The HCC recently postponed our sickle cell event due to a measles outbreak in Merseyside, which tragically caused a child's death. @AlderHey wrote an open letter to explain the situation, which can be read here - We hope to rearrange our event for Autumn.

RT @AlderHey: Parents in Liverpool, Knowsley, Sefton, or St Helens can help prevent further spreading of #measles in the region by taking a….

RT @cahn_uk: Congratulations Marilyn Burton! Winner of #BlackHealthcareAwards Sickle Cell Care Nurse Award 2025. Your specialised care for….

Our HCC Sickle Cell Patient Event on 19/07/25, at Alder Hey Hospital unfortunately is postponed due to a measles outbreak. We apologise for any inconvenience but we had to prioritise safety. It will likely be rescheduled for Autumn 2025. New details coming soon. #SickleCell

Great news! A NW patient is the UK's first to receive gene-editing therapy. Well done @MFTnhs MRI team & congrats to the patient! This groundbreaking treatment could end lifelong transfusions & transform care. Info: #GeneTherapy #NHS #Casgevy #thalassaemia

A new NHS-commissioned study indicates UK sickle cell care doesn't have parity with other genetic disorders. To rectify this, the NHS has stepped up its quality improvement project for sickle cell patients. To read more about this issue: #sicklecell

It's #WorldSickleCellDay This year’s theme ‘Tell it Loud’ reminds us to raise vital awareness. Many #SickleCellWarriors depend on regular blood transfusions so why not do something special and #GiveBlood. A good deed plus you get free tea & biscuits! Info:

📢 2025 Thalassaemia Patient Event! Join @hcc_mft in Leeds on Sat 13th Sept for education, workshops, support, patient stories & more! FREE entry, food & raffle! For Thalassaemia patients & families. SAVE THE DATE. More info soon - keep your eyes peeled! #ThalassaemiaEvent #NHS

📢 Calling all sickle cell patients & guardians in NW England. For the 1st time, the HCC Patient Event is heading to @AlderHey, Liverpool. Info, fun, connections & food! All Free. Register & more info: #SickleCell #HCCEvent #AlderHey #Liverpool #haem

Do you want to help improve black health outcomes @MFTnhs then join us at Manchester Sickle Cell & Thalassaemia Ctr. on 09/04 & 10/04, 09:30 – 12:30. Help, learn & enjoy free food/refreshments! More info: #SickleCell #Thalassaemia #Diabetes #Cardiovascular

Sending warm Eid Mubarak wishes to everyone celebrating. From @hcc_mft based in @mftNHS🌙✨ #EidMubarak #EidAlFitr #Eid2025 #Ramadan

Wishing a bright & colourful Holi to those celebrating! 🎨 Also, best wishes to those observing Ramadan, Passover & Lent. Even if you’re not having festivities things are looking brighter, literally, as days are getting longer & Spring is nearly here! #Holi2025 #FestivalOfColours

Living with sickle cell? Learn about the REDRESS trial researching stem cell transplants from half-matched donors. A game changer?! Join us online 4/3/25, 5–6pm via MS Teams: More info: #SickleCell #REDRESSTrial #StemCellTransplant

RT @AmandaPritchard: Earlier today I wrote to the @NHSEngland chair, Richard Meddings, and @wesstreeting, to inform them of my intention to….

Want to boost Haemoglobinopathy Genetic Counselling skills/knowledge? Join us for a joint HCC, @SheffieldHosp & @MFTnhs, Online Education on 25/2/25 Register: (healthcare staff only). #health #support #community #sicklecell #thalassaemia #haem #counselling

RT @MFT_Research: Happy International Day of Women and Girls in Science!. Today we celebrate our female research and innovation staff acros….

Exciting news! If you haven't heard the gene therapy exa-cel has been approved for sickle cell patients 12 & older who have recurrent crises & lack a stem cell donor. This breakthrough offers new hope. More info: #sicklecell #genetherapy #exacel

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Healthcare professionals - want to learn more about sickle cell, thalassaemia & rare inherited anaemias? If so, join one of our HCC Online Education Sessions! Missed the last one- Understanding Sickle Cell? No problem- recording is here: #sickle #thal #RIA

Are you a sickle, thalassaemia or RIA patient who wants to learn more about research and clinical trials? If yes, then register for the Haemoglobinopathy Research Open Day @MFTnhs on 30/01/2025. Only 2 days to go! Register: #sicklecell #thalassaemia #RIA