Hadley Beeman
@hadleybeeman
Followers
14K
Following
9K
Media
293
Statuses
24K
Architect for #openstandards & the Web. Tech policy. Co-founder @300_Seconds. Data&security geek. Active in NHS, UK gov & W3C. @[email protected]
London
Joined October 2008
.@LloydDavis’s post is a fitting tribute — especially as a blog post. @podnosh was a great believer in blogs.
perfectpath.co.uk
I was going to write something on Facebook, but Nick was a blogger and so this belongs here. I heard this afternoon that my dear friend Nick Booth died yesterday after a fall at the weekend. ItR…
1
2
5
This is such a shock. @podnosh was one of the most human, funniest (often inappropriately so), and kindest people I know. He often reminds me (reminded? reminded) me that it’s not about the tech, it’s about the people. What a loss. Thank you for many years of everything, Nick.
1
0
4
Thank you to everyone for another wonderful @UKGovCamp. This year felt cautiously hopeful, enthusiastic, & looking for the spaces in which to do good. Fingers crossed that everyone in the community finds those spaces, whether they be teams, policy areas or tech advances. #ukgc25.
0
1
9
One of the best parts of Christmas… it’s #duvetKnowItsChristmas. A laugh about where we are sleeping tonight, and a few pennies for those who don’t have a bed. Merry merry, all 🎄. (L i n k to follow).
1
1
8
RT @hadleybeeman: We began the Ethical Web Principles as a @w3ctag doc, to record the ethics behind our architectural decisions & advice. T….
0
2
0
And, most importantly, the Ethical Web Principles themselves:. 3/3.
0
0
2
So many comments I could make on this post, but let’s go with the most important one: I’m so glad they wrote it. Read their wisdom.
Patient records and the NHS App are in the news again. Me and @MattStibbs wrote down some thoughts. TLDR: the perfect architectural approach won’t solve for fundamental environmental challenges that need addressing.
0
6
16
RT @hadleybeeman: While I’m at it, the topic isn’t “data sharing”, it’s “data access”. The words matter. Here we go:. #NHS #digitalRecords….
0
17
0
RT @hadleybeeman: Lots of discussion about digital health records in the NHS today. Modernisation, and privacy. But here’s the thing — we D….
0
84
0
The language matters because the policy wording gets interpreted into technical architectures. The more we talk about “data sharing”, the more we make everything about sending round large spreadsheets — and all the privacy risks and barriers to innovation that come with. 4/4.
2
1
17
“Data access” is pulling the info you need when you see a patient (as a clinician), or checking your test results when you need to know (as a patient). (It’s Spotify or Netflix — you don’t need your own warehouse of content. You can stream when you’re ready.).3/.
1
1
8
“Data sharing” means swapping large xls files of personal data about us — outside of our control. It’s a very old way of handling data. (Think: buying videos and CDs so you’ll have the movies or music you might want to play at any point.) 2/.
2
2
7
While I’m at it, the topic isn’t “data sharing”, it’s “data access”. The words matter. Here we go:. #NHS #digitalRecords.1/.
4
17
53
So please, enough calls for one monolithic database. We know those are exorbitantly expensive, complicate life for all users, stifle innovation at the software layer and create massive privacy and security risks. Think: web and internet. 8/8.
19
10
128
This approach:.• gives everyone real-time data to make decisions on.• leaves the “source” of the data in charge of their DPA(GDPR) responsibilities.• mimics reality. Which is always the best system architecture. 7/.
1
4
55
This is a SOLVED PROBLEM. We know how to do this. It’s a big transformation, and requires some national infrastructure (so the software knows where to find my info across the NHS network), but it’s eminently do-able. 6/.
4
6
58