Thanks to all who signed this letter thanking Federal workers - https://t.co/nYmUi4joIE... Please share it with your favorite federal staff!

Black Friday. Do we have a deal for you! Just $99.99 (OK, actually $100) you can enable a baby or child from an under-resourced community (LMIC) to receive clinical genomic testing and get on their way to a diagnosis. This is a phenomenal deal. Act now! https://t.co/tY36s9ItYl

Genetic Alliance has a piece in the Guardian today. iHope Genetic Health - pro bono genetic testing for undiagnosed children from under-resourced communities. Thanks to our partners! @ihopegenetichealth https://t.co/dXxWygD8mD #RareDiseases2024 #ihopegenetichealth

Thrilled to announce the 10 clinical sites joining iHope Genetic Health network: https://t.co/N8VpqqfIce These clinical sites are sending samples from undiagnosed kids to our three labs offering probono services. Thanks to @illumina for their generous support! #undiagnosed

Simone Biles throws shade at Donald Trump.

Genetic Alliance sends our staff to this meeting every year. Unparalleled in our field! #ashg2024

Discover why Genetic Alliance IRB is perfect for your research! With 20+ years of experience, we oversee registry data, biospecimen collection, and more. Fast, affordable, and OHRP-certified, we review all research. Email irbadmin@geneticalliance.org to start. #GeneticAllianceIRB

Elon, I hope you took a long hard look at the implications before you decided to live-stream from the USA 🇺🇸 border, where countless migrants are battling the harsh realities of life. You sit there, the wealthiest man on this planet 🌎, amidst the very embodiment of poverty and

Today is the 1st day of #NewbornScreeningAwarenessMonth & this year marks 60 years of #NBS! We have many events and activities planned to help you celebrate this milestone while raising awareness for NBS. Click here to learn more: https://t.co/9KzzLHLZA7 #2023NBS #NBS60Years

A fun and fabulous interview!

Travera and Genetic Alliance Join Forces to Expand Access to Innovative Cancer Treatment

What is the current overall health status of people living with #Chiari, #syringomyelia & related disorders? The truth is, we actually aren't sure... But you can help change that! Participate in the @GeneticAlliance survey now in the patient registry: https://t.co/ka2RN6tJxL 1/5

Genetic Alliance is launching a burden of #disease study. We seek to give #advocacy organizations and #communities the data they need to assure all interested parties that the disease burden in their community can be measured and communicated. https://t.co/RbiWpKUneV

Let’s measure burden of #disease collectively. https://t.co/oSNNnNcFEI #RareDisease #study #diseases #conditions #rarediseases

Let’s Measure Burden of Disease Collectively - https://t.co/7Zm4Z0zlcJ

We who live with rare diseases feel alone, but collectively we are many, and we are strong. You count! Tell us about your disease, and let's build the virtual army needed to persevere @geneticalliance @LunaDNA_ https://t.co/Ehip0a9uwM #RareDiseaseDay

Sometimes those of us in rare disease families are struck with the phrase - but it is so rare, 1 in 100,000 or 1 in a million. But for us, it is 100%. In My Life as a numerator, I describe how it is for those of us who live here. https://t.co/gBojoMynyY #RareDiseaseDay2023

Sometimes a rare disease is so rare, you don't have any company. When you have no home (support group, patient group), we offer you a haven. Be heard, be counted: https://t.co/Ehip0a9uwM @GeneticAlliance @LunaDNA_ #RareDiseaseDay2023 #rarediseaseday #RareDisease

Researchers and Policy-makers need to know your needs. Tell us about your #RareDisease . https://t.co/MTCbroagmJ #RareDiseaseDay #RareDiseaseDay2023 #RareDiseases

Your experience counts, tell us about it here on this #RareDiseaseDay2023 : https://t.co/MTCbroagmJ #RareDiseases #RareDiseaseDay #DíaMundialDeLasEnfermedadesRaras