NIH's eutils service down?? "Search Backend failed: Database is not supported: pubmed" @NIH.

RT @_TheCRID: We’ve released the Automatic CRID Creation API, making it easier for 3rd party applications to generate Clinical Research IDs….

If you're a rare disease org or academic researcher using the CRID and your IRB needs support in determining if CRID is PHI or not, please contact us to get our statement, “Why the CRID Is Not PHI and Should Be Allowed in De-identified Research Datasets,” to assist in your IRB.

The University of Melbourne has recently launched what may become the largest genetic epilepsy natural history study ever conducted, powered by the CLIRINX system! #RareDiseases #NaturalHistoryStudy #Genetics #Epilepsy.

After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastructure in Dublin to support local patient registries, natural history studies & clinical trial readiness. #RareDiseases #Ireland #GDPR.

RT @_TheCRID: 300+ genes, 6500+ rare disease patients — CRID is growing! The CRID Clinical Research ID database is helping to unlock data….

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Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! #raredisease #epilepsy #clirinx #crid #innovation

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! #raredisease #epilepsy #clirinx #crid #innovation

Light Up Boyle Christmas 2024

CLIRINX has just implemented a clinical/specimen management system at The Uni. of Melbourne's Epilepsy Research Centre. This game-changing platform is set to revolutionize genetic epilepsy research and patient care, supporting everything from diagnosis to complex genetic data.🧬

RT @clirinx: Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study?.If so, talk to….

RT @clirinx: Is your rare disease group thinking of creating a new Contacts Registry? Need to support 70+ languages?.If so, talk to CLIRINX….

RT @clirinx: Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to….

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! #raredisease #epilepsy #clirinx #crid #innovation

Is your rare disease group thinking of creating a new Contacts Registry? Need to support 70+ languages?.If so, talk to CLIRINX! #raredisease #epilesy #clirinx #crid #innovation

Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study?.If so, talk to CLIRINX! #raredisease #epilepsy #clirinx #crid #innovation