Explore tweets tagged as #SADSFoundation
@TenayaThera
Tenaya Therapeutics
3 days
Congrats to Alice Lara on her retirement from @SADSFoundation after a career of impact, compassion, and advocacy for those with SADS conditions. We look forward to working with her successor, Walker Frahm, and continuing this important mission.
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@CanadianSADS
The Canadian SADS Foundation
21 days
Join us for Episode 33 of Let’s Talk SADS Live with special guest Dr. Danna Spears! We’ll be discussing what it means to plan for a family while living with a SADS condition. #LetsTalkSADSLive #PregnancyAndSADS #SADSFoundation #FamilyPlanningWithSADS
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@GeneticCouns
Genetic Counselors
1 year
As we close out #Heartmonth, NSGC and @SADSFoundation are honored to have genetic counselor Sara Cherny share her experiences supporting, advocating and growing with cardiology patients! #GeneChat #GeneticCounseling
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@ChristinaLGC
Christina Rigelsky
2 years
Dr Gregory Webster discusses importance to communicate with public health officials/medical examiners about what is important to consider in young sudden cardiac death cases, save a tube for genetic testing and get family involved #AHA23 @SADSFoundation
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@SADSFoundation
SADS Foundation
14 days
Having a SADS Condition might be a lot different than it looks like on the outside. Don't forget that we are here to support the SADS Community. Don't hesitate to reach out ❤️. 🏷️ #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD
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@GeneticCouns
Genetic Counselors
1 year
Melissa’s story is a testament to the importance of genetic counseling and proactive healthcare. After losing her sister to Long QT Syndrome, she took steps to uncover genetic predisposition for herself and her family: #GeneChat #HeartMonth @SADSFoundation
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@BigGreenPen
Paula Kiger (She/Her)
1 year
Can’t disagree, @SADSFoundation 💤
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@GeneticCouns
Genetic Counselors
2 years
#GeneticTesting and guidance from genetic counselors helped twin sisters Alesha and Allison identify their inherited condition and how it impacts their children. We’re honored to share their story in partnership with @SADSFoundation. Read more: #GeneChat
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@RobertHPass
Robert H. Pass
5 months
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@RobertHPass
Robert H. Pass
5 months
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@SNedios
Sotirios Nedios
10 months
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@RobertHPass
Robert H. Pass
3 months
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@RobertHPass
Robert H. Pass
3 months
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@RobertHPass
Robert H. Pass
5 months
Coming Friday - Dr Charles Berul shares his insights! @SADSFoundation @Alice_SADS @IcahnMountSinai @MountSinaiPeds @MountSinaiNYC @PACESep #epeeps
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@RobertHPass
Robert H. Pass
5 months
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@RobertHPass
Robert H. Pass
10 months
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@Solid_Bio
Solid Biosciences
1 year
In recognition of #AmericanHeartMonth, we were honored to have @SADSFoundation join us for a Heart Month Virtual Event to highlight the stories of patients living with Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), a rare heart rhythm disorder.
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