Thank you to everyone who stopped by the ERN ReCONNET booth at #EULAR2025 Congress in Barcelona! It was great to meet our members and connect with new people interested in our Network💙 #ERNReCONNET #RareDiseases #Networking #ShareCareCure

📢 ERN ReCONNET Newsletter #29 – July Edition is out!.CPMS 2.0 launch, new patient representatives, call for new Disease Coordinators, webinars, online accredited course & more on rare CTDs 🌍.🔗 Read: 📥 Subscribe: #ERNReCONNET

🧡 Today ERN ReCONNET joins the World Systemic Sclerosis Day 🌻.We support patients & HCPs with dedicated SSc resources, led by top experts & ePAGs. 🔗 🎥 SSc Webinars: 🗞 #WorldSclerodermaDay #ERNReCONNET

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CEST on “The transition from benign to secondary Raynaud’s phenomenon” with Prof. Maurizio Cutolo and Prof. Vanessa Smith, moderated by Prof. Gerd Burmester. ✍️Make sure you're registered to participate:

TODAY: @ERNReCONNET webinar at 16 CEST on “Understanding Genetic Testing in the Era of Next-Generation Sequencing: Lessons from the Hereditary Connective Tissue Disorders” with Dr. M. Castori, moderated by Prof. M. Cutolo and Prof. A. Sulli. Register here:

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CEST on “Thrombocytopenia in Systemic Lupus Erythematosus (SLE)” with Dr. Karina de Leeuw and Dr. Hilde Kooistra, moderated by Dr. Maarten Limper. ✍️Make sure you're registered to participate:

🚀 Today ERN ReCONNET hosted a CPMS 2.0 Webinar with 65+ participants!.The new CPMS helps clinicians across EU manage rare & complex cases through secure virtual consultations. 🔗 Learn more about the CPMS here: #ERNReCONNET #CPMS #RareDiseases

ERN ReCONNET is at #EULAR2025 in Barcelona! 🇪🇸.Lots of people are stopping by our stand and we’re loving the energy! 💬💙.Come meet the team in the NGO Area — we look forward to connecting and talking about rare and complex connective tissue diseases. #ERNReCONNET

🌟 An inspiring 3-day journey in Prague! The 2nd ERN ReCONNET Scientific Congress (Apr 9–11) gathered experts, researchers & patients to share knowledge, boost collaboration & advance care in rare connective tissue diseases. Thank you all! 💙 #ERNReCONNET #Prague2025

Almost in Milan for #EULAR2023! 🇮🇹.Thanks to @ern_reconnet for giving me a bursary and making it possible 😍.#ERNReCONNET #ERNReCONNETfellowships #ERNReCONNETatEULAR #rarediseases #ERNs #ShareCareCure

Please beg these lovely humans to find me and guide my treatment plans with me! My new PCP diagnosed me within one visit based on my extreme fitting of this. Now my trachea is collapsing, nose saddled, SPO2 is 75%. I have the rare neuropy. I see rheum Monday! #rpc #@ERNReCONNET

🗞️@ernreconnet #Newsletter n. 2⃣7️⃣- Dec.Edition 🎄 is out!.⭐️Take a look at our latest #news, we have 12 interesting updates from our Network!.📰Enjoy the reading n subscribe to it if you haven't done it yet!.🔗

Don’t miss our @ERNReCONNET webinar TODAY at 4 pm on “Tackling heterogeneity in Sjögren’s disease: the role of stratification and clustering” with Yann Nguyen, moderated by Coralie Bouillot and Gaetane Nocturne. ✍️Register here to participate:

Prof. Giuseppe Turchetti talks to us today about Organisational and economic aspects of rCTDs: Why does organisation matter in rare diseases?.#ReCONNET23 #ernreconnet

TODAY’S @ERNReCONNET webinar at 16 CEST on “Unmet Needs in Childhood-Onset Sjögren's Disease – Patient and Clinician Perspectives” with Dr Edoardo Marrani and Mrs Ana Vieira, moderated by Mrs Coralie Bouillot and Prof. Gaetane Nocturne. ✍️Register here:

🎓 Register now for our @ERNReCONNET webinar TODAY at 4 pm on:.“Exploring the Impact of Relapsing Polychondritis on Quality of Life" with Prof Laurent Arnaud, moderated by Prof Marta Mosca.🎯 Audience: patients, caregivers, and HCPs.✍️ Register here:

Building networks, shaping change: at ERN ReCONNET, AIM Group brought Europe’s experts together to boost rare disease innovation. #ConnectingPeople #ERNReCONNET

Don’t miss TODAY’S @ERNReCONNET webinar at 16 CET “Diagnosis and management of peripheral neurological manifestations in Sjögren’s disease” with @alessia_alunno, moderated by Mrs Coralie Bouillot and Prof. Gaetane Nocturne.✍️Register here to participate:

Don’t miss TODAY’S @ERNReCONNET webinar at 4 pm on “Treatment of systemic sclerosis-associated interstitial lung disease: where do we stand in 2025?” with Prof Launay, moderated by Prof Smith and Prof Matucci-Cerinic.✍️Make sure you're registered here: