CA
Joined October 2022
Join us on Thursday, July 24 for a special webinar featuring Dr. Steven Gray from The University of Texas Southwestern Medical School. Dr. Gray will discuss the latest progress in our ongoing PDCD gene therapy research. Registration Link:.
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We have reached the milestone of our first $1,000,000 raised for PDCD research and advocacy. Thank you to all! If you'd like to donate to our second stage of fundraising, please go to Every dollar is invested wisely back into research and advocacy.
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Saol Therapeutics announces FDA acceptance of New Drug Application for SL1009 for treatment of Pyruvate Dehydrogenase Complex Deficiency. See the full press release at
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Ordering holiday cards? Get 20% off your purchase with Minted with code π
ππππππππππππ at checkout! #holidayseason #Christmas #December #minted
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The difference between a patient registry & a natural history study can often be a source of some confusion in the rare disease community. Read about the PDCD Natural History Study at UPMC at: Read about the Patient Registry at
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Our mouse model proof of concept study at UTSW is showing promising data in terms of viability. The PDHA1 knockout mouse is showing initial signs of replicating the disease in humans, allowing the experiment to progress to the next stage.
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RT @cure_mito: Sophia Zilber and Frances Muenzer Pimentel from @hopeforpdcd spoke to @OnceUponAGene about our registry collaboration to aβ¦.
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RT @CheckOrphan: Cure Mito Foundation (@cure_mito) and Hope for #PDCD Foundation (@hopeforpdcd) announce a patient registry collaboration fβ¦.
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@hopeforpdcd has launched a patient registry! 1st international registry that is specific to PDCD & has been informed by both PDCD caregiver, patient & clinician input. to enroll. @SanfordResearch @cure_mito .#pdcd #raredisease
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RT @cure_mito: Exciting announcement! We have joined together with @hopeforpdcd to have both of our registries on the @SanfordCoRDS platforβ¦.
eurekalert.org
March 18, 2024 β Cure Mito Foundation and Hope for PDCD foundation, both patient-led foundations focused on advancing research and supporting families affected by Leigh syndrome and Pyruvate Dehydr...
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RT @hopeforpdcd: Charlie Coyle(@CharlieCoyle_3) is doing charity event to win 2 VIP Bruins tickets, tour the Bruins locker room with him &β¦.
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RT @outland_ash: #RareDiseaseDay2024 celebrating my girl and her rare stripes! #pyruvatedehydrogenasecomplexdeficiency @hopeforpdcd https:/β¦.
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Charlie Coyle(@CharlieCoyle_3) is doing charity event to win 2 VIP Bruins tickets, tour the Bruins locker room with him & it includes Transportation and hotel accommodations. Info:.Confirmation on his instagram:.
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π· Please take a moment to review our 2023 annual report, which highlights our accomplishments for the year, our budget , and our direction for 2024. π·.Thank you to this community for your continued support! π·.
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RT @UMDF: Last week, UMDF was proud to co-host an FDA Listening Session for Pyruvate Dehydrogenase Complex Deficiency (PDCD) with fellow paβ¦.
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RT @UMDF: PDCD patient community, we need your voices urgently! This survey is open to patients with a clinical or genetic diagnosis of PDCβ¦.
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We need your help! There are 3 surveys for PDCD families!. 1) helping find/diagnose PDCD .2) grow patient population.3) unlock $250 donation,.4) help FDA understand disease burden, &.5) get a Hope for PDCD bracelet (US). Survey:
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Panda Express Community Programs
community-fundraiser.com
Raise money for Hope for PDCD Foundation
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ALL PROCEEDS GO TO RESEARCH & ADVOCACY EFFORTS FOR CHILDREN FIGHTING PDCD. Note: Women's unicorn tee runs small. Wash before wearing. Allow 2-3 weeks for shipping. #merch #hopeforpdcd #pyruvatedehydrogenasedeficiency #raredisease #rarediseaseresearch #rare
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