We’ve released the Automatic CRID Creation API, making it easier for 3rd party applications to generate Clinical Research IDs (CRIDs) directly from within their systems. This is a big step toward improving data linkage across research studies #CRID #NoMoreDataSilos #RareDiseases

If you're a rare disease org or academic researcher using the CRID and your IRB needs support in determining if CRID is PHI or not, please contact us to get our statement, “Why the CRID Is Not PHI and Should Be Allowed in De-identified Research Datasets,” to assist in your IRB.

RT @clirinx: After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastruc….

300+ genes, 6500+ rare disease patients — CRID is growing! The CRID Clinical Research ID database is helping to unlock data silos like never before. #Genomics #Genes #ClinicalResearchID #CRID #UniquePatientID #RareDiseases Also on BlueSky

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Exciting update: The CRID server infrastructure has been fully upgraded to use the latest Amazon AWS components! This enhancement brings a big boost to performance, bolsters security, and ensures even greater reliability for our users. #AWS #RareDisease #EndDataSilos #CRID

RT @_TheCRID: Unleash the power of research data with unique patient IDs. Explore the possibilities at #crid #uniqu….

Unleash the power of research data with unique patient IDs. Explore the possibilities at #crid #uniquepatientid #raredisease #epilepsy #clirinx #informatics #innovation

🔗 CRID (Clinical Research ID): Connect patient data across research studies. 🔐 RDDR (Rare Disease Data Repository): Share research data securely. #RareDiseases #Epilepsy #InformaticsInnovation.

RT @_theRDDR: We're live! Go to #rarediseases

RT @_theRDDR: Are you a rare disease organization or researcher with valuable datasets or protocols to share? Let us help you to store, o….

CRID seamlessly integrates with the CLIRINX Rare Disease IT system. Automatically generate unique CRID patient identifiers directly from the CLIRINX patient portal, streamlining your patient enrollment and data management. #fancyITStuff #rareDisease #EDC

We are pleased to announce the renewal of our IRB Approval for the CRID Unique Patient ID service. If you are interested in including CRID in your research study, please contact us at thecrid@clirinx.com.

RT @clirinx: 🌐 Exciting News! Visit our new website: 🌟. We provide innovative IT solutions for the rare disease res….

CRID is doubling in size every 8 months! Nearly 4,000 people have already registered for their unique patient ID, the "CRID," encompassing 175+ rare disease genes. Secure your free CRID at to unite against data silos. #GotCRID #175GenesAndGrowing.

RT @_TheCRID: #RareDiseaseDay2024

#RareDiseaseDay2024

Exciting news! 🌐 Our CRID system has hit a new milestone with over 3200 unique patient identifiers created. That's 3200 rare disease patients taking control of their clinical research data! 🏥💻#RareDiseases #EndDataSilos #ABigDeal

RT @clirinx: Overcome multilingual challenges in rare disease clinical research with CLIRINX electronic data collection! Our system is avai….