United Mitochondrial Disease Foundation
@UMDF
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UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.
Pittsburgh, PA
Joined April 2009
Awareness leads to action. Early diagnosis, better care, and more research funding all start with understanding mitochondrial diseases. #WorldMitoWeek2025 #MitochondrialDiseases #DecodeTheMitoPuzzle #Mito
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We have EIGHT upcoming #EnergyforLife events (in person and virtual) in the month of September! Join the #mito community as we take every step, roll, and stroll together toward treatments and cures for #mitochondrialdisease. Register today:
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All those with suspected #mitochondrialdisease -- check out UMDF's No-Cost Genetic Testing program! Finding a diagnosis through #genetictesting can open doors to #clinicaltrial opportunities. Visit
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Help us bring #EnergyforLife to #mito communities in.Detroit - monika.hancock@umdf.org.Pittsburgh - angela.sommer@umdf.org.If you or someone you know has a heart for fundraising toward treatments for #mitochondrialdisease 💚, reach out to us! Together, we #energizethefight.
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Our special edition #WorldMitoWeek2025 HOPE t-shirt is only available for order through this Monday, Aug 25! Purchase in black, gray, or white. All proceeds benefit UMDF. Don't delay! Shop at
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Today is Make a Meeting Thursday ☎.Now’s the time to connect directly with your members of Congress. Send a personalized update to your Congressional representatives and ask to schedule a call. Click Here to Send a Letter: #approveelamipretide
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ALL patients, families, clinicians, and researchers are welcome to join us for a special Bench-to-Bedside talk on Mitchondrial Replacement Therapy on September 5 at 10am ET featuring international #mito partners and clinicians. Free but please Register:
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On #NationalNonprofitDay -- the mission of UMDF is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Join us: #mito #mitochondrialdisease
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Our #WorldMitoWeek2025 Hope Within Reach exclusive t-shirt is NOW AVAILABLE!. ⏰ Deadline to order is Monday, Aug 25 so that we can have them in hand by 9/15. READY - SET - GO! 👏.Click here to shop:
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📆#WorldMitoWeek2025 is officially one month away! Learn how YOU can help spread #mitoawareness Sept 15-21. There are so many ways to get involved in this global 🌎 movement for our community with #mitochondrialdisease. Click Here to Get Ready:
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A WAVE of #mito patients is joining mitoSHARE uploading genetic test results! Join in to take advantage of opportunities like the biorepository and studies for people with #mitochondrialdisease launching soon. Already joined? Pass it down. Remind a friend:
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We grateful to share a message from the Chair of UMDF's Board of Trustees, Todd Lacey. The momentum is REAL. 🔥.HOPE is within reach. 💫.And it's all due to the STRENGTH of our #mito community. 🤝.Get involved: .#fierceleadership #mitochondrialdisease
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Coming to YOU, MINNESOTA!.We're excited to get together and walk, roll, and stroll toward treatments and cures for #mitochondrialdisease at Energy for Life Walk Minnesota ! Join us on Saturday, Aug 16 to #EnergizetheFight!.Register and fundraise for #mito:
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At this year's #MitoMed Conference in St. Louis, we were once again able to host our UMDF Support Ambassadors for an in person training day. This annual get together equips our ambassadors with new skills in #peersupport and connecting with families in different #mito stages.
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BRING THE ENERGY, ST. LOUIS! We're excited to take every step, roll, and stroll with our #mito community in STL this SUNDAY, AUG 10! Join us as we fuel the cure for #mitochondrialdisease. There's still time to register at Together, let's #energizethefight!
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When you become a Hope Flies monthly giver at only $50 -- those monthly gifts add up, and you'll be an accelerators donor by June 2026! Secure your opportunity to vote for the best in #mitoresearch. Join Hope Flies today:
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Calling all in the Mitochondrial Deletion syndrome and Mitochondrial DNA Depletion syndrome communities -- caregivers and affected patients! Join our patient registry, mitoSHARE, today. Don't delay! Start today: #mitochondrialdisease
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No-Cost Genetic Testing IS BACK! All interested patients with suspected #mitochondrialdisease, should register in UMDF's mitoSHARE patient registry to get started! Let's bridge the gaps TOGETHER. Visit
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