CTNNB1 Connect & Cure
@ctnnb1cc
Followers
246
Following
559
Media
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Statuses
309
Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.co/dZAf1GmhAJ
Joined January 2023
RT @s_searchlight: We celebrate #CTNNB1AwarenessDay w/ our friends at @ctnnb1org and @ctnnb1cc! 🌟 We have 254 participants with #CTNNB1 -re….
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RT @RareDiseases: Meet a new Member of the NORD family of patient organizations: @ctnnb1cc!. CTNNB1 Connect and Cure is a nonprofit that fu….
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RT @OnceUponAGene: There’s No Place Like Hope @GlobalGenes #WeekInRARE Community, collaboration, and connection, oh my! 3 amazing days of s….
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RT @RareRevolutionM: Thank you again, Rare Revolution Magazine, and for those following along this #TuesdayTakeover! We'd love to stay in t….
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RT @RareRevolutionM: CTNNB1 Awareness Day is in TWO DAYS! On Thursday, the 25th, will you join us in raising awareness for this rare diseas….
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RT @RareRevolutionM: Our dragonflies are our #why! As we fight for them, we are constantly encouraged by their adaptability, fueling our ho….
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RT @RareRevolutionM: @ctnnb1cc is 100% volunteer-run so that our funds can go directly towards our mission. Behind everything we do lies a….
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RT @RareRevolutionM: Our community and research network are working tirelessly towards potential treatments for those affected by CTNNB1 Sy….
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RT @RareRevolutionM: About 1/4 of #CerebralPalsy cases have a genetic cause, and we are at the top of the list! #CTNNB1 symptoms that gener….
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RT @RareRevolutionM: The symptoms? Many. The culprit? #CTNNB1. Where are the rest of our patients? Genetic testing holds the key. Publicati….
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RT @OnceUponAGene: Special shoutout 2 Shayla in Oakland for her incredible volunteer work, she's sending our president to her 1st @GlobalGe….
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RT @RareRevolutionM: Thank you Rare Revolution Magazine for this #TuesdayTakeover! We are so excited to share information about @ctnnb1cc a….
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RT @BainBrainLab: Make sure to set your Pubmed searches. This month "cerebral palsy genetic" popped up so many ROCKSTARS I have the fortun….
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RT @OnceUponAGene: Attention to those attending the @GlobalGenes Rare Drug Development Symposium next week: .@ctnnb1cc .
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RT @s_searchlight: Our participants have collectively completed 57,460 surveys to date. 🎉 We thank each of you for sharing invaluable infor….
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What if we told you there is a diagnostic odyssey fast pass? Clinical-grade #wholeexomesequencing AND it’s from the comfort of your own home. Check your eligibility here:
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RT @PedsGCAbby: #RareDisease families, have you received a rare genetic diagnosis for your child in the past 5 years? . If so, we want to h….
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