Colin Halverson Profile
Colin Halverson

@colin_halverson

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109
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53

anthropology, linguistics, ethics, genetics

Joined June 2018
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@colin_halverson
Colin Halverson
1 year
RT @IUCB: 📢 New research out now! 📢How are hEDS patients using Twitter & other social media to research and network? Dive into the open acc….
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onlinelibrary.wiley.com
Background Patients with uncommon genetic conditions often face limited in-person resources for social and informational support. Hypermobile Ehlers–Danlos syndrome (hEDS) is a rare or underdiagnos...
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@colin_halverson
Colin Halverson
1 year
RT @IUCB: @colin_halverson and Mary Ott hiked up the waterfalls outside of Eldoret, while conducting research with PI @MeganS_Mchenry on th….
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@grok
Grok
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Join millions who have switched to Grok.
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@colin_halverson
Colin Halverson
1 year
RT @IUCB: ‼️Next Week! Bioethics Grand Rounds is Back!‼️. Dr. Ellen Clayton, JD, MD, will be visiting us from Vanderbilt University to pres….
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@colin_halverson
Colin Halverson
2 years
Can’t wait to read this book by the Ascended Master #LingAnth
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@colin_halverson
Colin Halverson
3 years
RT @IUCB: 📣 Join us for a fascinating talk next week on the 𓂀 Translation of the Ebers Papyrus 𓂀, by @CitizenJane1889 and @colin_halverson….
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@colin_halverson
Colin Halverson
3 years
RT @ACLUIndiana: HB 1608, Indiana's shameful "Don't Say Gay" bill censoring discussions of LGBTQ people in schools, just passed out of comm….
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@colin_halverson
Colin Halverson
3 years
This was the most emotionally challenging piece I've ever worked on but I think its message is important: patients with Ehlers-Danlos often suffer from "clinician-associated traumatization" from compounding negative encounters in clinic. #EDS #MedTwitter.
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@colin_halverson
Colin Halverson
3 years
RT @Meghan_Halley: Check our our new commentary in @bioethics_net. It may seem to lean a bit ivory tower, but the moral authority of person….
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tandfonline.com
Published in The American Journal of Bioethics (Vol. 23, No. 1, 2023)
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@colin_halverson
Colin Halverson
3 years
just published a new article on the use of alternative therapies by patients with Ehlers Danlos Syndrome. Understanding the benefits and dangers of CAM can improve patient outcomes. #EDS #PatientCare #Health
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frontiersin.org
Background: Patients with hypermobile Ehlers-Danlos Syndrome (hEDS) often make use of complementary and alternative medical (CAM) techniques to manage their ...
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@colin_halverson
Colin Halverson
3 years
RT @IUCB: Patients with Ehlers-Danlos Syndrome often suffer from difficult-to-manage symptoms, so they turn to alternative treatments. Dr….
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frontiersin.org
Background: Patients with hypermobile Ehlers-Danlos Syndrome (hEDS) often make use of complementary and alternative medical (CAM) techniques to manage their ...
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@colin_halverson
Colin Halverson
3 years
RT @IUCB: Patients with rare diseases face MANY barriers to finding a diagnosis. @colin_halverson and Tom Doyle of @IUCB and Erin Conboy o….
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onlinelibrary.wiley.com
Click on the article title to read more.
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@colin_halverson
Colin Halverson
3 years
Patients with rare diseases face many.barriers in finding the correct diagnosis. I just published an article with Tom Doyle and Erin Conboy of @IUSMDeptMed comparing the "diagnostic deserts" patients face to.food deserts. Read our paper here:
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onlinelibrary.wiley.com
Click on the article title to read more.
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@colin_halverson
Colin Halverson
3 years
RT @IUCB: We’re very excited to share this paper by @colin_halverson: What is and isn’t unique about the ethics of genetic testing? Dr. Hal….
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@colin_halverson
Colin Halverson
3 years
RT @IUCB: Congrats to Dr. Colin Halverson, faculty at @IUCB for receiving a prestigious K01 award from @genome_gov @NIH! Dr. Halverson’s pr….
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@colin_halverson
Colin Halverson
3 years
To my mentors (@genomemom @PeterHSchwartz and Drs Francomano and Kroenke), @IUCB, and the patients who have shared their life stories with me, I can’t thank you enough for all your support!.
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@colin_halverson
Colin Halverson
3 years
I am thrilled to announce that I am officially the recipient of a Career Development Award (K01) from @NIH @genome_gov! I am so grateful for their encouragement of my continued #anthropology and #bioethics work on #EhlersDanlosSyndrome.
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@colin_halverson
Colin Halverson
3 years
Is genetic information really all that special? I outline the ways such essentialism affects modern healthcare in the latest issue of Perspectives in Biology and Medicine from @JHUPress: #RareDisease #CancerResearch #EhlersDanlosSyndrome.
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@colin_halverson
Colin Halverson
3 years
RT @mbismark: Things I learned from studying patient complaints for twenty years (a thread) ….
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