Explore tweets tagged as #Unite4HoFH
🌟 Meet Marius Sheepers, a HoFH Ambassador turning challenges into hope! Read his story: https://t.co/svWTXpumIO
#Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #StarsOfTheGalaxy #HoFHAwarenessDay @fhpatienteurope
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Thank you to all who joined the community calls to learn about the #HoFH Awareness Day launch 🚀 on #Maythe4thbewithyou! With 1 week to go, the toolkit ⚙️ is now live https://t.co/eNS72zaeut.
#Unite4HoFH 💚#UseHeart #KnowHoFH #FindHoFH #rarediseases #cholesterol #CVH #CVD
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Every day, a child is born with a rare, severe form of genetic high cholesterol known as #HoFH, posing a high risk of heart issues if undetected and untreated.❤️ Join our logo contest to raise awareness: https://t.co/a99Kt6ASam
#Unite4HoFH
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Treatments for #HoFH can be expensive & not always accessible to those who need it. Without appropriate treatment, individuals with HoFH can have a significantly reduced life expectancy. #Maythe4thbewithyou Learn more & #Unite4HoFH with @fhpatienteurope: https://t.co/doe3dflDE7
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The NLA is dedicated to advancing #HoFH research and supporting those affected. Explore our latest HoFH articles in @lipidjournal: 🔗 https://t.co/XtWojAUqLR 🔗 https://t.co/7WGhmRDl6o
@fhpatienteurope #Unite4HoFH #UseHeart #FindHoFH #KnowHoFH
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@MartinViCaprnda @society_eas @fhpatienteurope The age at LA treatment commencement associates w/ ASCVD event-free survival, together w/ treatment duration, and the current on-treatment LDL-C levels. Read more on this topic on our journal! 👉 https://t.co/BylvsdFOa7
#KnowHoFH #FindHoFH #UseHeart #Unite4HoFH #Maythe4thbewithyou
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Of course! In effect, in patients with HoFH, treatment with lomitapide reduces LDL-C concentrations by up to 50%, and evinacumab by 47% 👉 https://t.co/cybDcJSY3Q
#KnowHoFH #FindHoFH #UseHeart #Unite4HoFH #Maythe4thbewithyou @society_eas @fhpatienteurope
2/2 Do you remember which drugs reduce LDL-C via an LDLR independent mechanism?
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1/2 Have you already read the ERKNet/ESPN expert consensus statement on lipoprotein apheresis in children w/ HoFH? A 🧩 has been removed from the graphical abstract and we need your help to figure out what's missing! #KnowHoFH #FindHoFH #UseHeart #Unite4HoFH #Maythe4thbewithyou
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May the 4th is HoFH Awareness Day! 🌌 Join us in sharing stories about living with HoFH. 📲 Read more: https://t.co/DERzdZ7Cw4
#Unite4HoFH #HoFHAwareness #GalaxyForcesUnited #MayThe4thBeWithYou #KnowHoFH #RareDisease #StarsOfTheGalaxy @fhpatienteurope
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HoFH AwarenessDay 🚨Logo Competition🚨 #Unite4HoFH
#KnowHoFH 🪪 Hasanain Al-Hamadani Clinical pharmacist Iraqi Lipid Clinics Network @fhpatienteurope
Meet Mateusz Szwachta, EAS Communication Lead, excels in raising awareness about cardiovascular health and FH. Join our logo competition to support #HoFH awareness: https://t.co/a99Kt6ASam
#Maythe4thBeWithYou #Unite4HoFH #KnowHoFH #FindHoFH #RareDisease #LogoCompetition
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Hey, #EASSoMe! Let’s celebrate w/ us this #HoFHAwarenessDay 1️⃣ Get involved! 2️⃣ Spread the conversation w/ your peers 3️⃣ Don't forget to use the hashtags #KnowHoFH #FindHoFH #UseHeart #Unite4HoFH #Maythe4thbewithyou Get ready, we are about to start! @society_eas @fhpatienteurope
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Meet Michelle Watts, an inspiring HoFH and HeFH Ambassador from the USA. Her dedication as a caregiver for her daughter with HoFH is unparalleled. Join us for HoFH Awareness Day and our logo competition: https://t.co/a99Kt6BpZU
#Maythe4thBeWithYou #Unite4HoFH #KnowHoFH #FindHoFH
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Today is #HoFHAwarenessDay. People living with homozygous familial hypercholesterolemia remain undiagnosed and misdiagnosed worldwide. In sharing her journey, Maria urges early detection of #HoFH to avert and manage premature heart disease: https://t.co/ak66apQwIR
#Unite4HoFH
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#Unite4HoFH 4 de maig dia de conscienciació sobre la hipercolesterolèmia familiar homozigòtica (HoFH) Per a: ➡️ Educar la comunitat ➡️ Millors opcions de detecció i tractament ➡️ Donar suport a les persones que viuen amb HoFH 👉 https://t.co/adgf6m8tO2
#xulacatalunya #UniteHoFH
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1/2 A 🧩 has been removed the main figure of the editorial “Liver transplantation for HoFH: Cure for a genetic disease?”, by Prof. Laufs and Dr. Katzmann #KnowHoFH #FindHoFH #UseHeart #Unite4HoFH #Maythe4thbewithyou @society_eas @fhpatienteurope
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HSVI, as a member of @fhpatienteurope is supporting their first #HoFHAwarenessDay. HoFH is the rare & severe form of FH, a genetic lipid condition that causes high #cholesterol. If you have #HoFH, we would love to hear your #PatientVoice👉 https://t.co/0gMTmdSTnS
#Unite4HoFH
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🚨Why We need HoFH AwarenessDay?? #Unite4HoFH
#KnowHoFH 🪪 Hasanain Al-Hamadani Clinical pharmacist Iraqi Lipid Clinics Network @fhpatienteurope
Genetic testing in #HoFH is crucial but challenging due to cost and time. It informs treatment but can lead to genetic discrimination. Laws are improving, making testing more accessible. Join our HoFH Awareness Day #logocompetition: https://t.co/a99Kt6ASam
#Unite4HoFH #KnowHoFH
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@oncologygw @society_eas @fhpatienteurope This is certainly the most correct answer, from all points of view! 👏👏👏 #KnowHoFH #FindHoFH #UseHeart #Unite4HoFH #Maythe4thbewithyou
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High LDL-cholesterol in Homozygous FH leads to early health issues. Early detection is crucial! Effective treatments exist. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay @fhpatienteurope
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Before the day ends, meet HoFH Ambassadors and hear their powerful stories. Discover HoFH's impact on individuals and families: https://t.co/cIYuaSa8rP Thanks to RARE Revolution Magazine for the #Unite4HoFH opportunity! @fhpatienteurope
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