@HCC_MFT
@hcc_mft
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Our goal is to ensure sickle cell, thalassaemia and rare inherited anaemia patients within the North of England receive equal joined up care at a high standard.
Joined February 2023
Awards Success! 🏆 Our teams @MFTnhs, @mcrlco received "Highly Commended" @HSJ_Awards 2025 for the Manchester Sickle Cell Improvement Programme. Tackling health inequalities & improving care for our sickle cell community! Well done! Full story: https://t.co/vN8Kb9OzsY
#SickleCell
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Calling all Gr. Manchester families looked after by @MFTnhs you've only a few hours left to register for the event of the year!!! The MSCTC Children's Party is tomorrow 🥳 For kids 12 & under (Sickle Cell/Thalassaemia). Register: https://t.co/LQdH8t2q87
#Thalassaemia #SickleCell
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#WorldSickleCellDay Meet Chelsea Soka, Lead Haemoglobinopathy Nurse working on our new Sickle Cell Unit at Manchester Royal Infirmary. Our new unit means that we are now able to meet national NHS guidelines for sickle cell patients. Learn more here ➡️ https://t.co/pVTpvCZWqm
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Great news for our Manchester families, brought to you by @MFTnhs! The MSCTC Children's Party registration is LIVE! 🥳 For kids 12 & under (Sickle Cell/Thalassaemia). Get ready for prizes, treats and fun! Info & Registration: https://t.co/LQdH8t1Siz
#Thalassaemia #SickleCell
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🎉 MANCHESTER KIDS' PARTY! 🎉Sickle/Thalassaemia patients (12 & under) are invited to the annual MSCTC Children’s Party! Food, activities & gifts provided by @MFTnhs. NOTE: Due to renovations, we're celebrating in Hulme this year. Full details to follow! #SickleCell #Thalassaemia
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📢Missed the free Fortrea webinar on the new Petadeferitrin clinical study for iron overload patients? Good news! The 30-min session (with Q&A) is now available on-demand. Watch here: https://t.co/QfO4Il6VZj
#ClinicalTrials #Fortrea #Petadeferitrin #Thalassaemia #SickleCell
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LAST CHANCE! Webinar tomorrow 6PM (25/09): Learn about the promising new Petadeferitrin study for transfusion-dependent iron overload. MFT sickle & thalassaemia patients ask your questions in the live Q&A. Register: https://t.co/XPX093bM4p
#IronOverload #Thalassaemia #SickleCell
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We're sorry to announce the Thalassaemia Patient Event on 13/09/25 is cancelled. This was a difficult but necessary decision. We apologise for any inconvenience & thank you for your incredible support. Stay tuned for a new date! #thalassaemia #patientevent #eventcancelled #Leeds
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Another contributor at the Thalassaemia Patient Event on 13/09 is Fortrea. They'll be discussing a new iron-eliminating study for those with transfusion-dependent iron overload. Can't make it? Join their webinar on 25/09. Details: https://t.co/XPX093bM4p
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Kids coming with you to the Thalassaemia Patient Event? We've got them covered! While you learn, they can do activities. First up is artist Sarah-Jane Mason, Leeds Art Gallery. More info- HCC website and an in focus article (item 4): https://t.co/Y6blnjPwtk
#KidsArt #Thalassaemia
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Only 3 weeks to go! Join us in Leeds on 13/09 for our Thalassaemia Patient Event. Connect with peers, hear patient stories, get advice from medics & charities, learn about treatments, research, & trials. For patients in NW, NE, & Yorkshire only. Register: https://t.co/sG7n8jTRZR
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Thalassaemia patients in the North - join us in Leeds for a Patient Event on 13/09/25. Connect with community, hear patient stories, get advice from doctors & charities, join workshops, and enjoy a free lunch! For more info/registration: https://t.co/sG7n8jTkaj
#thalassaemia
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The HCC recently postponed our sickle cell event due to a measles outbreak in Merseyside, which tragically caused a child's death. @AlderHey wrote an open letter to explain the situation, which can be read here - https://t.co/P0eqs7fwSh. We hope to rearrange our event for Autumn.
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Parents in Liverpool, Knowsley, Sefton, or St Helens can help prevent further spreading of #measles in the region by taking advantage of summer ‘catch up’ immunisation clinics for children and young people. Find out more: https://t.co/RkEuFgzFya
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Congratulations Marilyn Burton! Winner of #BlackHealthcareAwards Sickle Cell Care Nurse Award 2025. Your specialised care for people living with sickle cell brings comfort and expertise to this vital healthcare area.
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Our HCC Sickle Cell Patient Event on 19/07/25, at Alder Hey Hospital unfortunately is postponed due to a measles outbreak. We apologise for any inconvenience but we had to prioritise safety. It will likely be rescheduled for Autumn 2025. New details coming soon. #SickleCell
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Great news! A NW patient is the UK's first to receive gene-editing therapy. Well done @MFTnhs MRI team & congrats to the patient! This groundbreaking treatment could end lifelong transfusions & transform care. Info: https://t.co/2cmwjLyLFD
#GeneTherapy #NHS #Casgevy #thalassaemia
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A new NHS-commissioned study indicates UK sickle cell care doesn't have parity with other genetic disorders. To rectify this, the NHS has stepped up its quality improvement project for sickle cell patients. To read more about this issue: https://t.co/0gHRRKUuaB
#sicklecell
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It's #WorldSickleCellDay This year’s theme ‘Tell it Loud’ reminds us to raise vital awareness. Many #SickleCellWarriors depend on regular blood transfusions so why not do something special and #GiveBlood. A good deed plus you get free tea & biscuits! Info: https://t.co/fIjVdZlEXS
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📢 2025 Thalassaemia Patient Event! Join @hcc_mft in Leeds on Sat 13th Sept for education, workshops, support, patient stories & more! FREE entry, food & raffle! For Thalassaemia patients & families. SAVE THE DATE. More info soon - keep your eyes peeled! #ThalassaemiaEvent #NHS
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