DADA2 Foundation
@dada2foundation
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We're a nonprofit looking for innovative ways to accelerate research into the rare inflammatory disease DADA2.
Joined September 2016
Partnering w/ @TNFPharma to launch compassionate use study of #Isomyosamine for #DADA2 patients when the disease can become life-threatening. Hope for families, progress for patients. 💙🔗 #RareDisease #CompassionateUse #DADA2Foundation #PediatricResearch.
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Want to know more about DADA2? Listen to this podcast featuring Dr. Pui Y. Lee, a pediatric rheumatologist, leading researcher and clinician from Harvard Medical School and Boston Children's Hospital.
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DADA2 kids sometimes need blood transfusions and stem cell transplants, and you can be their SUPERHERO. Ruben from Australia is one of those kids. Visit learn how you can donate and save a life!
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Where are you presenting this summer? Our last newsletter led to several physicians sharing their recent presentations - and we want to highlight them this month! Drop us a note so we can share where the word is spreading around the world!.
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Review/download our physicians brochure - printable and digital versions to take with you to summer conferences and medical rounds. #CME #physicianconference #rheumatology #ERMedicine #InternalMedicine #Immunology #Dermatology #Neurology #Hematology
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What are the latest collaborations, published works and thoughts on DADA2? Rounding up the AMAZING work from global scientists in this month's newsletter:
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RT @DavidFajgenbaum: Deadly hyperinflammatory disease finds curative treatment from a repurposed drug!. DADA2, a rare hyperinflammatory con….
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It's an honor to call @DavidFajgenbaum a friend of the Foundation. He brings attention to an important issue for consideration in rare diseases. Repurposing! #RareDisease.
Deadly hyperinflammatory disease finds curative treatment from a repurposed drug!. DADA2, a rare hyperinflammatory condition, tragically forces children to endure strokes at a young age, often leading to premature death in their teenage years. Without a single clinical trial,
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Thank you, @JAMANetworkOpen for selecting the DADA2 Consensus Statement paper as a CME-credit eligible paper for one credit. This is an important way to continue to share awareness of DADA2 among doctors.
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Cornerstones matter. Where you have been is as important as where you are headed. New to DADA2? we keep a constant recap of published papers (thanks, Google Scholar), + the papers that started it all & plant a stake in the ground of progress. Take a look:
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Andy's story is classic for #raredisease. Decades of questions. But today? Andy is THRIVING - a testament to collaboration. Best wishes to Andy & his family on #RareDiseaseDay2024 - & our deepest gratitude to all researchers & docs working to cure DADA2.
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. and while we're on the topic of more knowledge this #RareDiseaseDay2024 . Take 3 min to learn more about DADA2.
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Latest newsletter is out & we're celebrating collaboration, that irreplaceable phenomenon that happens when people choose a shared purpose. This #RareDiseaseDay2024, we don't take for granted the dedicated of clinicians & researchers on the case of DADA2.
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Honoring #rarediseaseday2024? We have a few ways you can help - whether you are a patient or family, doctor or researcher. Check out our toolkit and help us spread awareness in 2024!
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Newsletter alert! How can our website help build a care team? And more. Take a look and retweet! Who else needs to learn more about DADA2? #RareDisease
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What does collaboration look like? Just like this. 100 docs and researchers pursuing a cure. Invest in the DADA2 Foundation this season and keep the questions, answers and next steps going!
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We are on the VERGE OF DISCOVERY - so much to do in 2024! Invest in our new Patient Registry, collaboration among dedicated researchers & doctors, and the lives of DADA2 patients this #givingTuesday. Here's how your gift TODAY can make a difference:
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