SADS Foundation
@SADSFoundation
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The SADS (Sudden Arrhythmia Death Syndromes) Foundation saves lives and supports families of children and young adults who are predisposed to sudden death.
United States
Joined February 2009
Having a SADS Condition might be a lot different than it looks like on the outside. Don't forget that we are here to support the SADS Community. Don't hesitate to reach out ❤️. 🏷️ #LQTS #CPVT #Brugada #ARVC #ARVD #SuddenCardiacArrest #HeartFailure #ICD
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We wanted to let you know about a recent HeartSine AED recall that may affect some members of the SADS community. This recall affects certain HeartSine AEDs manufactured between 2021 and 2024. To learn more about this recall visit
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Share to spread awareness! Currently, only 43 states require students to learn CPR before they graduate. At the SADS Foundation, we believe ALL high schoolers should learn this lifesaving skill before graduation!
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We’re excited to share a major breakthrough for families affected by #CPVT: a new gene therapy trial has just been approved by both the FDA and Health Canada!. Learn more about @Solid_Bio and this trial at
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#GeneElusive after a SADS diagnosis? What does it mean—and what should you do next? Join us for a free live webinar with Dr. Gregory Webster to learn more!. Register now:
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RT @Solid_Bio: We are honored to share the story of the Berko family, who tragically lost a child to CPVT, a rare heart condition – one the….
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💔 “You won’t get over the fear — but you can learn to live with it.”. Steve's written a guide for caretakers like him - who are helping their loved ones live with a genetic heart condition. Read his guide for life as a SADS parent at
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Sending your kid back to school can feel overwhelming – so here’s a list of our recommended steps to send kids with SADS conditions back safely. To download a care plan for your child, and view our recommendations for a Cardiac Emergency Care Plan, visit the link in our bio.
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We're thrilled to welcome Walker Frahm as the new CEO of the SADS Foundation!. Swipe to read a few fun facts about our new CEO!
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Patrei’s story is a powerful reminder of why #FamilyHistory matters. Her aunt’s missed diagnosis, a dangerous medication & a life-changing cardiac event all led to one discovery: a genetic condition, #LongQTSyndrome, passed through generations. Read more:
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Wishing you a safe and joyful 4th of July from all of us at The SADS Foundation! ❤️🤍💙. 🏷️ #SADSFamilies #SADSCommunity #SADSLive #LivingwithaSADSCondition #LQTS #CPVT #Brugada #ARVC #ARVD #ICD #SADSDiseases #SADSConditions
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We’re launching our annual SADS Safe Schools Campaign—to make sure you have the tools and support you need to help keep your child safe during the school day. Check out the link below for resources. Contact us here if you need help or additional materials.
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Join us live as @MJAckermanMDPhD sits down with our outgoing CEO, Alice Lara, and our incoming CEO, Walker Frahm. We are excited to hear from both of them and to get to know our incoming CEO a little bit more. Join us LIVE TODAY at 2:20 PM EST.
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We have some exciting – and also a bit sad – news to share: CEO & President, Alice Lara, is retiring this month after 23 years as the CEO of the SADS Foundation. Learn more at
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RT @CredibleMeds: Millions of people take multiple prescriptions often without realizing that certain drug combinations can increase their….
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Mark your calendars - it's time for another dedicated session of Q&A this Friday, June 27 at 2:20 PM ET with @MJAckermanMDPhD of the Mayo Clinic!. You can join us on Facebook, Instagram Live, or YouTube. Can't wait to see you there!
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Join us for a special SADS Live dedicated to the dads. Our SADS Moms was such a success, we wanted to have a SADS Live for the dads. We are so excited to announce this SADS live and don’t forget to tune in on Friday at 2:20 EST.
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RT @CredibleMeds: We now offer subscription tiers, STANDARD and PRO, for the CredibleMeds mobile app that supports our mission. Quick drug….
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To all the Dad's out there! .Thank you for your strength and your courage. Happy Father’s Day from all of us at SADS!. Stay tuned for a special SADS Live this Friday at 2:20pm EST. This live will be all about the SADS Dads and their stories. You won't want to miss it!
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